Conceiving and alopecia universalis - Alopecia World2024-03-29T07:10:03Zhttps://alopeciaworld.com/forum/topics/2022678:Topic:82529?feed=yes&xn_auth=noIt gives me a lot of hope tha…tag:alopeciaworld.com,2009-08-07:2022678:Comment:3395952009-08-07T22:50:09.583ZHannahhttps://alopeciaworld.com/profile/Hannah12
It gives me a lot of hope that I could have children that never experience alopecia! I always worry so much that I will pass it on because it definitely runs in the family. My experience was that I had AA until puberty, but during puberty it morphed into totalis. When I was about 14/15, my hair grew back for the most part and for the last ten years it has just been patchy hair loss again. Since the change seems so hormone related, I always wonder if I will experience a worsening of alopecia…
It gives me a lot of hope that I could have children that never experience alopecia! I always worry so much that I will pass it on because it definitely runs in the family. My experience was that I had AA until puberty, but during puberty it morphed into totalis. When I was about 14/15, my hair grew back for the most part and for the last ten years it has just been patchy hair loss again. Since the change seems so hormone related, I always wonder if I will experience a worsening of alopecia during pregnancy like I did when I went through puberty. It makes me really nervous about trying to get pregnant in the future... Oh christ, don't tell me this…tag:alopeciaworld.com,2009-03-29:2022678:Comment:2626612009-03-29T00:56:54.872ZSportyAusGirlhttps://alopeciaworld.com/profile/SportyAusGirl
Oh christ, don't tell me this!! I thought losing total hair woudl be bad enough, adn just be that, but hearing that it could affect my ability to have kids??? !@#$
Oh christ, don't tell me this!! I thought losing total hair woudl be bad enough, adn just be that, but hearing that it could affect my ability to have kids??? !@#$ I am reading this book called…tag:alopeciaworld.com,2009-03-16:2022678:Comment:2490082009-03-16T12:20:39.938ZTnabugghttps://alopeciaworld.com/profile/Tnabugg
I am reading this book called It's your hormones by Dr. Remond and he doesn't mention fertility problems with alopecia universalis.. he does mention it for people with thyroid problems. I have universalis and getting pregnant was a huge problem for me before all of my hair fell out but had no idea that I had any thyroid problems at the time.<br />
I don't know if I have any cilia on my fallopian tubes..<br />
<br />
Good luck!<br />
Tina
I am reading this book called It's your hormones by Dr. Remond and he doesn't mention fertility problems with alopecia universalis.. he does mention it for people with thyroid problems. I have universalis and getting pregnant was a huge problem for me before all of my hair fell out but had no idea that I had any thyroid problems at the time.<br />
I don't know if I have any cilia on my fallopian tubes..<br />
<br />
Good luck!<br />
Tina I have AU and have concevieve…tag:alopeciaworld.com,2009-03-09:2022678:Comment:2444172009-03-09T00:02:33.762ZErinhttps://alopeciaworld.com/profile/Erin
I have AU and have concevieved and have a son, I don't know so much about if we have probelems with cilia I know in my nose I have none or little as well, but as far as I know no conception proiblems. Good luck! but it is something you should perhaps look into because we are each so different. :)
I have AU and have concevieved and have a son, I don't know so much about if we have probelems with cilia I know in my nose I have none or little as well, but as far as I know no conception proiblems. Good luck! but it is something you should perhaps look into because we are each so different. :) I have been AA since I was 12…tag:alopeciaworld.com,2009-01-20:2022678:Comment:2095742009-01-20T21:05:40.166ZLori Blackhttps://alopeciaworld.com/profile/LoriBlack
I have been AA since I was 12, and always have had regular cycles. I conceieved immediately after my marriage and had had hair for 10 yrs. As soon as I gave birth my hair all went. I took no birth control and did not conceive again (with the AU completely active) for 3 yrs, no hair came back during the pregnancy. I took some pretty strong birth control after this pregnancy and I took myself off after about a year and 3 months later I conceived #3. No hair regrowth throughout pregnancy again. No…
I have been AA since I was 12, and always have had regular cycles. I conceieved immediately after my marriage and had had hair for 10 yrs. As soon as I gave birth my hair all went. I took no birth control and did not conceive again (with the AU completely active) for 3 yrs, no hair came back during the pregnancy. I took some pretty strong birth control after this pregnancy and I took myself off after about a year and 3 months later I conceived #3. No hair regrowth throughout pregnancy again. No plan for more children. All this time my late husband was taking immune suppression medication after having received a double lung transplant before the conception of child #1. Me, with too much immunity and he depleting his on purpose!! God is certainly a miracle working God! Blessings to you on your journey to motherhood!! By the way, I have very healthy children with no signs of auto immnune disorder!! Hey, Mary. So sorry to hear a…tag:alopeciaworld.com,2009-01-20:2022678:Comment:2092242009-01-20T13:11:16.575ZLindseyhttps://alopeciaworld.com/profile/Lindsey
Hey, Mary. So sorry to hear about your son - your e-mail made my cry. It's SO scary for me, thinking that one of my children may have to go through this, too. My son just turned 16, but I have two girls who are older. None of them has show signs of an autoimmune disease. I have been told that it can be genetic, but other experts have said that it is not. I don't know. Either way, I think it must be harder for boys/men since they usually don't try a wig and can't draw on the eyebrows and glue on…
Hey, Mary. So sorry to hear about your son - your e-mail made my cry. It's SO scary for me, thinking that one of my children may have to go through this, too. My son just turned 16, but I have two girls who are older. None of them has show signs of an autoimmune disease. I have been told that it can be genetic, but other experts have said that it is not. I don't know. Either way, I think it must be harder for boys/men since they usually don't try a wig and can't draw on the eyebrows and glue on the eyelashes, etc. I'm sorry to hear that you, too, are having to go through this. I hate to tell you that my AA started exactly as yours did - with small spots along the nape of my neck. After cortisone shots, those small spots did grow back, but it was only a matter of a few months before I had total body hair loss. Please hang in there. I'm glad to hear that you're preparing yourself for the possibility of a wig, etc. I have to tell you - I've had some people tell me that they've known me for YEARS and when I tell them about my condition they can't believe it - they never suspected. I have a new internist and he made me take me wig OFF to prove to him that I really didn't have hair. So, maybe that's encouraging - you CAN make yourself look pretty good! God bless. LH Lindsey,
I was reading this d…tag:alopeciaworld.com,2009-01-19:2022678:Comment:2084662009-01-19T13:59:43.115ZMaryhttps://alopeciaworld.com/profile/Mary97
Lindsey,<br />
I was reading this discussion and found your comment noticing you were a little younger than me. I have a son who developed AAU in a matter of 4 months when he was 17 yrs. He is now 18 and in his 1st year of college. It's been so sad going thru this with him and us his parents not being able to fix it. He has come to terms with his condition and has had encouragement from his friends and of course all of his family. I definately think the support of his friends is key to a young man…
Lindsey,<br />
I was reading this discussion and found your comment noticing you were a little younger than me. I have a son who developed AAU in a matter of 4 months when he was 17 yrs. He is now 18 and in his 1st year of college. It's been so sad going thru this with him and us his parents not being able to fix it. He has come to terms with his condition and has had encouragement from his friends and of course all of his family. I definately think the support of his friends is key to a young man like him. We had never heard of AA before. Now I'm becoming an expert, mostly from this website with actual alopecians. As a matter of fact, I recently discovered I have AA. Now we know where heredity plays a role. Several patches grew back, now there is another larger one in the back. Still not visible unless I lift the outer layer. But I am wondering where this is going to go. I want to prepare myself. I will choose to wear wig if and when that time comes. Any advice you can provide? Thanks i have had alopicia since i w…tag:alopeciaworld.com,2009-01-02:2022678:Comment:1929922009-01-02T01:32:52.620Zsharonhttps://alopeciaworld.com/profile/sharon94
i have had alopicia since i was 7 and i have two boys the first was easily concieved and the second we tried 3 years for but that was a problem with fibroids i later discovered .
i have had alopicia since i was 7 and i have two boys the first was easily concieved and the second we tried 3 years for but that was a problem with fibroids i later discovered . Hmm i have AU for 17 years an…tag:alopeciaworld.com,2008-11-25:2022678:Comment:1699542008-11-25T07:18:07.264ZSarah Andersonhttps://alopeciaworld.com/profile/SarahAnderson
Hmm i have AU for 17 years and conceive very quickly like first time quick i do not think they are linked but could be a possibility now that i am pregnant my hair has stayted to grow so wierd not a hair in 17 years now a frohauk
Hmm i have AU for 17 years and conceive very quickly like first time quick i do not think they are linked but could be a possibility now that i am pregnant my hair has stayted to grow so wierd not a hair in 17 years now a frohauk progesterone levels can effec…tag:alopeciaworld.com,2008-11-22:2022678:Comment:1680122008-11-22T23:32:10.856Zkristinhttps://alopeciaworld.com/profile/kristin3
progesterone levels can effect the fertility and are often low with autoimmune conditions i would be curious to see what yours were when checked
progesterone levels can effect the fertility and are often low with autoimmune conditions i would be curious to see what yours were when checked