Rascalx2
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  • Atlantic Highlands, NJ
  • United States
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Rascalx2's Discussions

Does this ever become easier?

Started this discussion. Last reply by Bonnie Piper May 6, 2017. 23 Replies

Im just having such bad couple days, Ill do good for days then become overwhelmed that I will look this way for the rest of my life. I just want to not care what I look like! I feel so vain that Im…Continue

Fake eyebrows and hopelessness

Started this discussion. Last reply by Zimrie Apr 14, 2018. 58 Replies

I have AU since January 2016. Was looking into the false/fake eyebrows, anybody have input on positive/negative aspects of them? I feel that it really alters appearance w/ out eyebrows. So…Continue

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Latest Activity

Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I been trying ruxolitinib cream for some spots that come back when i drop xeljanz to 15 mg.. i dont know how well it is working , i been putting it on spots 2 x a day, and the spots are covered w white hair. Im still taking 15 mg xeljanz. So was…"
Jul 19, 2022
Rascalx2 replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Xeljanz has been the best treatment for UC, i have not had any flare ups since taking it"
Jan 2, 2022
Raya and Rascalx2 are now friends
Dec 24, 2021
Rascalx2 replied to San's discussion Stopped Xeljanz and hairs are falling again. Need help
"Hey Raya, i started taking xeljnz few years back , i wanted to take it to grow back hair but also have ulcerative colitis, its been best thing for colitis! I didn’t have any hair growth until i went to 20 mgs a day, a dermatologist gave me…"
Dec 23, 2021
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"If you are getting spots then get the shots, this is pretty unpredictable disease and at times can become instable. Getting the shots has helped me, but it certainly is not overnight success. I noticed that if a shot in the bald spot takes about a…"
Oct 19, 2020
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have thinned out hair but no bald spots as of now, i had bald spots intermittently but hs been good for past few months, I believe its from good dose of vitamin D from the sun. I decided to not get flu shot this year as I feel it really ramps up…"
Oct 8, 2020
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had nothing on 10 mg a day, nothing on 15 mg a day, but growth when I went to 20 mg a day. We all have different responses, some of us may have results  w low dose. I went up gradually. Think its a good way to start the drug. 5 mgs is safe to…"
Oct 2, 2020
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Lower lashes came back but none of the hair throughout is as thick as it once was including lashes"
Sep 29, 2020
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My lashes came back but thinner, although i seem to be doing pretty good now, im worried about getting the flu shot.. last year when i got it, i started shedding about a month later. Im in health care and mandatory i get a flu shot. I feel like my…"
Sep 28, 2020
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey Nat, im AU, been on xeljanz 20mg a day, with that i keep my hair... if i decrease to 15mgs it strts to thin, start to get spots, but it doesnt happen for a few weeks. So, when Ive decreased ,I dont see the shed for about 3 weeks. I had derm give…"
Sep 13, 2020
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have been on 20mgs a day for about 3 years, nothing grew back at 10mgs, strted seeing growth at 20 mgs...(i was AU) most came back but not as thick as it used to be. I still get patches , it is just the alopecia disease., but i have good coverage…"
Aug 22, 2020
Rascalx2 replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hey Tamara, i was suggested to take allegra , i never did, curious for more defails.. did you always take xceljanz and allegra together? I take 20 mgs of xeljanz but never has been as thick as before loss.. did you take xeljanz then add the allegra…"
Jan 6, 2020
Rascalx2 replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"No kidding gut issues ? What do you suggest? Everyone talks of diet ... what exactly do find works ?"
Jan 3, 2020
Rascalx2 replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"The person who posted stopping xeljanz, already tried upping the dose to 20 mgs"
Jan 3, 2020
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I was happy to be getting hair back, it comes back quick when it starts coming in, i worked so hard and stayed patient, i was not gonna shave off the little i had, i was just happy i didnt look like a chemo patient having no brows or eyelashes, i…"
Jan 1, 2020
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I  saw a quote today that was great for us, “dont overthink, it will kill your happiness”"
Dec 11, 2019

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Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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