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Jaxelladaddy
- Male
- Fort Worth, TX
- United States
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- Relationship Status:
- Married
- About Me:
- I have a son Jackson (5) who has alopecia universalis (His eyebrows and lashes come and go) and a daughter Ella (3) who does not. My son started losing his hair just before his 2nd birthday and he is now 5. At first there were a few spots here and there and family members were starting to try to look at them and touch them. My wife and I decided to give him a buzz cut since I shave my head and it was summer at the time. Well eventually all his hair fell out and he was pretty OK with it. I guess partly because he has never seen me with hair so to him he looked just like daddy (he is my spitting image). We have seen a dermatologist and even had blood test done to make sure he is healthy. Jackson has been bald longer than he has had hair, so to him it is just the way he is. I hope that he can always have the same additude that he has now. His sister loves to kiss him on the head. My wife came up with a creative way to explain alopecia to him. She tells him that his super power is his super immune system thats why he has no hair. So now he thinks he is Super Jackson.
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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We are available almost any weekend in January if there is a date that works for both you and Renee.
Hi Jaxelladaddy, Hi Angela, we would totally be up for a playdate with both of you. Since the kids are around the same age I think they would have a blast.
I took Elliott to his first support group in Lewisville this month, but he was the youngest. He didn't quite know what was going on. He did walk up to everyone and tell them they were bald just like him. It made for a funny icebreaker.
If anyone wants to email me on a date that would work for all of you please let me know.
Renee
Thanks for the friend request. Your kiddos are precious. My son Austin who is almost 4 now also doesn't really remember having hair and is pretty OK with how he is, but I love the "super immune system" explanation... I may have to steal that from you! We are in the North Fort Worth (Eagle Mountain Lake) area if you would ever like to have an "alopecia playdate". Austin has never met any other children that look like him and I would love him to see that there are others that have "cool heads" (that's what he calls it!)
Your kids are adorable. I just showed my 4 year old Elliott pictures of your son and he was so excited someone else looks like him.