I'm back to being curious as to whether other people have hair like mine. Surely someone must! My scalp (and some body) hair pretty much all fell out around 7 years ago, when I was in my 40s. I had had vitiligo for several years by that point. Over the course of years, my hair grew back to cover my head with only white hair. It's very thin and seems to be staying that way, but I welcome it as an alternative to wigs, and much as I want a full head of hair, even thin white hair has had the advantage of making me stand out in people's minds. I guess I don't yet look old enough to have fully earned it. Given that I was starting to go gray when my hair fell out, it seems reasonable that alopecia spared the strands that were willing to grow back without pigment, or possibly vitiligo is involved too. I know hair in alopecia spots often initially grows back white, but this is either a permanent switch or proof that I was going to be a fully gray 50-somthing before all my hair fell out. I had hope that I might get more white hair as time progressed, but that doesn't seem to be happening. There are times when I hate how straggly it looks and worry that if any more falls out I will stand out for all the wrong reasons, but most of the time it is a relief to just not think about my hair. It is what it is.
Where are all the other people with only white hair on their heads?
I have grown almost all my hair back. It started exactly like yours is currently. It came in very thin and white. I slowly gained thickness and pigment. It is almost 100% back now on my head. The rest of my body is slowly but surely coming back!
That's great that your hair has grown back! My white hair is more of a permanent condition than a transitory one. I used to get one or two dark roots, but I haven't noticed those in a while.
You are surely struggling with this wig or no wig issue. I have found that many women struggle with switching into wigs because they have not found the right one. There are so many bad ones out there, too dense, not natural looking, too big, too tight, color not realistic. I believe finding the right wig is what can do the trick for ones self confidence. So many areas of the country do not have the wig salons with the selections that it is truly hard to find and try on. It seems like with the pandemic and the economy that e commerce is going to be the way of the world, which makes me very sad. Finding a wig is a personal thing and it should be done with the assistance and guidance of those that know what hair loss truly is to a women. Having gone to china to learn about wig construction and caps for those with medical hair loss, I can say I know and understand what looks best on a persons head. There is a company out there called Fair Fashion that you can actually see the construction of the caps so you can better understand what fits your needs best. You can learn from this companies information guide and take that with you when you go to salons in your area. The first wig I looked at was at a hospital that carried wigs in their gift shop, they were all wrong and not for those with long term hair loss. You need to get educated on all the facets of caps and hair types and that will make things easier for you. You can always friend me and I would be glad to share the many successes I have had with finding good quality synthetic or human hair wigs and for that matter the failures.
Hi Jess. I've been on Baricitinib for over a year. I had salt and pepper hair until I lost everything to alopecia universalis. Like you, I now have very thin, and snow white hair. Several docs told me that AA attacks pigmented hair follicles more than unpigmented ones.
I would say my salt (white hair) made up about 25% of my scalp before AA, and that's what I feel I've grown in. Weirdly, my eyebrows, lashes and armpit hair have all grown in thin, but black. Hope you find an answer and share with the rest of us!
I've been on ritlecitinib for just under 8 months and have full regrowth on my head. Currently about 40% of my hair is the original color and 60% remains white. My hair color is continuing to return, and I've noticed that once is becomes colored, the hair is much thicker. Not just the hair strands, but it seems like there is more hair there. My regrowth (like many others) feels painfully slow, but gradually the alopecia seems to relent and allow the most affected hair follicles to return to normal. My suspicion is that your alopecia remains active to some degree, which is preventing full regrowth of thicker and potentially darker hair. Maybe you'd benefit from a mild form of medication (given you're lucky enough to a fair bit of hair)?