Maree
  • Female
  • Yonkers, NY
  • United States
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Maree's Discussions

Squaric acid

Started this discussion. Last reply by Antonio Ward Mar 1, 2021. 1 Reply

Has anyone tried squaric acid? I am currently on 20 mg of Xeljanz and am having a bad flair up , losing a lot of hair . My dermatologist tried squaric acid and I’m all swollen around my ears and neck…Continue

Xeljanz & shedding

Started Apr 27, 2019 0 Replies

Hi, this is my first post . I have been on Xeljanz for a year and a half and was doing great . Then out of no where , my hair started shedding. My scalp was burning and very itchy. Has anyone else…Continue

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Maree posted a discussion

Squaric acid

Has anyone tried squaric acid? I am currently on 20 mg of Xeljanz and am having a bad flair up , losing a lot of hair . My dermatologist tried squaric acid and I’m all swollen around my ears and neck ?? I’m so nervous will this make all my hair fall out ?? Has anyone else experienced this ? MareeSee More
Feb 20, 2021
1 Comment
Maree replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for responding, I keep asking my doctor for the steroid pulse but he won’t give it for some reason ! I’m on the highest dose already 20 mg a day . It’s the burning and itchy feeling on my scalp that’s making me…"
Jan 4, 2021
Maree replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone, I have a question if anyone can relate. The end of May I tested positive for corona virus , I was a symptomatic. I’ve been on 20 mg of Xeljanz since 2017 and recently started having a flair up in October, I have been…"
Jan 3, 2021
Maree replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida , I have a question, I’m currently taking 20mg if Xeljanz with  minoxidil for about a year and a half . I noticed yesterday that I’m developing a spot and it’s totally freaking me out !! I’m scared because I had…"
Jun 29, 2020
Maree replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I took 15 mg a day for 6 months with very little results, then added 300 mg of prednisone in one dose , once a month for three months and saw results three weeks after . "
Feb 20, 2020
Maree replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Joja101 , I had a hard time responding at first and Dr King suggested a prednisone pulse and it really helped me to start seeing some regrowth. I saw results within 3 weeks . Maree425"
Feb 20, 2020
Maree posted a discussion

Xeljanz & shedding

Hi, this is my first post . I have been on Xeljanz for a year and a half and was doing great . Then out of no where , my hair started shedding. My scalp was burning and very itchy. Has anyone else had this happen ? I keep searching for some reasons why this might be happening. My Dr gave me some cortisone shots but it hasn’t done much to stop the hair loss . It’s been shedding for a month now , just hoping it doesn’t all fall out . This is such a frustrating disease , very upsetting! MareeSee More
Apr 27, 2019
0 Comments
Maree replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Has anyone experienced shedding after being on Xeljanz for awhile ?  Its almost as if the hair is breaking off and shedding. My scalp is very itchy and tingling!!  Its so scary . "
Apr 14, 2019

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Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 9:46pm on June 6, 2015, LeslieAnn Butler said…

Hello Maree, and welcome to AW!

How are you today? I have AU, too.

 
 
 

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