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brit071413
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- Pembine, WI
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Coping and treatment tips
Started this discussion. Last reply by MillaMilla Oct 18, 2023. 10 Replies 0 Likes
Hi, my name is BrittanyThis will be a pretty short story. I started to lose my hair October of 2018. What started as a quarter size patch of hair loss turned into about 80% hair loss today. My…Continue
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"Hi Baroness,
thank you so much for the response! I am in a better place now. I can’t say that I’ve completely accepted it but it is so much better than in the beginning, I don’t cry everyday anymore. I have been trying to…"
"Hi Brittany,
I hope you are in a better place now. I just wanted to say that you are beautiful and you are not alone. I have never tried any products or medicines. To cope I really try to take care of myself, love myself, build my…"
"I've always had it since childhood. The spots move around and have a mind of their own. I'll regain hair in some spots and then a new area will thin out. I try to be at peace no matter what's going on up there lol. Take it day by day.…"
"That is very young. Did it come back again? That’s what I struggle with is that they are so thin that they usually fall out all over again. A little bit of false hope lol. I too am on a very restrictive diet to see if I eliminate a certain…"
"I was around 8 years old when I was diagnosed. No apologies needed! Keep the questions coming! I'm here to share what I can.
I usually have thin white hairs but most of the time they never darken and disappear but I still support those little…"
"I will have to check out that book, I could use all the coping mechanisms I can get!
It can get a little breezy can't it? It is such a safety net, who would have thought?
I will also have to read that essay. I'm putting this…"
"Incredible book! It's called A New Earth It's about mindfulness and striving to be happy in the moment. I wear my beanie at home too! It feels safe (but also it can get cold up there with little to no hair!). I'm a hoarder…"
"Hi Gabe,
Thank you so much for the reply. It was so insightful and empowering. I am struggling a lot with confidence with all of this. And you are exactly right, that's where most of my anxiety is coming from, is thinking they are judging…"
"Hi Brittany
First, I just want to let you know you're not alone. I had a lot of anxiety about alopecia (and still have a lot) especially through school but at 26 now I've had the long journey of acceptance. I realized how much of my…"
Coping and treatment tips
Hi, my name is BrittanyThis will be a pretty short story. I started to lose my hair October of 2018. What started as a quarter size patch of hair loss turned into about 80% hair loss today. My dermatologist diagnosed me with alopecia totalis, but said there is a possibility it could turn into alopecia univeralis. I have not had the courage to shave my head yet and wear wigs when out in public. I am having such a hard time coping. This autoimmune disease has really taken a huge part of me away.…See More
Profile Information
- Relationship Status:
- Single
- About Me:
- I just started to lose my hair last year
I now have lost about 80% of my hair. This autoimmune disease has taken my hair and has taken such a strong emotional toll on my emotions. It is hard to handle the changes that have been coming my way. I am hoping to talk to other people that have similar experiences and am interested in how you have found a way to cope. My relationship is failing at the same time as all this and my already intense anxiety has intensivied so much farther.
- Do you have alopecia?
- Alopecia totalis
- Are you age 18 or older?
- Yes - I am 18 or older
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