"Thanks for your reply. OK, mine is ohiasis at back of my head and I can cover the area with my hair at the moment and if anything I will go with the wig but I see a lot of people with AU are resorting to Xelianz or tofacinix and many people are…"
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TG
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Laser treatment for Alopecia Ohiasis??
Started Jun 24, 2020 0 Replies 0 Likes
Hi allSo..., I started laser treatment. 6 months course including laser treatment, shampoo, spray and minoxidil. Shampoos and spray are supposed to "stimulate" scalps and so does laser treatment. But…Continue
Advanced Alopecia Ohiasis
Started this discussion. Last reply by TG Jun 24, 2020. 2 Replies 0 Likes
HiI am new to this board. Anyone here suffering the same from alopecia ohiasis?Though I am new to this forum I am not new to alopecia... (See my profile for the history)Would e great if I could make…Continue
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Laser treatment for Alopecia Ohiasis??
Hi allSo..., I started laser treatment. 6 months course including laser treatment, shampoo, spray and minoxidil. Shampoos and spray are supposed to "stimulate" scalps and so does laser treatment. But after seeing the laser machine (image below), I am in doubt about it's effectiveness.... I mean, it looks cheap in fact I found this machine online for US$1,500 - 2,000. My 6 months treatment course costs £1,500! Oh come on!!(Once a week for the first 4 weeks and after, once in two weeks. Each…See More
"Hi I am based in London so cant do a meet up but I am also new to this forum. Not new to alopecia though... it has been several years since I gradually developed ohiasis...
It would be really great if we could have local supporting group we can…"
"Hi I am based in London too. Btw how is this Xelijanz working for you? I have never even heard of this before I joined Alopecia World recently, And what condition of alopecia do you have?
My introduction and photos are in my profile, thanks! "
"Hi, not sure how "contained" your life really is but, if that is the case online could be useful to meet people. But again, dating sites only have 90% of the guys who are after sex, and 9% of the scammers who are after your money, to meet…"
"Ah I missed the part about money, then it is 100% that they are scammers. Do NOT send money and BLOCK without telling them that now you are aware that they are the scammers. Likely, those are from west Africa, leading up to the story that they will…"
"Hi 5DH
Thanks for your reply! Yeah I see that Alopecia World is not very active and also I can’t find any similar forum anywhere else! I think there is a Facebook group but not like a forum where people can discuss by topic / post. I…"
"Hi RossG
Thanks for your reply! Your word "The disease calls the shots".., I can't agree more now that I have ohiasis since 2011.
I am hoping..., that this stops here and will not advance further.
Is ohiasis is just…"
"sorry, i didnt read your intro before i sent that other long msg. funny bc just saw u used the word stressor too. we must be on to it. but, wht u mean about diffusing? "
"Hi anyone still out here? Looks like the last post was in 2017. :)
Wonder if any of you could update what is going on with your ohiasis now? Cheers.
(My introduction and photos are on my profile FYR)"
"Hi everyone
How's your situations now? Any updates to your conditions if you are still reading this forum?
I am new to this forum so I don't know its nature but maybe if you got rid of the problem you leave and move on and never…"
"Hi
Thanks for your reply. This is the first time receiving a reply in this forum. :)
Maybe this forum is not very active?
I just checked your profile and joined your ohiasis group. Is it still active?
Looks like you have a combination of the two,…"
"Hi everyone
I am suffering from ohiasis too, may I know the update from you guys for how the treatments did or did not work or if your condition got better or worse? Thanks.
(My full story and photos in my profile)"
Profile Information
- Relationship Status:
- In a Relationship
- About Me:
- 44yo female suffering from advanced alopecia ohiasis. Had first hair loss issue in 2008 with stress related thinning hair (wasn't alopecia yet) lost about 40% of my hair. Year later, lost about 90% by thinning again and wore a wig for a year and everything came back after I got rid of the stressor without trying any treatment at all however it left a small patch near my neck.
In 2014 that small patch grew to alopecia ophiasis and had few steroid treatment over several years. It worked for first few times but not for last few. (Continued injection for 6 months)
Now my ophiasis expanded again after hormone injections for IVF in February and started for a laser treatment for the first time - June 2020
Looks like I tend to have diffusing (thinning) when I receive stress, but I've lived “stress-free” life since my ohiasis started so diffusion and ohiasis seem to have different causes for me...
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
TG's Photos
Comment Wall (1 comment)
- At 8:45pm on June 24, 2020,
RossG said…
sorry, i didnt read your intro before i sent that other long msg. funny bc just saw u used the word stressor too. we must be on to it. but, wht u mean about diffusing?
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