Nektaria Kazakopoulou
  • Female
  • Athens
  • Greece
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  • Gloria S.

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Is That a Wig .com

Started Jul 28, 2009 0 Replies

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Profile Information

Relationship Status:
In a Relationship
About Me:
I have been living with Alopecial universalus, on and off since the age of 14.
I had complete hairgrowth, (well, almost) for 12 years, when 6 years ago, it re-struck. I am completely without hair (including body hair) for 5 years now.
Not doing any treatments at the moment. Doctors in Greece refused to treat me with cortizone injections, which had worked in the past. Oral cortizone did nothing this last time. Trying to come to terms with the fact, that I will never again have hair.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (32 comments)

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At 11:31pm on November 4, 2011, Deana said…
Your welcome... I am interested in figuring out this eyelash thing. It is finally getting easier to put them on but I want to try the ones you have one day since you explored so many types. Maybe I can get them on line.
At 10:29am on June 2, 2011, VASILIKI said…
Γεια σου Νεκταρία! Έχω αλωπεκία καθολική και τώρα έγινα μέλος εδώ.. ένιωσα λίγο καλύτερα που είδα ότι δεν είμαι η μόνη στην Αθήνα...! Ακόμα προσπαθώ να συνηθίσω τον καινούργιο μου ευατό... !!
At 7:56am on March 18, 2011, Maya :) said…
Hey how are you? how are things with you? :) hope we talk soon xoxo


I was born with alopecia...
At 9:11am on February 6, 2011, Eric W. said…
Hi,

How are things over there in Greece? Have things quieted down? I was there in 07 and LOVED it...Can't wait to go back!
At 5:57pm on November 24, 2010, Sam Stone said…
Για σου Νεκταρἰα! Πος εισε; Με λἐνε Σωτἠρις, και εἰμε απο το Καναδἀ. Εἰδα οτι εἰσε ἀπο την Αθἠνα, και ἐπρεπε να σου μηλἰσο. Συγγνὀμη απο τὀρα, γαι τι δεν ξἐπο να μιλἀω Ελλινικἀ καλἀ. Δὀσε κἀνα email και να τα πὀυμε!
At 7:10pm on October 20, 2010, Fuzzless said…
Hi Nektaria,
Thanks for all the info about fake eyelashes - maybe I will give them a try again. Last time I tried it I could not get them to stay on at all! I got my eyeliner tatooed on and love it - but I still really miss having eyelashes.

I also had my eyebrows tatooed a light brown but they did not last. I've been drawing them on every day. I am getting better at it :)

Gina
At 12:34am on March 18, 2010, Devin said…
Happy Birthday Nektaria! I hope it is a good one.
At 11:04am on March 12, 2010, Gloria S. said…
Hi! Thanks for responding back so quick! I don't know the doctor in Athens, as this treatment was done many years ago. The girl is now a grown woman and never had a relapse. My pithida knows the family and called them once she found out she had undergone the same treatment as my daughter. Also, there is another woman on here that has had it done when she was younger and it too worked out well for her.

I have heard wonderful things of this treatment. It is kind of like DCP...but this is called Squaric Acid (SDBE). You should start calling some dermatologists in your area and see if they have heard of this treatment. It is an old treatment, but with a high percentage of success.

I hope to communicate with you more. It is soooo cool that we can communicate like this from different countries!!!
At 10:35am on March 12, 2010, Gloria S. said…
Hi Nektaria. My daughter also has AU and we are trying a treatment called SADBE. This too struck her at around your age...she is 14 now. I know of a girl in Athens that did this treatment and it worked for her. We are also Greek...I have many relatives in Athens!

I will add you as a friend if you would like to talk more.

Gloria

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