Donna
  • 46, Female
  • Kingsley, MI
  • United States
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  • Sarah Eisenhardt
  • Cheryl, Co-founder
  • Alopecia World

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I have been dealing with alopecia areata since October of 2007.. It was very devastating to me when it first started and not knowing at first what was happening.. I got into my family doctors after a long wait to find out I had alopecia areata.. He started injections that day.. After about a few months wait to get in to see a dermatologist he also continued injections every 4 weeks.. It has worked, I had injections for about 6 - 8 months.. All spots have filled in nicely. I now have another spot near the top of the back of my head that has not filled in at all yet, but hoping it will soon.. I lost all the hair off both of my arms about 2 weeks ago but that doesn't bother me..Losing my hair as quick as I did was very hard for me to deal with. It's still hard even though mostly everything has filled back in except that one spot only because its the fact of not knowing when it will happen again.. I'm getting married in june 2010 and hoping I will have all my hair still by than.. But if not than I will be looking for a wig that best fits me..
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes
I have had alopecia areata since October 2007. This is all new to me. When it first happened I started out with 1 spot, then it lead to 3 spots on the back of head. Within 4 weeks the whole back of my head was bald. This was pretty devistating to me. I had seen my doctor about 2 weeks after it had started and he started injections. It was 2 months before I get in to the Dematology. So meanwhile was having injections around the edge of bald area evry 4 weeks and still having them every 4 weeks. So far they have worked I have 2 bald spots and the other area is filling in with hair. I knew nothing about this condition til know. I feel like I know everything there is to know about it. I have now accepted the fact I can't do anything about it and there's no cure, it's still not easy to deal with but I have moved on from it.

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At 1:23am on August 1, 2012, Cheryl, Co-founder said…

Hi Donna, Alopecians in Michigan will celebrate International Alopecia Day with a late lunch at T.G.I Fridays in Livonia. We will be meeting at 3 PM on August 4th.
Come for lunch, come for dinner, come for an appetizer or just come for coffee and dessert!
Let's Meet!
T.G.I Fridays
20120 Haggerty Road
Livonia, MI 48152-1087

Please RSVP below so that we can make reservations if needed.

http://www.alopeciaworld.com/events/international-alopecia-day-detroit-michigan-2012

Thanks and we really look forward to meeting you!

PS: Please note that this is a dutch treat and everyone is responsible for their own bill!

Thanks,

Cheryl

At 11:03am on September 19, 2011, Sarah Eisenhardt said…
http://www.alopeciaworld.com/events/apple-orchard-with-children-s-alopecia-project-of-michigan
At 8:42pm on July 28, 2011, Cheryl, Co-founder said…
Hi Donna, Alopecians in Michigan will celebrate International Alopecia Day (August 6th, 2011) with a late lunch at T.G.I Fridays in Livonia. We will be meeting at 3 PM.

Come for lunch, come for dinner, come for an appetizer or just come for coffee and dessert!

We want to meet you!

T.G.I Fridays
20120 Haggerty Road
Livonia, MI 48152-1087
(734) 464-8443

Please RSVP on the Events page:

http://www.alopeciaworld.com/events/international-alopecia-day-det, so that we can make reservations if needed.

Thanks and we really look forward to meeting you!

TGI Fridays has been kind enough to offer our group a 10% discount on the meals.

PS: Please note that this is a dutch treat and everyone is responsible for their own bill!
At 1:37pm on May 27, 2008, LeslieAnn Butler said…
Hi Donna,
How are you doing now? Let me know if you need to talk. I've had aa for 30 years!
LeslieAnn
At 4:59pm on April 9, 2008, rj, Co-founder said…
Hi again, Donna. You've certainly come to the right place for inspiration as well as information. :-) Members of Alopecia World have been living with the different types of alopecia for various lengths of time. What they all have in common, however, is an irrepressible desire to be real winners in spite of their hair loss. They don't want alopecia to keep them from living life to the fullest. Therefore, as you reach out to them and make your presence known, you'll find just the support, encouragement, and acceptance you need to make strong and sagacious choices about your own alopecia. Just let the rest of Alopecia World know that you're here, and they'll make sure you don't regret it! :-)
At 2:27pm on March 25, 2008, Cheryl, Co-founder said…
I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder
 
 
 

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