Am I becoming Universalis?? Please read. - Alopecia World2024-03-29T01:16:38Zhttps://alopeciaworld.com/forum/topics/am-i-becoming-universalis-please-read?feed=yes&xn_auth=noI don't know the difference e…tag:alopeciaworld.com,2017-05-21:2022678:Comment:13705002017-05-21T13:08:09.448ZPamelahttps://alopeciaworld.com/profile/Pamela659
<p>I don't know the difference either. I have no hair anyplace either.</p>
<p>I don't know the difference either. I have no hair anyplace either.</p> I have universalis. As far as…tag:alopeciaworld.com,2017-05-20:2022678:Comment:13704912017-05-20T21:34:00.362ZTomhttps://alopeciaworld.com/profile/Tom735
I have universalis. As far as I know totalis is from the neck up and AU is everywhere. I have no hair from the top of my head to the bottom of my feet.
I have universalis. As far as I know totalis is from the neck up and AU is everywhere. I have no hair from the top of my head to the bottom of my feet. I have had patchy scalp loss…tag:alopeciaworld.com,2017-05-08:2022678:Comment:13675582017-05-08T11:15:32.217ZDominique Cleopatrahttps://alopeciaworld.com/profile/DominiqueCleopatra
I have had patchy scalp loss for like a decade, sometimes more spots, sometimes less. Recently, I noticed a few spots on my body and I have had thinning of one eye's lashes for some time. I was also concerned I was turning AU. Only time will tell, but it hasn't happened at all yet.
I have had patchy scalp loss for like a decade, sometimes more spots, sometimes less. Recently, I noticed a few spots on my body and I have had thinning of one eye's lashes for some time. I was also concerned I was turning AU. Only time will tell, but it hasn't happened at all yet. I too have notice a tone of h…tag:alopeciaworld.com,2017-05-07:2022678:Comment:13672452017-05-07T06:55:55.359Zcathyhttps://alopeciaworld.com/profile/cathy587
<p>I too have notice a tone of hair loss, about 40% of my hair is gone, nothing works and its been 3 years already. I have tile flooring and have to sweep every day or my house would look like a barber shop. </p>
<p>I too have notice a tone of hair loss, about 40% of my hair is gone, nothing works and its been 3 years already. I have tile flooring and have to sweep every day or my house would look like a barber shop. </p> Are you close to Turkey? Does…tag:alopeciaworld.com,2017-05-07:2022678:Comment:13674782017-05-07T00:56:31.232Zhagsterhttps://alopeciaworld.com/profile/hagster
Are you close to Turkey? Does it have different drug regs than the US?<br />
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You might want to read the Xeljanz discussion before making a decision.<br />
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Yes, regrowth, but very expensive (a/ $3-4k a month in the US) unless you're in a study. Study ends and the cost is on you. Insurance won't help as its an off lable use. Quit taking and you'll lose all your hair again. Won't be available as generic for about another 10-15 yrs.
Are you close to Turkey? Does it have different drug regs than the US?<br />
<br />
You might want to read the Xeljanz discussion before making a decision.<br />
<br />
Yes, regrowth, but very expensive (a/ $3-4k a month in the US) unless you're in a study. Study ends and the cost is on you. Insurance won't help as its an off lable use. Quit taking and you'll lose all your hair again. Won't be available as generic for about another 10-15 yrs. Had 1 small circle of AA 17 y…tag:alopeciaworld.com,2017-05-07:2022678:Comment:13674752017-05-07T00:46:58.362Zhagsterhttps://alopeciaworld.com/profile/hagster
Had 1 small circle of AA 17 yrs ago. Hair grew back and life was normal. Then got Granuloma Annulare over entire body in 2015 which went into remission after surgery in May 2016. Thank goodness. That Nov my hair started falling out and lost ALL hair everywhere on my body within 2 months, so diagnosis was AU. (Both are auto-immune diseases, as is my Hashimotos.) No fuzz, no nuthin' since then.<br></br>
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From what I've learned, AA is only on the scalp, AT is anywhere above the neck, and AU is…
Had 1 small circle of AA 17 yrs ago. Hair grew back and life was normal. Then got Granuloma Annulare over entire body in 2015 which went into remission after surgery in May 2016. Thank goodness. That Nov my hair started falling out and lost ALL hair everywhere on my body within 2 months, so diagnosis was AU. (Both are auto-immune diseases, as is my Hashimotos.) No fuzz, no nuthin' since then.<br/>
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From what I've learned, AA is only on the scalp, AT is anywhere above the neck, and AU is the entire body. 'course not everyone will fits those specifics. I too don't know the differen…tag:alopeciaworld.com,2017-05-06:2022678:Comment:13674682017-05-06T23:36:35.098Zbibbyhttps://alopeciaworld.com/profile/bibby
I too don't know the difference between totalis and universalis. I had about 40% scalp hair and nowhere else effected in 2014. 2017 I have a penny sized circle of terminal hair and about 200 miniature and unrecognisable hairs on my scalp. 50% beard. All my eyelashes remaining, 40% eyebrows remain, and under arm hair fully remaining. Curiously also the hair on my fingers remains. Arms zero hair, legs zero hair, chest zero hair, nether regions 90% gone. This is my experience. Going to turkey soon…
I too don't know the difference between totalis and universalis. I had about 40% scalp hair and nowhere else effected in 2014. 2017 I have a penny sized circle of terminal hair and about 200 miniature and unrecognisable hairs on my scalp. 50% beard. All my eyelashes remaining, 40% eyebrows remain, and under arm hair fully remaining. Curiously also the hair on my fingers remains. Arms zero hair, legs zero hair, chest zero hair, nether regions 90% gone. This is my experience. Going to turkey soon for xeljanz as I'm not accepting this condition. Seems to offer a good 70ish % chance of success of regrowth. I didn't know AU was differen…tag:alopeciaworld.com,2017-05-06:2022678:Comment:13672262017-05-06T18:21:35.800ZPamelahttps://alopeciaworld.com/profile/Pamela659
<p>I didn't know AU was different than totalis. I have nooooo hair anywhere and have been this was way a loooooong time.</p>
<p>I didn't know AU was different than totalis. I have nooooo hair anywhere and have been this was way a loooooong time.</p>