"I've been living with AU for almost 40 yrs now. It doesn't get easier but I manage to cope with it. I wont ever give the hope for a cure, ever. I've seen a few studies that seemed to be passed over that include…"
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dreamscometrue
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A thought process in medical commonalities of those with AA, AT and AU
Started Mar 11, 2022 0 Replies 0 Likes
Hi All :)Taking into consideration that AA is a very specific targeted area of the body, with the only symptom being dormant hair follicles, could it be possible that it is a side affect of a common…Continue
I just want to say....
Started this discussion. Last reply by dreamscometrue Jul 29, 2020. 3 Replies 1 Like
That the worst thing we can do is give up hope. Keep believing, and dont lose hope. Its not a fight, as fighting denotes beating up something. Hope turns a negative into a positive, with grace,…Continue
Alopecia Universalis cure with antibiotics(SECOND POST)
Started May 23, 2019 0 Replies 0 Likes
I saw this video and I posted it before but somehow, it didnt post here on the platform. I want to know what you guys think of this doctor. There are a few videos on his channel that explain in…Continue
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"I think sometimes we with this disorder feel self conscious. Many women go in the bathroom to brush their hair over the sink and it leaves hair in the drain. Dont feel singled out and dont take it personal. "
This has been one of my fears with treatments like Olumiant
"Totally agree with you @Christine and @Sabine Tawni "
This has been one of my fears with treatments like Olumiant
"This is so sad. The one thing I noticed with these treatment injections is that they are all in the same family of drugs; they are JAK inhibitors. So they're not new, just a new addition to the family. "
"@Shawnaynay I think what you're saying sounds very angry and coming off as very defensive. If you react like that every time someone says something ignorant about us being bald and having this disorder, you'll be doing it for the…"
"Absolutely hilarious clap backs! You are so pretty Cheryl, you rock bald really well! "
"I've had this happen to me as well many times. I've had AA to AU over 40+ years, and even before then, I could never get into a study. Now, I know its too late as I've been told over 20 years AU to just forget looking for…"
"Hello all :)
I just watched a video on YouTube from a woman who is/was taking Olumiant for her alopecia.
Here is the link, she discusses her experience using it for 3 months
https://youtu.be/lbOWHp6gQHk"
Oluminant Aloepecia Community Watch – The Good, The Bad and The Ugly!
We have been hearing A LOT about the new FDA Approved Lilly and Incyte's OLUMIANT® (baricitinib) drug. We would like to start a discussion here on Alopecia World with people who have tried it, are trying it, or considering trying it. This is a place you can discuss both success as well as side-effects and objections to trying the drug. Hoping this form will help people with alopecia make more informed decisions. A place that hopefully we can get real users’ comments and reactions. Maybe…See More
Dr. Gary Linkov who has alopecia is not conviced that Jada has alopecia areata
"I agree, I don't think so either. I think she may have stress induced hair loss but not alopecia areata"
"I wear a wig to fit in. I wont lie, I dont want to normalize a disorder I have, because to me, its not normal. People constantly get it confused with me having cancer and going through chem treatments, no matter how much I try to explain it…"
"I totally agree with you on this @Matt1, especially after Pfizer was forced by court of law to disclose whats exactly in those vaccines despite asking the court to seal that information for the next 75 years. What is in those vaccines that…"
"Vaccines are supposed to contain an attenuated part of a virus, to get the immune system to build up a defense to it. The cv19 vaccine has a spike protein in it that gets in your DNA and makes your body replicate that protein in your body.…"
"In some cases is NOT good enough, because, if the science is SO accurate, it would be definitive. Science is theory and speculation, and only science fact when the process repeated over and over doesnt change, even when environments, additions…"
Profile Information
- Relationship Status:
- Single
- About Me:
- I believe that in dreams and thoughts create the energy needed to make all things possible. I believe in dreams and miracles, and when you do, manifestation occurs.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (2 comments)
- At 8:46pm on July 19, 2016,
dianna said…
Hello what you use and you hair grows back???
- At 1:45am on August 8, 2012,
LeslieAnn Butler said…
Hello and welcome!
How are you today? I have AU, too.
Leslie Ann
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