Quitting Xeljanz due to ineffectiveness - Alopecia World2024-03-29T05:12:03Zhttps://alopeciaworld.com/forum/topics/quitting-xeljanz-due-to-ineffectiveness?feed=yes&xn_auth=noThank you xtag:alopeciaworld.com,2020-02-13:2022678:Comment:17029662020-02-13T22:22:52.458Zmagmckhttps://alopeciaworld.com/profile/magmck
<p>Thank you x</p>
<p>Thank you x</p> Oral Jakavi 25 mg BID (ruxoli…tag:alopeciaworld.com,2020-02-10:2022678:Comment:16991322020-02-10T01:28:38.476ZAnnahttps://alopeciaworld.com/profile/Anna667
<p>Oral Jakavi 25 mg BID (ruxolitinib).</p>
<p>Oral Jakavi 25 mg BID (ruxolitinib).</p> That is so true. It took me n…tag:alopeciaworld.com,2020-02-09:2022678:Comment:16991192020-02-09T20:25:20.494ZAnishahttps://alopeciaworld.com/profile/Anisha
<p>That is so true. It took me nearly 6 months on 20 mg. a day before I started to see results. Take it for at least 6 months before giving up on it</p>
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<p>That is so true. It took me nearly 6 months on 20 mg. a day before I started to see results. Take it for at least 6 months before giving up on it</p>
<p></p> Oral Xeljanz has been a life…tag:alopeciaworld.com,2020-02-09:2022678:Comment:16992022020-02-09T20:24:08.822ZAnishahttps://alopeciaworld.com/profile/Anisha
<p>Oral Xeljanz has been a life saver.. What has worked for you?</p>
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<p>Oral Xeljanz has been a life saver.. What has worked for you?</p>
<p></p> Fingers crossed for you magmc…tag:alopeciaworld.com,2020-02-09:2022678:Comment:16988612020-02-09T12:54:27.348ZAnnahttps://alopeciaworld.com/profile/Anna667
<p>Fingers crossed for you magmck. It took 8 months for me to get a decent response on ruxolitinib, so please make sure to give it enough time! Dr. King told me that a good 20% of alopecians do not start to respond to JAK inhibitors until 6 months into treatment, which was the case for me. So may people respond quickly that I worry that sometimes people give up too quickly.</p>
<p>Fingers crossed for you magmck. It took 8 months for me to get a decent response on ruxolitinib, so please make sure to give it enough time! Dr. King told me that a good 20% of alopecians do not start to respond to JAK inhibitors until 6 months into treatment, which was the case for me. So may people respond quickly that I worry that sometimes people give up too quickly.</p> Hi Anna. Just read ruxolitin…tag:alopeciaworld.com,2020-02-08:2022678:Comment:16980582020-02-08T18:49:26.234Zmagmckhttps://alopeciaworld.com/profile/magmck
<p>Hi Anna. Just read ruxolitinib. I’ll try xeljanz for bit longer then maybe consider barcitinib if no response. Thank God for being able to access Bangladeshi pharmacology </p>
<p>Hi Anna. Just read ruxolitinib. I’ll try xeljanz for bit longer then maybe consider barcitinib if no response. Thank God for being able to access Bangladeshi pharmacology </p> Hi Anna
i started oral xelja…tag:alopeciaworld.com,2020-02-08:2022678:Comment:16979722020-02-08T18:43:22.221Zmagmckhttps://alopeciaworld.com/profile/magmck
<p>Hi Anna </p>
<p>i started oral xeljanz now on 20 mg Beacon so not full strength. I have very light vellus on my scalp. And some eyebrows and eyelashes. Don’t know which way it will go but I’ll continue to take it. Where are you now taking that is working for you ? </p>
<p>Hi Anna </p>
<p>i started oral xeljanz now on 20 mg Beacon so not full strength. I have very light vellus on my scalp. And some eyebrows and eyelashes. Don’t know which way it will go but I’ll continue to take it. Where are you now taking that is working for you ? </p> Hi there - I also have kids a…tag:alopeciaworld.com,2020-02-08:2022678:Comment:16975442020-02-08T15:25:17.219ZAnnahttps://alopeciaworld.com/profile/Anna667
<p>Hi there - I also have kids and sometimes wonder if they will end up with AA (or AU like me) - but then I think, as you do, that if that happens the medical community will have made great strides and they might not have to suffer as we have. I tried EVERYTHING - topical and injected steroids, PRP therapy, methotrexate, cyslosporine, prednisone, topical Xeljanz, oral Xeljanz, Dupixent, and then finally Jakavi - until I found something that worked, and I will never stop harassing the medical…</p>
<p>Hi there - I also have kids and sometimes wonder if they will end up with AA (or AU like me) - but then I think, as you do, that if that happens the medical community will have made great strides and they might not have to suffer as we have. I tried EVERYTHING - topical and injected steroids, PRP therapy, methotrexate, cyslosporine, prednisone, topical Xeljanz, oral Xeljanz, Dupixent, and then finally Jakavi - until I found something that worked, and I will never stop harassing the medical community until it starts to take this more seriously.</p>
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<p>Have you found a treatment that works for you?</p> Hi. Anna.
It’s such an inte…tag:alopeciaworld.com,2020-02-07:2022678:Comment:16978552020-02-07T22:30:40.542Zmagmckhttps://alopeciaworld.com/profile/magmck
<p>Hi. Anna. </p>
<p>It’s such an interesting/ exciting time. I can remember when I lost my hair I googled alopecia and a nothing came up it. It’s been so heartening to see the explosion of treatment especially when you have kids as I do and worry about genetic predisposition. I actually think it’s worth hanging in there and doing something positive and taking medication/ unlicensed drugs in an effort to impact on such a horrible condition.... so I hope - isn't thet such a great feeling…</p>
<p>Hi. Anna. </p>
<p>It’s such an interesting/ exciting time. I can remember when I lost my hair I googled alopecia and a nothing came up it. It’s been so heartening to see the explosion of treatment especially when you have kids as I do and worry about genetic predisposition. I actually think it’s worth hanging in there and doing something positive and taking medication/ unlicensed drugs in an effort to impact on such a horrible condition.... so I hope - isn't thet such a great feeling - that this works and if it doesn’t then maybe its worth trying something else :-) </p> Only did 60 (30 BID) for one…tag:alopeciaworld.com,2020-02-05:2022678:Comment:16954522020-02-05T22:01:53.785ZAnnahttps://alopeciaworld.com/profile/Anna667
<p>Only did 60 (30 BID) for one month as an induction attempt.</p>
<p>Only did 60 (30 BID) for one month as an induction attempt.</p>