"I been trying ruxolitinib cream for some spots that come back when i drop xeljanz to 15 mg.. i dont know how well it is working , i been putting it on spots 2 x a day, and the spots are covered w white hair. Im still taking 15 mg xeljanz. So was…"
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Rascalx2
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- Atlantic Highlands, NJ
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Does this ever become easier?
Started this discussion. Last reply by Bonnie Piper May 6, 2017. 23 Replies 1 Like
Im just having such bad couple days, Ill do good for days then become overwhelmed that I will look this way for the rest of my life. I just want to not care what I look like! I feel so vain that Im…Continue
Fake eyebrows and hopelessness
Started this discussion. Last reply by Zimrie Apr 14, 2018. 58 Replies 1 Like
I have AU since January 2016. Was looking into the false/fake eyebrows, anybody have input on positive/negative aspects of them? I feel that it really alters appearance w/ out eyebrows. So…Continue
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"Xeljanz has been the best treatment for UC, i have not had any flare ups since taking it"
"Hey Raya, i started taking xeljnz few years back , i wanted to take it to grow back hair but also have ulcerative colitis, its been best thing for colitis! I didn’t have any hair growth until i went to 20 mgs a day, a dermatologist gave me…"
"If you are getting spots then get the shots, this is pretty unpredictable disease and at times can become instable. Getting the shots has helped me, but it certainly is not overnight success. I noticed that if a shot in the bald spot takes about a…"
"I have thinned out hair but no bald spots as of now, i had bald spots intermittently but hs been good for past few months, I believe its from good dose of vitamin D from the sun. I decided to not get flu shot this year as I feel it really ramps up…"
"I had nothing on 10 mg a day, nothing on 15 mg a day, but growth when I went to 20 mg a day. We all have different responses, some of us may have results w low dose. I went up gradually. Think its a good way to start the drug. 5 mgs is safe to…"
"Lower lashes came back but none of the hair throughout is as thick as it once was including lashes"
"My lashes came back but thinner, although i seem to be doing pretty good now, im worried about getting the flu shot.. last year when i got it, i started shedding about a month later. Im in health care and mandatory i get a flu shot. I feel like my…"
"Hey Nat, im AU, been on xeljanz 20mg a day, with that i keep my hair... if i decrease to 15mgs it strts to thin, start to get spots, but it doesnt happen for a few weeks. So, when Ive decreased ,I dont see the shed for about 3 weeks. I had derm give…"
"I have been on 20mgs a day for about 3 years, nothing grew back at 10mgs, strted seeing growth at 20 mgs...(i was AU) most came back but not as thick as it used to be. I still get patches , it is just the alopecia disease., but i have good coverage…"
"Hey Tamara, i was suggested to take allegra , i never did, curious for more defails.. did you always take xceljanz and allegra together? I take 20 mgs of xeljanz but never has been as thick as before loss.. did you take xeljanz then add the allegra…"
"No kidding gut issues ? What do you suggest? Everyone talks of diet ... what exactly do find works ?"
"The person who posted stopping xeljanz, already tried upping the dose to 20 mgs"
"I was happy to be getting hair back, it comes back quick when it starts coming in, i worked so hard and stayed patient, i was not gonna shave off the little i had, i was just happy i didnt look like a chemo patient having no brows or eyelashes, i…"
"I saw a quote today that was great for us, “dont overthink, it will kill your happiness”"
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- Alopecia universalis
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