Donna
  • Female
  • Seattle, WA
  • United States
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Donna's Discussions

Microblading

Started this discussion. Last reply by Lilly Feb 22, 2019. 11 Replies

i had my eyebrows microbladed yesterday .  I have frontal fibrosising alopecia.  After she started with the microblading she was having a hard time with my skin on the eyebrows.  She said it was very…Continue

Using rogaine

Started Oct 30, 2017 0 Replies

With frontal fibrosing Alopecia I am only using the rogaine on the temples & hair line area. Not all over. What are other doing

FFA how much hair loss will happen

Started this discussion. Last reply by Murmo Aug 14, 2018. 2 Replies

How much hair loss is average for FFA? I’m so worried I’m going to lose half my head of hair. I saw a woman that was almost bald except for the back half of her head.

I’ve read some that Tramadol can cause hair loss

Started this discussion. Last reply by Return_life Oct 10, 2017. 3 Replies

I have been taking tramadol for several years. 2x/day Does anyone experience hair loss that they think may be caused by it? I don’t know if it is or is t with my FFA

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Latest Activity

Donna liked CurlyK's discussion Bonded Hair Pieces
Feb 23, 2020
Donna liked CurlyK's discussion Bonded Hair Pieces
Feb 23, 2020
Donna replied to ohnonotme's discussion Minoxidil regimen in the group Frontal Fibrosing Alopecia
"I use the foam once a day at night "
Sep 23, 2019
Donna replied to NorthCarolinaMama's discussion All natural makeup brands in the group Frontal Fibrosing Alopecia
"I have switched to Rejuva Minerals for my foundation,  I love the way it goes on & looks.  I found it through the EWG verified products."
Sep 16, 2019
Donna replied to ohnonotme's discussion Changes you've made to your hair care routine since diagnosis? in the group Frontal Fibrosing Alopecia
"My dermatologist said I could keep coloring hair too so I do. I cut out using the purple shampoo & conditioner that helps keep the color in because another post said that we should eliminate anything with limonene, linalool,…"
Sep 16, 2019
Donna replied to ohnonotme's discussion Changes you've made to your hair care routine since diagnosis? in the group Frontal Fibrosing Alopecia
"I have cut back or eliminated a lot of chemicals recently. I only get my hair foiled twice a year & will continue to do that. I have never noticed any excess hair loss afterwards. So until then I will continue doing what I am. This summer I did…"
Sep 8, 2019
Donna replied to Geri's discussion FFA and common beauty aid ingredients in the group Frontal Fibrosing Alopecia
"I thought I was doing good washing my hair with baby shampoo this morning.  Seemed like a lot of hair loss afterwards!!   I also checked Green People shampoo online,  that’s so expensive.  I think it was $24.00 for 6.7oz."
Aug 7, 2019
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"Does anyone have any suggestions for a shampoo & conditioner without the harmful chemicals?  I have a list someone posted that I carry with me & I’ve got rid of products with those in…"
Aug 6, 2019
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"I’ve just found out through investigation that tramadol has titanium dioxide .  I’ve been taking that for several years.  Probably as long as I’ve had FFA.  I guess that needs to stop also. Sounds like there’s…"
Jul 8, 2019
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"I have noticed that at the end of each summer for the past 3 years I’ve had ffa I have a significant amount more hair loss in August & September.  I now believe it it because of the use of sunscreens. So this summer I am not applying…"
Jul 3, 2019

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Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 7:56pm on November 14, 2017, illustr8r said…

Hi Donna,

This is the thread where the essential oils were listed:

http://www.alopeciaworld.com/group/frontal-fibrosing-alopecia/forum/topics/essential-oils

It was posted by "April"

Here is the recipe:

4 tsp. grapeseed oil + 1/2 tsp jojoba oil

2 drops cedarwood EO

2 drops thyme EO

3 drops lavender EO

3 drops rosemary oil

Here is  a link to the study

http://www.ncbi.nlm.nih.gov/pubmed/9828867

I have a friend who has always had thin hair. She hasn't been diagnosed with anything- just unlucky in the hair dept. She started using essential oils and had some success. She used something call Ylang Ylang along with lavender and cedarwood. I'll try this concoction since it was a scientific study. I have been using cod liver oil and it's soothed my itchy scalp. Dr. says to stop with Clobetasol for awhile...*sigh* It's always something isn't it! :)

 
 
 

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