All Discussions Tagged 'treatment' - Alopecia World2024-03-29T14:32:35Zhttps://alopeciaworld.com/forum/topic/listForTag?tag=treatment&feed=yes&xn_auth=noCoping and treatment tipstag:alopeciaworld.com,2020-03-07:2022678:Topic:17219902020-03-07T07:05:22.254Zbrit071413https://alopeciaworld.com/profile/brit071413
<p>Hi, my name is Brittany</p>
<p>This will be a pretty short story. I started to lose my hair October of 2018. What started as a quarter size patch of hair loss turned into about 80% hair loss today. My dermatologist diagnosed me with alopecia totalis, but said there is a possibility it could turn into alopecia univeralis. I have not had the courage to shave my head yet and wear wigs when out in public. I am having such a hard time coping. This autoimmune disease has really taken a huge part…</p>
<p>Hi, my name is Brittany</p>
<p>This will be a pretty short story. I started to lose my hair October of 2018. What started as a quarter size patch of hair loss turned into about 80% hair loss today. My dermatologist diagnosed me with alopecia totalis, but said there is a possibility it could turn into alopecia univeralis. I have not had the courage to shave my head yet and wear wigs when out in public. I am having such a hard time coping. This autoimmune disease has really taken a huge part of me away. I already stuggle with really bad anxiety and it has intensified to the enth degree. My relationship, of coarse, is falling apart at the same time as all this and I don't know what to do. </p>
<p>I wanted to see if you all had any coping strategies or tips of some kind. I feel like I am so alone through all of this. I also wanted to see if you all know of any products/diets that have worked? I have done the shots in my scalp, the only thing that seemed to work was the Prednisone and I couldn't take it anymore, it was making me feel TOO WEIRD! </p>
<p>Thank you for taking the time to read this as I cried and sobbed the whole time I typed it. </p> Has anyone tried Cepharanthine, an approved medicine from Japan for alopecia?tag:alopeciaworld.com,2020-01-13:2022678:Topic:16748542020-01-13T08:43:27.661ZMarcia7854https://alopeciaworld.com/profile/Marcia7854
<p>Hi Everyone,</p>
<p>Has anyone heard of or better yet tried Cepharanthine to treat their hair loss? I've been reading a lot about Cepharanthine lately and it seems to be very popular in Japan but most people outside of Japan have not heard of it. Its approved by the Japanese ministry of health to treat alopecia. </p>
<p>It's available to order online without needing a prescription and it looks really good, but I just wanted to see if anyone has had any firsthand experience with…</p>
<p>Hi Everyone,</p>
<p>Has anyone heard of or better yet tried Cepharanthine to treat their hair loss? I've been reading a lot about Cepharanthine lately and it seems to be very popular in Japan but most people outside of Japan have not heard of it. Its approved by the Japanese ministry of health to treat alopecia. </p>
<p>It's available to order online without needing a prescription and it looks really good, but I just wanted to see if anyone has had any firsthand experience with it?</p>
<p></p>
<p>Please let me know :)</p> Link between Alopecia & Salmonellatag:alopeciaworld.com,2019-05-05:2022678:Topic:14711552019-05-05T09:20:07.120ZAussiemumhttps://alopeciaworld.com/profile/Aussiemum
<p>Hi everyone!</p>
<p>I’m wondering if anyone has a similar story to ours...</p>
<p>My daughter was diagnosed with AA approximately 2 years ago (she is now 11) and after many visits to GP’s, trichologists and dermatologists, we have come across a nutritionist/natural therapist. We discovered that she was deficient in zinc and iron. We also sent off stool samples which came back positive for salmonella! Curious, as she is non-symptomatic and we can’t actually remember the last time she even had…</p>
<p>Hi everyone!</p>
<p>I’m wondering if anyone has a similar story to ours...</p>
<p>My daughter was diagnosed with AA approximately 2 years ago (she is now 11) and after many visits to GP’s, trichologists and dermatologists, we have come across a nutritionist/natural therapist. We discovered that she was deficient in zinc and iron. We also sent off stool samples which came back positive for salmonella! Curious, as she is non-symptomatic and we can’t actually remember the last time she even had gastro. We’d previously thought her alopecia had been triggered by osteomyelitis discitis years ago, now the nutritionist thinks the salmonella, osteo & AA are all connected.</p>
<p>My daughter was put on antibiotics immediately for 2 weeks and is now on a probiotic, zinc and another multivitamin.We are yet to have our next appointment, but we have noted a massive change over these 8 weeks. Lots of regrowth, though still quite patchy - but no hair fall. </p>
<p>Has anyone heard of anything like this? A virus that’s been found, treated and alopecia reversed? </p>
<p>Would love to hear your stories or opinions on this!</p> Link between Alopecia & Salmonellatag:alopeciaworld.com,2019-05-05:2022678:Topic:14711542019-05-05T09:20:05.700ZAussiemumhttps://alopeciaworld.com/profile/Aussiemum
<p>Hi everyone!</p>
<p>I’m wondering if anyone has a similar story to ours...</p>
<p>My daughter was diagnosed with AA approximately 2 years ago (she is now 11) and after many visits to GP’s, trichologists and dermatologists, we have come across a nutritionist/natural therapist. We discovered that she was deficient in zinc and iron. We also sent off stool samples which came back positive for salmonella! Curious, as she is non-symptomatic and we can’t actually remember the last time she even had…</p>
<p>Hi everyone!</p>
<p>I’m wondering if anyone has a similar story to ours...</p>
<p>My daughter was diagnosed with AA approximately 2 years ago (she is now 11) and after many visits to GP’s, trichologists and dermatologists, we have come across a nutritionist/natural therapist. We discovered that she was deficient in zinc and iron. We also sent off stool samples which came back positive for salmonella! Curious, as she is non-symptomatic and we can’t actually remember the last time she even had gastro. We’d previously thought her alopecia had been triggered by osteomyelitis discitis years ago, now the nutritionist thinks the salmonella, osteo & AA are all connected.</p>
<p>My daughter was put on antibiotics immediately for 2 weeks and is now on a probiotic, zinc and another multivitamin.We are yet to have our next appointment, but we have noted a massive change over these 8 weeks. Lots of regrowth, though still quite patchy - but no hair fall. </p>
<p>Has anyone heard of anything like this? A virus that’s been found, treated and alopecia reversed? </p>
<p>Would love to hear your stories or opinions on this!</p> Undiagnosed case of "symentric" permanent alopeciatag:alopeciaworld.com,2018-12-18:2022678:Topic:14356792018-12-18T18:14:42.618ZMichaelhttps://alopeciaworld.com/profile/Michael501
<p>Hi All,</p>
<p> </p>
<p>I wanted to post my story in case it resonates with someone. I haven’t been properly diagnosed and do not know what to do next.</p>
<p> </p>
<p>I am 43 now. At around 32 years old I started losing facial hair on my right cheek and the left one followed at the exact place on the opposite cheek. The hair lost does not grow back again. The bald patches expanded in a centrifugal manner, and, now, I only have very few hair on my cheeks, a 1/3 inch strip of hair under my…</p>
<p>Hi All,</p>
<p> </p>
<p>I wanted to post my story in case it resonates with someone. I haven’t been properly diagnosed and do not know what to do next.</p>
<p> </p>
<p>I am 43 now. At around 32 years old I started losing facial hair on my right cheek and the left one followed at the exact place on the opposite cheek. The hair lost does not grow back again. The bald patches expanded in a centrifugal manner, and, now, I only have very few hair on my cheeks, a 1/3 inch strip of hair under my nose, on my chin, the top of my sideburns, and some on my neck.</p>
<p></p>
<p>The same pattern of hair loss (first the right side and then the exact same place on the left side) started on my legs, my calves and - about a year now - my forearms. It hasn’t affected my head hair.</p>
<p> </p>
<p>Notes: on thyroid hormones are on the low spectrum of the normal range. I suffer from mild seborrheic dermatitis.</p>
<p></p>
<p>If anybody has any guidance I would appreciate it :)</p>
<p> </p>
<p>Cheers</p>
<p>Michael</p> Doctors that prescribe Xeljanz?tag:alopeciaworld.com,2018-11-12:2022678:Topic:14331462018-11-12T01:41:40.867Zacowan95https://alopeciaworld.com/profile/acowan95
<p>Could anyone give me suggestions on doctors that for sure prescribe Xeljanz for treatment? I have tried Dr. King but he is booked until April 2019! I'm so anxious to try Xeljanz because nothing else has seemed to work.</p>
<p>Could anyone give me suggestions on doctors that for sure prescribe Xeljanz for treatment? I have tried Dr. King but he is booked until April 2019! I'm so anxious to try Xeljanz because nothing else has seemed to work.</p> Hair falling out again and Trichology Advicetag:alopeciaworld.com,2018-08-21:2022678:Topic:14261492018-08-21T22:05:11.387ZStevehttps://alopeciaworld.com/profile/mini05man
<p>Hello everyone, </p>
<p>Well, with a heart wrenching sadness I have to say that my hair has started to fall out again after a good period of 'remission'. Where my hair never grew back 100% - it grew back to a degree for me to feel confident and for my self esteem to return. The fact that it has started to fall out again is quite literally destroying me and I am not dealing with it all that well. I am battling on, with a smile on my smile (for those externally to see) but at this moment I am…</p>
<p>Hello everyone, </p>
<p>Well, with a heart wrenching sadness I have to say that my hair has started to fall out again after a good period of 'remission'. Where my hair never grew back 100% - it grew back to a degree for me to feel confident and for my self esteem to return. The fact that it has started to fall out again is quite literally destroying me and I am not dealing with it all that well. I am battling on, with a smile on my smile (for those externally to see) but at this moment I am finding it ever so difficult. Does anybody have any advice to help deal with how you managed to deal with your emotions when the condition returned? The consistent journey of emotions, unknown/lack of knowledge and being helpless in this condition is driving to insane - I HATE IT. </p>
<p>The wait period for my Dermatologist is insane but I have one in a few weeks. All I have ever been given is topical steroids, so I am hoping to look for more progressive treatments to see if they work. I have read on here about people getting injections both on the head and intramuscular while others are using Xeljanz and ruxolitinib - I would love these but I live in Scotland and these treatments are not always available.</p>
<p>I recently seen a Trichologist and didn't find them all that helpful. What they suggested is I increase the protein in my diet and take vitamins like Omega 3, Zinc, B Complex, Magnesium and Probiotic tablets. The diet advice I found hard to digest (mind the pun) as I eat a healthy balanced diet, with no processed foods and drink lots, and lots of water. They even told me to stop exercising as much (I go to the gym around 4-5 times a week) - the gym helps to keep my sane! The only treatment they wanted to give me was reflexology sessions on my feet - which they wanted me to go back and do with them at £60 a session. Has anyone had a similar experience or can give me their opinions on this trichology advice? </p>
<p></p>
<p>As always, any information or advice is appreciated.</p>
<p>Wishing you a great day and thank you for reading. </p> How Close Are We To Actually Finding a Cure?tag:alopeciaworld.com,2017-11-16:2022678:Topic:14024512017-11-16T04:57:57.860Zachttps://alopeciaworld.com/profile/ac873
I’ve seen a lot of posts throughout the years about new mirical treatments. But I think over the past decade or so there have been some major breakthroughs. I was wondering if the people on here that are scientific and know about recent news can speculate on how close we are to curing Alopecia? With the way technology keep exponentially increasing I would love to hear how close people think we resonabley are.
I’ve seen a lot of posts throughout the years about new mirical treatments. But I think over the past decade or so there have been some major breakthroughs. I was wondering if the people on here that are scientific and know about recent news can speculate on how close we are to curing Alopecia? With the way technology keep exponentially increasing I would love to hear how close people think we resonabley are. Xeljanz and Looking Ahead to the Future...tag:alopeciaworld.com,2017-10-12:2022678:Topic:13962382017-10-12T23:36:06.215ZSusan McAdamshttps://alopeciaworld.com/profile/SusanMcAdams
<p>Hi Everyone--</p>
<p></p>
<p>I decided to start a new discussion group for those of us who are taking, have taken, or are thinking about trying Xeljanz. As we all know by now, the medical trials that took place at Yale, Columbia, and Stanford (and, I think another university or two) have demonstrated that Xeljanz helps a large percentage of alopecians. I was told by my Stanford doctor that the success rate is up in the 70-80% range for regrowth. People who have had AU since childhood have…</p>
<p>Hi Everyone--</p>
<p></p>
<p>I decided to start a new discussion group for those of us who are taking, have taken, or are thinking about trying Xeljanz. As we all know by now, the medical trials that took place at Yale, Columbia, and Stanford (and, I think another university or two) have demonstrated that Xeljanz helps a large percentage of alopecians. I was told by my Stanford doctor that the success rate is up in the 70-80% range for regrowth. People who have had AU since childhood have gone on to full regrowth (a young friend of mine from this site had that experience and is now focusing on his college studies with a full head of hair). Others with AA or AT have also had great success with the drug. There does not seem to be any correlation between age of onset or whether one's alopecia was genetically with them at birth or developed later as an autoimmune disease (as was my case). Researchers from the trials are now focusing on the individual genetic makeup of patients who participated by analyzing scalp biopsies. Their goal is to try and figure out WHY some individuals respond well to the drug, yet others struggle or do not respond at all. </p>
<p>We also know that drug companies other than Pfizer are working to develop their own JAK Inhibitors that work along similar pathways as Xeljanz, producing minimal-to-no side effects. As we have read in other discussion groups since 2015, few Xeljanz patients experience negative side effects. A rise in cholesterol seems to be the most common among them. Some individuals with other diseases along with alopecia have had different side effects or unexplained relapses while on the drug, but it is hard to figure that out--especially when other medications are used along with Xeljanz for different diseases. </p>
<p>In any case, at the start of this discussion group, I have been on a dose of Xeljanz at 5mg, 2x daily for 2 years, 8 months. I started the drug during the Stanford Trial in February 2015. It works for me.</p>
<p>Our challenges going forward into the future are to keep the lines of communication open as new drugs are introduced. It will likely take a while. And Pfizer has no plans to offer Xeljanz as a treatment for alopecia. For the purpose of marketing and profit, they prefer to keep the drug available only to RA patients. </p>
<p>Let's use this discussion group as a forum to keep each other informed, share if and how one's insurance company decides to cover Xeljanz for alopecia, alert the group to any pertinent research articles or info about new drugs, and most important, support one another in this process. I learned about the first Xeljanz Trial at Yale through posts here on Alopecia World. Had it not been for that discovery, I may have not found my way to the Stanford Trial. I am very grateful for the host of information here and the amazing people I have met along the way. </p>
<p>Here's to a hopeful future ahead!</p>
<p>--Susan</p>
<p><a href="http://storage.ning.com/topology/rest/1.0/file/get/2059819248?profile=original" target="_self"><img width="400" src="http://storage.ning.com/topology/rest/1.0/file/get/2059819248?profile=RESIZE_480x480" width="400" class="align-full"/></a></p> Anyone Tried this Products for Alopecia?tag:alopeciaworld.com,2017-08-02:2022678:Topic:13881472017-08-02T08:35:34.205ZLavonne Sandberghttps://alopeciaworld.com/profile/LavonneSandberg
<p>Hello,</p>
<p>i was browsing Amazon for products that helps in Alopecia. I found these two which have good reviews.</p>
<p></p>
<p><a href="http://bit.ly/palmettos" target="_blank">https://www.amazon.com/HAIRMETTO-Palmetto-Pumpkin-ALOPECIA-Regrowth/dp/B00KEG85DE/</a></p>
<p></p>
<p>and this one</p>
<p><a href="http://bit.ly/growthalopecia" target="_blank">https://www.amazon.com/Alopecia-Amazing-Hair-Growth/dp/B007CLP7MQ/</a></p>
<p></p>
<p>Both are cheap. Anyone tried anyone of above…</p>
<p>Hello,</p>
<p>i was browsing Amazon for products that helps in Alopecia. I found these two which have good reviews.</p>
<p></p>
<p><a href="http://bit.ly/palmettos" target="_blank">https://www.amazon.com/HAIRMETTO-Palmetto-Pumpkin-ALOPECIA-Regrowth/dp/B00KEG85DE/</a></p>
<p></p>
<p>and this one</p>
<p><a href="http://bit.ly/growthalopecia" target="_blank">https://www.amazon.com/Alopecia-Amazing-Hair-Growth/dp/B007CLP7MQ/</a></p>
<p></p>
<p>Both are cheap. Anyone tried anyone of above product? Read reviews and both look good. Ordered 2nd one to try.</p>
<p>Provide reviews if anyone used.</p>