"Hi Ladies, it’s been a while ... thankfully my FFA had been relatively stable for the the last 1.5 years. So much so that my Dr started discussing transplant options ... BUT .. over the last month I have had a massive shedding episode.…"
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"Hi All,
My dermatologist has been mentioning the possibility of a hair transplant to give me something other than bare skin at my temples. It’s such a new procedure for us that they can’t guess what the long term result will be.…"
"I’ve been taking a minoxidil/dutasteride/spironolactone combination for the past year. Although nothing is going to regrow the hairline hair, the serial photos my dermatologist takes shows thickening up of my scalp hair. "
"My dermatologist says the increaing number of cases of FFA correlates with introduction & use of SPF in moisturisers etc over the last 20-30 years & disease onset time ..., think about it ... how many under 30yo have it compared to (I hate…"
"My post was mostly directed to Toby about her hairloss....I am unable to reply directly under her post nor edit my previous post. Sorry for any confusion."
"Interesting about your hairloss....I lost all the hair on my arms and almost all on my lower legs and front thighs (just a couple stray individual hairs around the knees) but not too too much loss on the sides and back of thigh.....and I still have…"
"Donna, zinc is fine to use. It’s a mineral your body actually needs. TD is not ok. It’s a rare earth metal that can be toxic & carcinogenic. If you can’t avoid TD sunscreen my derm told me to not apply it higher up my forehead…"
"Just found a fun fact re TD ... I knew they use it in food to whiten / brighten it but it’s use is inder review as the International Agency for Research on Cancer (IARC) classifies titanium dioxide as a Group 2B carcinogen, which means…"
"Toby, thanks for sharing the article and your results with taking iron.
I was able to regrow some eyelashes and hair on my arms, legs and public area with oral minoxidil. I have some regrowth on non-frontal part of my scalp. I'm guessing…"
"The easy to understand article is on Dr Donovan’s website titled “4 Genes identified in Frontal Fibrosing Alopecia” dated March 11, 2019. Website is donovanmedical.com.
The scientific study is on website…"
"Hi Toby,
Do you have a link to that article? I’d be interested to read it. "
"Hi Roxy,
I haven’t been diagnosed with anything else ..yet..
After 5 months of using clobetasol ointment daily, the dermatologist has started me on a month of prednisone to try to settle it. Before I saw the dermatologist my GP had me…"
"Hi 2Dachshunds,
Yes Zinc is different to titanium dioxide & the only sunscreen I’ve been recommended to use. Not only is zinc a better sunscreen as it absorbs more UVA & UVB than titanium but titanium is a toxic heavy metal which…"
"There is a study done in 2019 that found FFA is more like Alopecia Areata than LPP as previously thought. A person with Alopecia Areata can loose hair in other parts of the body besides the scalp. I lost the hair under my arms and lessening of…"
"Lu, I forgot to to ask: Do you have hypothyroidism,granuloma annulare, and/or Ehlers-Danlos?"
"Hi, Lu. Yes, I have both FFA and vulvar lichen sclerosis. For about 18 months, I visited dermatologists showing them scalp and vulva. I eventually stopped having them look at the latter because 7 different docs told me I was "normal," and…"
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- Relationship Status:
- Single
- Do you have alopecia?
- Scarring alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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