Alyssamama
  • Female
  • Brighton, MI
  • United States
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  • Zoey
  • LeslieAnn Butler
  • rj, Co-founder

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Relationship Status:
Married
About Me:
Alyssa was dignosed with Alopecia back in March of this yr. She has lost 30% of her hair. She is 7 yrs old.
Are you age 18 or older?
Yes

Comment Wall (10 comments)

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At 1:17am on August 1, 2012, Cheryl, Co-founder said…

Hi, Alopecians in Michigan will celebrate International Alopecia Day with a late lunch at T.G.I Fridays in Livonia. We will be meeting at 3 PM on August 4th.
Come for lunch, come for dinner, come for an appetizer or just come for coffee and dessert!
Let's Meet!
T.G.I Fridays
20120 Haggerty Road
Livonia, MI 48152-1087

Please RSVP below so that we can make reservations if needed.

http://www.alopeciaworld.com/events/international-alopecia-day-detroit-michigan-2012

Thanks and we really look forward to meeting you!

PS: Please note that this is a dutch treat and everyone is responsible for their own bill!

Thanks,

Cheryl

At 11:02am on September 19, 2011, Sarah Eisenhardt said…
At 8:36pm on July 28, 2011, Cheryl, Co-founder said…
Hi Alyssama, Alopecians in Michigan will celebrate International Alopecia Day (August 6th, 2011) with a late lunch at T.G.I Fridays in Livonia. We will be meeting at 3 PM.

Come for lunch, come for dinner, come for an appetizer or just come for coffee and dessert!

We want to meet you!

T.G.I Fridays
20120 Haggerty Road
Livonia, MI 48152-1087
(734) 464-8443

Please RSVP on the Events page:

http://www.alopeciaworld.com/events/international-alopecia-day-det, so that we can make reservations if needed.

Thanks and we really look forward to meeting you!

TGI Fridays has been kind enough to offer our group a 10% discount on the meals.

PS: Please note that this is a dutch treat and everyone is responsible for their own bill!
At 7:55am on August 18, 2008, rach said…
hello there ,
my son is four , he got alopecia just before his third birthday, he had patches here and there by the time he was just over 3 1/2 he had lost all his hair, and not long after that his eyelashes and eyebrows, which thankfully came back earlier this year, he too had a full blood work with nothing found , we do not have alopecia in the family our specialist has advised he has less than a 5% chance of getting his hair back , he doesnt let it bother him,hes the best , I guess as parents no matter how much it hurts us,we have to be strong for our children,and let them know that it doesnt change the beautiful little people they are , my love to you
At 8:41pm on August 8, 2008, Cindy said…
Hi Alyssa..I have a 6.5 yr old daughter with Alopecia. After 6 months of complete hair loss my daughter is starting to regrow with the help of treatment. We hope it stays and continues to grow. I know the initially diagnosis is a shock and it is hard to watch our kids lose their hair. We all have our good and bad days, but at the end of the day you see our child's bright smile and just love them. With your love and support your daughter will get through this. Feel free to email me anytime if you want to chat..This board is a great group of people. Cindy
At 11:06am on August 8, 2008, Lynn AKA Mom of 2 w/AA said…
Hello there Alyssamama. I know that it is hard, but you have to try very hard not to worry that your daughter will loose all of her hair. Just because she has lost a percentage of hair, does not mean that she will loose it all. Just as we do not know what will happen tomorrow, we do not know that our children will loose all of their hair. When my daughter was 8, we treated her with the cortiosteriod (spelling?) topical cream & Men's Roggaine. She was under the care of a professor of dermatology, and he told her that he would get her hair to grow back. It took seven months of applying both medications (each) twice a day. All of her hair grew back, and stayed for two years! Now, she & her brother each have about three spots each, about the size of a dime, if not smaller. They treat with the shots & Mens' Roggaine. Those shots keep the AA spots from growing larger ~ so far. Hair is growing back in almost all of the areas ~ very slowly, but it is growing back. Keep your chin up & stay strong for Alyssa!!
At 11:25pm on August 2, 2008, Cheryl, Co-founder said…
Hi Alyssa and mom, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
At 6:44pm on July 31, 2008, LeslieAnn Butler said…
Oh, I'm so sorry it's so hard on both of you.
It might help you to read my book -- "If Your Hair Falls Out, Keep Dancing!" A lot of parents and kids have found it very helpful -- check it out on my page, and if you want to get it, you can click the link at the bottom, or go to Amazon.com.
Please keep me posted on things. I want to help...
At 2:57pm on July 31, 2008, rj, Co-founder said…
Hi, Alyssa and Mom. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
At 2:00pm on July 31, 2008, LeslieAnn Butler said…
Hi,
How are you and Alyssa doing? Sometimes it's much harder for the parent than it is for the child.
I just wanted to welcome you and say hello!
LeslieAnn
 
 
 

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