I have tried Xeljanz and was a non responder even at higher doses. My doctor has suggested I try Ruxolitinib if he can get it approved by insurance. Has anyone tried it and had success?

Thanks

   Mark

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I am in a clinical trial with ruxolitinib, and I have had over 50% regrowth! 

Hey Mark - You know my story - NO response whateoever to Xeljanz, and now 100% response on ruxo after 9 months.

Anna

I am trying to get insurance to cover it, so far no luck.

Mark

Keep updated !!

Good luck - keep appealing!

Hi Anna how long and what strengths did you try xeljanz.Im not a responder either have been on 20 mg for for 8 months and various other strengths for a couple years.Getting my best results on 20 thanks to Beacon but not enough to get rid of the wig and actually I feel like my eyebrows have thinned a bit.Im ready to try the barcitinib which I’m lead to believe is similar to ruxo.Im giving it  another month or two and will have to make the decision.

Hi there - I went up to as high as 60 mg Xeljanz for  a couple of months - in total I was on Xeljanz for 11 months, mostly at 50 mg (25 mg twice a day). I did not repsond at all - and when I say not at all, I mean not at all. Not one vellus hair.

And I have responded to ruxolitinib - I have been on it since May, and have almost complete regrowth - just still missing body hair which I can live without :).

I am, however, 20 pounds heavier on ruxo, which is really tough.

Thank you Anna I have another question did you go immediately from xeljanz to ruxolitnib?And did you taper down from the xeljanz?

No - in between Xeljana and ruxo I tried Dupixent. I did not taper when stopping Xeljanz. My opinion (based only on my experience and discussion with other patients - I am not a doctor!) is that there would be no need to "take a break" between Xeljanz and ruxo. I would go straight from one to the other.

Thank you Again Anna

hello anna i'm on xeljanz for 2 years i don't have a complete regrowth to try dupixent because i have an appointment with my dermatologist to try dupixent. have you had any results? how long have you been on dupixent

Salut Kevin - Dupixent n'a pas marche pour moi du tout. Je l'ai pris pendant 4 mois... rien.. La seule chose qui a produit des resultats pour moi c'est ruxolitinib - je le prends depuis 10 mois et j'ai repousse 100% de mes cheveux. Je n'ai eu aucun resultat avec Xeljanz non plus et je l'ai pris pendant 10 mois a 60 mg par jour. Je te conseillerai d'essayer ruxolitinib.

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