Tami & Taryn
  • Female
  • Kansas
  • United States
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  • CHARLENE WILSON (Chayenne's Mom)
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Relationship Status
Married
About Me
My daughter Taryn was 20 months old when diagnosed with Alopecia Totalis.
Do you have alopecia? (Choose appropriately)
I do not have alopecia
Are you age 18 or older?
Yes

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Comment Wall (5 comments)

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At 7:34pm on May 2, 2009, Angie, Gracie's mom said…
Hi Tami, my daughter is 16 mo old, and was dx w/ AA, starting at 13 mo. I am concerned it will keep progressing, it still is. She does have lashes and brows, though those could be next? Anyways, I have had a difficult time finding anyone who was dx this young. It has been very sad and frustrating to me. Did your daughter start out w/ AA and develop AT? Angie
At 1:02pm on October 18, 2008, grizmom said…
Hi Tami, my daughter was just diagnosed this summer with AA but has recently lost all of her hair (95%), so I am guessing she is really AT. I share the same concerns as you for the future and how to deal with it. My daughter is 3 and could care less about her situation. She has a great personality and great attitude. I am concerned about what will happen when she goes to school or as she gets older. At this point we talk about her not having hair as if it is no big deal. This seems to work so far, and the kids she goes to school with haven't said anything. There are some books on the CAP site for kids and adults that I am interested in checking out. I wish I had more to tell you, but I am also very new to this. Take care, Meg
At 11:27am on October 11, 2008, Cheryl, Co-founder said…
Hi Tami & Taryn, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
At 5:43pm on October 10, 2008, LeslieAnn Butler said…
Hi Tami and Taryn,
I just wanted to say hello and see how you are doing today.
I've had alopecia universalis for many years...
LeslieAnn
At 7:14am on October 10, 2008, MARIA (mom of Savanna) said…
Hello Tami, My name is Maria and I have a 6.5 yr old daughter name Savanna and she has AU...She was diagnoised when she was just 3yrs old, she lost all her hair pretty rapidly and the lost all her eyelashes and eyebrows following the hair loss. She is a amazing child in my eyes, she doesnt let being bald stop her from doing anything. She has alot of friends and family who love her just the way she is. She usually wears ball caps on her head, but she is now wearing a wig from the kids club and has wore for about a month now. She loves having her wig, but I am very diappointed in the quality of it. The hair in the front of her wig has fallen out and alot of the hair falls out when we brush it.
They are making her a new one and it shouldn't be to much longer for it to be ready, I am praying it turns out better than this one. If you wold like any info let me know...would love to hear from you!! Maria
 
 
 

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