Jim In Cali
  • Male
  • Redondo Beach, CA
  • United States
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Jim In Cali's Discussions

Pfizer Trial

Started this discussion. Last reply by cd_385 Dec 19, 2021. 48 Replies

Anyone doing the Pfizer medication trial for RITLECITINIB? How is it working? They are now in Phase 2. You have to be under 50 to participate. Google Pfizer Alopecia is you want to participate. They…Continue

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Latest Activity

Jim In Cali replied to Nany Queen's discussion I want info and general advice
"Snake oil. "
Sep 28, 2023
Jim In Cali replied to kross's discussion Alopecia Universalis Advice
"Concert Deuruxolitinib Alopecia JAK1&2 inhibitor treatment is expected to be approved soon. My dermatologist said 2 other similar drugs are approved when I go off the study. FDA delayed approval after 1 patient developed a blood clot at the…"
Sep 28, 2023
Jim In Cali replied to kross's discussion Alopecia Universalis Advice
"For 10 years I had the same exact thing happen to me. I first spotted a small "circle crop" that tiny aliens carved in my head. Those perfect circles are tale tell signs of alopecia. Way before this my legs and arms started losing hair.…"
Sep 28, 2023
Jim In Cali replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"They just extended my trial another 2 years to keep following me. So far its been awesome. Starting to get hair every where. Sort of funny I got hair on my head way before my body hair started growing back. After 2 years on the this my hair is to…"
Apr 28, 2023
Jim In Cali replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had skin cancer way before starting Concert Jak3 inhibitor. If you are fair skinned, grew up in an era where you used tan accelerator instead of sun block, the likely cause is years of exposure. Ask for Luvelan Kerastick Photo Dynamic Therapy or…"
Apr 28, 2023
Jim In Cali replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Why would you be on Xeljanz and minoxidil? Minoxidil did nothing for me, oral or topical. "
Nov 10, 2022
Jim In Cali replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I am in the Long Term Study so I'll be on it another year. Should be approved early 2023."
Sep 6, 2022
Jim In Cali replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Safety wise, looking at the data is equal to the placebo group. So it is very safe. I'm in the long term study now so guess I'll be the Guinea pig on safety over the long term. Can say from personal experience I have 0 side effects. The…"
Sep 6, 2022
Jim In Cali replied to Alopecia World's discussion Is This "The Cure" We've All Been Waiting For?
"Going from completely bald to a full head of hair, I'll take the temporary solution. Its only been a 1 1/2 years on the Concert Pharmaceutical Clinical trial, but I wonder if at some point will the drug permanently change my immune system…"
Sep 6, 2022
Jim In Cali replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"What safety concerns?    12mg, 2x a day. Morning and Night"
Jun 4, 2022
Jim In Cali replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"About 2 years I was severe. Even before that when it grew back with steroid shots, never was this thick and would eventually fall out. Went back and looked been on it for 1 1/2 years. Started jan 2021. Here is a before an after. Before is my work…"
Jun 2, 2022
Jim In Cali replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes I am on the Concert Clinical Trial and it works fantastically. It takes months to see great results. I have 0 side effects, swore I had the placebo. Been on the study for a year this month but now I have a full head of hair, from almost bald. I…"
May 28, 2022
cd_385 replied to Jim In Cali's discussion Pfizer Trial
"Hi Linda and Sabine, I'm sorry that they discriminate by age.  They should just inform patients that there could be unknown hazardous effects and then let patients decide whether to participate or not (kind of like how they did for the…"
Dec 19, 2021
Joserid replied to Jim In Cali's discussion Pfizer Trial
"Hello, How are you? Somebody with news about the trial status? Bestie regards."
Dec 18, 2021
Linda replied to Jim In Cali's discussion Pfizer Trial
"I live in MA and I have been on zeljanz since May great results except no eyebrows for some reason."
Sep 3, 2021
Mike R replied to Jim In Cali's discussion Pfizer Trial
"Hi, yes I am on the trial a little over a year.  It's not Tofacitinib.  I have had no symptoms or problems since being on the trial.  I am generally an active individual who runs about 3 5ks a week.  I was only AA for about…"
Aug 24, 2021

Profile Information

Relationship Status:
Married
About Me:
25 years as Executive Manager for Prosthetics & Sensory Aids. Our clinic participated in 22 documented studies Journal of Prosthetics & Orthotics, Journal of Rehabilitation Medicine, Journal of Orthopedic Surgeons and Journal of Podiatry
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 11:31pm on August 28, 2014, JeffreySF said…

Hi Jim,

Welcome to Alopecia World.

Jeff

 
 
 

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