Hi Stacy. I was just reading some of your stuff! I've had alopecia since i was 5 and have always dealt with it really well. If you ever want to talk about anything, I'll be here! :) your daughter is adorable!
Hi Sabree, your daughter is beautiful no matter what. I am sorry that your daughter has had her ups and downs this short time she has been in the world. I hope thinks look up soon. You sounds like a wonderful mom and you will get through this. You should contact CAP www.childrensalopeciaproject.org and get on their email list. They are a wonderful resource and maybe able to hook you up with a family in your area or even help you meet another familiy with a child of a similar age. They do monthly online chats as well...Cindy
Sabree is gorgeous btw.
I can understand the shock you felt. I think we all go through that. And the 'Why did it have to happen to our child?' I found that other people had no idea how I felt or how my son Jon felt. It is good if you can move on and just deal with it though - if you can. I know it is hard. I think that the younger they are it is harder too cos they are so so cute. Their hair is still fine and soft at that age too. But you know what - she will always be beautiful - especially to you her mom. If you can make her see that, and that she is unique and special and gorgeous with or without hair and that she can still do things she wants to do, like play sport or dance or whatever. If you get what I mean.
Also I read your discussion. Jon's hair when it fell out was like that. The doctor who diagnosed him with AA said that it had the telltale 'question mark' appearance. Just as if it was 'burnt off'.
Any thing I can help with pls let me know. Hope we can keep in touch.
Susan
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LOVE the new profile photo!! Your daughter is so adorable & and looks so happy!
Heather
Roger.
How are you and Sabree doing today?
LeslieAnn
www.childrensalopeciaproject.org and get on their email list. They are a wonderful resource and maybe able to hook you up with a family in your area or even help you meet another familiy with a child of a similar age. They do monthly online chats as well...Cindy
I can understand the shock you felt. I think we all go through that. And the 'Why did it have to happen to our child?' I found that other people had no idea how I felt or how my son Jon felt. It is good if you can move on and just deal with it though - if you can. I know it is hard. I think that the younger they are it is harder too cos they are so so cute. Their hair is still fine and soft at that age too. But you know what - she will always be beautiful - especially to you her mom. If you can make her see that, and that she is unique and special and gorgeous with or without hair and that she can still do things she wants to do, like play sport or dance or whatever. If you get what I mean.
Also I read your discussion. Jon's hair when it fell out was like that. The doctor who diagnosed him with AA said that it had the telltale 'question mark' appearance. Just as if it was 'burnt off'.
Any thing I can help with pls let me know. Hope we can keep in touch.
Susan
Welcome to Alopecia World
Glad you have joined us here. I have a 13 year old son with Alopecia.
How are you coping?
Welcome to AW. I am also a mom to a daughter with Alopecia. How are you doing?
Cindy