Lu
  • Female
  • Victoria
  • Australia
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Latest Activity

Lu commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Ladies, it’s been a while ... thankfully my FFA had been relatively stable for the the last 1.5 years. So much so that my Dr started discussing transplant options ... BUT .. over the last month I have had a massive shedding episode.…"
Jun 1, 2021
Lu commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi All,  My dermatologist has been mentioning the possibility of a hair transplant to give me something other than bare skin at my temples. It’s such a new procedure for us that they can’t guess what the long term result will be.…"
Jan 3, 2020
Lu replied to Toby's discussion Help any medicines that work? in the group Frontal Fibrosing Alopecia
"I’ve been taking a minoxidil/dutasteride/spironolactone combination for the past year. Although nothing is going to regrow the hairline hair, the serial photos my dermatologist takes shows thickening up of my scalp hair. "
Dec 14, 2019
Lu commented on Celia UK's group Frontal Fibrosing Alopecia
"My dermatologist says the increaing number of cases of FFA correlates with introduction & use of SPF in moisturisers etc over the last 20-30 years & disease onset time ..., think about it ... how many under 30yo have it compared to (I hate…"
Sep 29, 2019
SandyA replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"My post was mostly directed to Toby about her hairloss....I am unable to reply directly under her post nor edit my previous post. Sorry for any confusion."
Jul 4, 2019
SandyA replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Interesting about your hairloss....I lost all the hair on my arms and almost all on my lower legs and front thighs (just a couple stray individual hairs around the knees) but not too too much loss on the sides and back of thigh.....and I still have…"
Jul 4, 2019
Lu commented on Celia UK's group Frontal Fibrosing Alopecia
"Donna, zinc is fine to use. It’s a mineral your body actually needs. TD is not ok. It’s a rare earth metal that can be toxic & carcinogenic. If you can’t avoid TD sunscreen my derm told me to not apply it higher up my forehead…"
Jul 3, 2019
Lu commented on Celia UK's group Frontal Fibrosing Alopecia
"Just found a fun fact re TD ... I knew they use it in food to whiten / brighten it but it’s use is inder review as the International Agency for Research on Cancer (IARC) classifies titanium dioxide as a Group 2B carcinogen, which means…"
Jul 1, 2019
RoxyT replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Toby, thanks for sharing the article and your results with taking iron.  I was able to regrow some eyelashes and hair on my arms, legs and public area with oral minoxidil. I have some regrowth on non-frontal part of my scalp. I'm guessing…"
Jul 1, 2019
Toby replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"The easy to understand article is on Dr Donovan’s website titled “4 Genes identified in Frontal Fibrosing Alopecia” dated March 11, 2019. Website is donovanmedical.com. The scientific study is on website…"
Jun 30, 2019
Lu replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Hi Toby, Do you have a link to that article? I’d be interested to read it. "
Jun 30, 2019
Lu replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Hi Roxy,  I haven’t been diagnosed with anything else ..yet.. After 5 months of using clobetasol ointment daily, the dermatologist has started me on a month of prednisone to try to settle it. Before I saw the dermatologist my GP had me…"
Jun 30, 2019
Lu commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi 2Dachshunds, Yes Zinc is different to titanium dioxide & the only sunscreen I’ve been recommended to use. Not only is zinc a better sunscreen as it absorbs more UVA & UVB than titanium but titanium is a toxic heavy metal which…"
Jun 30, 2019
Toby replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"There is a study done in 2019 that found FFA is more like Alopecia Areata than LPP as previously thought.  A person with Alopecia Areata can loose hair in other parts of the body besides the scalp. I lost the hair under my arms and lessening of…"
Jun 30, 2019
RoxyT replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Lu, I forgot to to ask: Do you have hypothyroidism,granuloma annulare, and/or Ehlers-Danlos?"
Jun 30, 2019
RoxyT replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Hi, Lu. Yes, I have both FFA and vulvar lichen sclerosis. For about 18 months, I visited dermatologists showing them scalp and vulva. I eventually stopped having them look at the latter because 7 different docs told me I was "normal," and…"
Jun 30, 2019

Profile Information

Relationship Status:
Single
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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