Tink
  • Female
  • United Kingdom
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Tink's Page

Profile Information

About Me:
Very severely ill and disabled from a neurological disease called myalgic encephalomyelitis following viral meningitis in December 2000. Bedridden 11 years. Started losing my hair in the autumn of 2008. At the time of writing this (in the spring of 2012), I've lost about 3/4 of my hair, possibly more. I find it heartbreaking. My hair was one of my best assets, long and thick. I don't know if it's because I'm so ill, a symptom of the illness or an underlying cause. My GP isn't the least bit interested. After some very minimal, basic blood tests, he merely said, "Tell her not to worry about it" !!!!! The NHS at it's best!!! I knew there had to be a physiological cause so had some private blood tests done and they came back with very high thyroglobulin autoantibodies, indicating Hashimoto's thyroiditis. I think this is the cause for my ongoing hair loss, perhaps with my neurological disease and length of illness also playing a part. I'm now battling with useless GP to get appropriate thyroid medication. It's horrendous. I haven't taken the leap and bought a wig as being too ill for visitors means no one sees me, but I do think it would help me feel better emotionally to be able to put my fingers through some hair and feel it hanging around my face and shoulders!
Do you have alopecia?
Female pattern baldness
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 3:39pm on May 6, 2012, LeslieAnn Butler said…

Hello and welcome, Tink!
How are you doing today? I can't believe how insensitive your doctor was. Jeez.
Leslie Ann

At 7:09am on April 18, 2012, BTB (John) said…

Welcome and this site will help with the pain caused by Alopecia feel free to share at any time.

 
 
 

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