Carley
  • 47, Female
  • United States
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  • Sara and William
  • Cindy

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Carley's Discussions

Hair growth/falling out pattern

Started this discussion. Last reply by Rose K May 5, 2009. 2 Replies

New to this - how to help my son deal with alopecia

Started this discussion. Last reply by Debbie Lopas May 12, 2009. 11 Replies

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Profile Information

Relationship Status:
Married
About Me:
Mother of 11 year old just diagnosed with alopecia a week ago. This has been hearbreaking for the whole family, especially my son of course.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 8:00am on March 15, 2009, Cindy said…
Hi Carly, your color font on your page is hard to read..Anyway, I am happy to hear from you. It sound like your son is doing fairly well. Just yesterday Sam told me it does not matter if her hair grows or doesn't grow..Unbelievable!! She is actually having regrowth now and wants it to stay, but she understand very well that it can fall out. I can't believe your son had such an awful reaction to the treatment. Your story was scary..Samantha is doing a treatment called SADBE. It is squaric acid. The major side effects are an itchy scalp and irritation. You need these effects for the meds to work. She started growing her hair about 5 months later. Still no lashes and brows, but the doctor says it will come. We only treat the scalp, but the meds work the entire immune system. I hope you have a wonderful vacation and get rejuvenated. It is honestly harder on the parents to deal with then the parents. And while I have been better at accepting it and I still have moments that I flip out and cry..Keep being a support system to your son and you'll all get through it..Cindy
At 9:53pm on March 14, 2009, LeslieAnn Butler said…
Hi Carley, I just wanted to say hello and welcome!
LeslieAnn
At 2:03pm on March 12, 2009, Cindy said…
Hi Carly. I am Cindy mom to a 7yr old girl living with AA. I responded to your post. How is your son doing with all this?
 
 
 

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