I feel your frustration..my son is newly diagnosed so we are not sure how this is going to go..although some days I feel i see progress the next day can change dramatically. Family and friends try to understand but honestly unless they go through this first hand they can never truly understand. Your son is gorgeous and I just showed my son his picture because I want to familiarize him with young people who are also going through this "journey" he sd "wow, mommy I'm not the only one..huh." I said no baby your not and we both smiled!!!