Anna (Elly's Mom)
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Relationship Status:
Married
About Me:
My daughter was recently diagnosed with a rare, incurable genetic condition called Monilethrix. It causes hair to break easily and creates patches of hair loss. She has a large bald patch on the back of her head, very sparse eyebrows, and no body hair from the neck down. Being such a rare disorder, there are no support groups specifically geared towards it. I'm hoping to find support here.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 7:07pm on November 26, 2010, LeslieAnn Butler said…
Hello and welcome, Anna!
How are you and Elly doing today?
Leslie Ann
 
 
 

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