Liliana
  • Female
  • ontario
  • Canada
Share on Facebook MySpace
  • Blog Posts
  • Discussions
  • Events
  • Groups (1)
  • Photos
  • Photo Albums
  • Videos

Liliana's Friends

  • Dawn
  • LeslieAnn Butler
  • Carol

Gifts Received

Gift

Liliana has not received any gifts yet

Give a Gift

 

Liliana's Page

Profile Information

Relationship Status:
Married
About Me:
diagnosed with alopecia areata in May 2007
Do you have alopecia?
Choose one
Are you age 18 or older?
No - I am not 18 or older

Comment Wall (12 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 6:36pm on September 12, 2009, claudine said…
Hey Liliana. You're story sounds a bit like mine. I was diagnosed with AA in august of 2008. i lost a big patch in the the back and one on either side of my head. since my hair was very thick to begin with, i could hide it by wearing a ponytail. After a year, this summer, it had all grown back. I was so overjoyed... I was able to wear my hair down again for one whole month. And then my scalp started itching, got sore, turned pink... and sure enough, another spot... in the same place the very first one formed. And then another on the left. And another on the right. My hair is in a ponytail again. But also, the thinning since last year is significant. I've lost so much thickness. And today my eyebrows started itching. I've stopped the shots. They didn't seem to help. I take vitamins and rub emu oil on my spots. This time it doesn't seem to be working. It's scary not knowing what direction it will go. The hairs on the bathroom floor are starting to make me a little crazy. And the itching sore head, arg.... Anyway, please keep me posted on your journey and I will do the same. God bless.
At 6:06pm on August 21, 2008, Brandy said…
Thanks for asking. Mine is doing the same thing. I even cancelled my dermatology appt today, because nothing is changing. I'll just keep riding this roller coaster.
At 7:42pm on July 23, 2008, Brandy said…
Sorry it took so long to reply. I have tried several treatments including the injections, Olux, and two different acne meds to agitate the hair enough to make it grow...I know... sounds strange. I took four months, but where the injections were done is growing back. The Dr. wants to do all of my hairless areas. I'm not so sure... no one can see my spots and those shots were awful.
At 11:31am on July 14, 2008, Carol said…
Hi Liliana

Hope you had a good weekend. To answer your questions, some people do recover from alopecia however it could come back at any time too so I suppose you never really do recover, sorry. I don't have much experience with extensions but I spoke to someone who has and they swear it has done a lot of good, don't be afraid to pick up a wig or even just wear a bandana. I guess I'm more into the accepting yourself as you are type rather than hiding yourself from the world but everyone has their own comfort levels. It took me a long time to accept myself and my alopecia.

I have met a number of people through alopecia world and they have all been terrific! I strongly encourage you to meet other people with alopecia, it's more helpful than you may think. Bald Girls Do Lunch wants to set something up in Toronto and there is a workshop at a salon somewhere around Toronto too (the event is actually listed on this website). Support groups are far and few between but if you ever feel like making it out to Guelph you are more than welcome to come to my group. I haven't heard of a tricologist either but I seriously doubt you should waste your time and money, he won't be able to tell you any more than the dermatologist will or offer you a cure. I can't stop you from seeing him, go see what he has to say but 30 years of experience tells me it's just not worth it. If you need live support and can't find it though I can give you a phone number of a telephone support contact in Toronto through the NAAF. Let me know. Keep your chin up! :)
At 9:07am on July 12, 2008, Carol said…
Hi Liliana
If you would ever like to ask me about anything, feel free. I understand what you are going through. Hope you're having a nice weekend.
At 10:20am on July 11, 2008, Brandy said…
Hey Liliana. Your AA story sounds so much like mine. It stinks for both of us to be going through this, but it's great for me to know someone else that's hair is doing the same thing.

Is your hair still falling out while spots are growing in?

I'll definately keep in touch. Brandy
At 11:10pm on July 8, 2008, Brandy said…
Hey Liliana. I joined this group after reading a post you left. Your hair story, for lack of knowing what to call it, sounds like mine. I have several bald patches and almost no hair from ear to ear and down my head. One of my patches (the first) is beginning to grow back, but right beside it more hair is falling out. My hair is thinning in the front and a couple of other areas. I've only had AA since March. I'd like to hear others' stories like these. I wonder and would like to know others that had the same sort of progress and how it turned out. I'm just glad to read about someone else who has a story like mine. Brandy
At 12:18pm on July 7, 2008, Cheryl, Co-founder said…
Hi Liliana, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
At 1:37pm on July 4, 2008, Carol said…
Hi Liliana
Welcome to Alopecia World! It's so nice to see more Canadians here. I've had alopcia for 30 years and I live in Guelph. Where in Ontario are you??
At 4:05pm on July 3, 2008, LeslieAnn Butler said…
What a beautiful name! I want to change my name to Liliana! How are you today? How are you doing with your aa? I have had it for about 30 years. Just wanted to say hello!
LeslieAnn
 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service