babashanti
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Olumiant and what to ask my doctor?

Started this discussion. Last reply by SabineTawni Jun 28, 2023. 54 Replies

Hi all,Im looking for a bit of advice as to what to ask my doctor.I finally got a doctor's appointment (I'm living in Germany) and now that Olumiant is available on prescription here I'm ready to…Continue

Tofajak tablets ?

Started this discussion. Last reply by Alo-mom Oct 13, 2021. 1 Reply

Hello, i have a question that maybe someone can help with.I have been offered some Tofajak tablets manufactured by Cipla and sold by LetsMeds pharmacy in india who say that they can ship to Germany…Continue

Tags: Tofacitinib, Xeljanz, Tofajak

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SabineTawni replied to babashanti's discussion Olumiant and what to ask my doctor?
"Kevin, Forgot to add, please keep us updated on anything else you hear about this new product."
Jun 28, 2023
SabineTawni replied to babashanti's discussion Olumiant and what to ask my doctor?
"Good information, Kevin. Thanks for sharing it with us."
Jun 28, 2023
SabineTawni replied to babashanti's discussion Olumiant and what to ask my doctor?
"Good information, Kevin. Thanks for sharing it with us."
Jun 28, 2023
kevin replied to babashanti's discussion Olumiant and what to ask my doctor?
"hello i used olumiant 4mg for 6 months is less effective than xeljanz. today i am on abrocitinib from pfizer 100mg much better. pfizer has announced that their drug ritlecitinib jak 3 tyk2 is approved for alopecia the FDA has given its approval it…"
Jun 28, 2023
Starshine replied to babashanti's discussion Olumiant and what to ask my doctor?
"I have been on Xeljanz for 9 years and now have to switch to Olumiant due to the new FDA approval.  Only the 2 mgs was approved for alopecia.  I was wondering if anyone has had success with this dose."
Jun 27, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Yes, great points  above and I echo what SabineTawni said. Maybe a second opinion /another dr be better. That's hard and I hope doing alright. Know what like to wait while for good doctor etc and to get a bad one."
Jun 8, 2023
SabineTawni replied to babashanti's discussion Olumiant and what to ask my doctor?
"I am so sorry to hear this, Babahanti. You are an ex-smoker of 10 years? Good for you, but what does being a smoker in the past have to do with all this. Also age 55 is hardly old these days. However, I think at age 55, you are old enough to know…"
Jun 7, 2023
babashanti replied to babashanti's discussion Olumiant and what to ask my doctor?
"Another update..... After the long wait to finally see the Dr at the clinic i was refused Omuliant because i was a smoker for 30 years (although i quit 10 years ago and have zero health problems) and because i am over 50 (55) .....the doctor said…"
Jun 7, 2023
cgreens replied to babashanti's discussion Olumiant and what to ask my doctor?
"how long did it take for the olumiant to start growing noticeable hair on top of her head. I am going on month 4 day 1 with nothing really besides a little peach fuzz"
Mar 7, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
Mar 7, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"hi again I was checking out the RX URl and found the following:  1-844-OLUMIANT 1-844-658-6426 Lily the maker might know of dr in Germany etc. Also they have this program " A Companion in Care will give you a welcome call to talk about how…"
Mar 7, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
" babashanti I hear you with wait and hope time cango quick for you. Thanks for the update. best (ps summer will be here Soon =) )"
Feb 20, 2023
SabineTawni replied to babashanti's discussion Olumiant and what to ask my doctor?
"I really don't understand the excuses (e.g., it's cosmetic and it's not life-threatening).  You could argue that eczema and psoriasis are cosmetic, and they are not life-threatening either, but insurance companies still pay for…"
Feb 15, 2023
babashanti replied to babashanti's discussion Olumiant and what to ask my doctor?
"Another update..I got an email this morning from the(specialist) Clinic and I have an appointment with them at the beginning of June....it's a bit of a wait but iv had this disease for so long that another few months of waiting for something to…"
Feb 13, 2023
leah replied to babashanti's discussion Olumiant and what to ask my doctor?
"Thanks Babashanti. Also have you seen this discussion on this site "OLUMIANT Alopecia Community Watch – The Good, The Bad and The Ugly!" maybe have some tips…"
Feb 12, 2023
AAB replied to babashanti's discussion Olumiant and what to ask my doctor?
"Excellent progress. Best of luck. "
Feb 12, 2023

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Alopecia universalis
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Yes - I am 18 or older

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