routine childhood vaccines and the risk of triggering a flare up - Alopecia World2024-03-29T14:55:43Zhttps://alopeciaworld.com/forum/topics/routine-childhood-vaccines-and-the-risk-of-triggering-a-flare-up?feed=yes&xn_auth=noI agree with you Sabine - it…tag:alopeciaworld.com,2021-12-29:2022678:Comment:19536522021-12-29T07:13:55.343Zcd_385https://alopeciaworld.com/profile/cd385
<p>I agree with you Sabine - it is NOT cosmetic - it is an organ (many small organs). If any other organ was failing, there would be an intervention. Losing hair from an alopecia is a signal something is not right. A body shouldn't lose all the protective function that you pointed out (unless through evolutionary reasons where they become unnecessary).</p>
<p>Some genetic research shows alopecias are related to T1 diabetes - an interesting connection. </p>
<p>I suspect that there could be a…</p>
<p>I agree with you Sabine - it is NOT cosmetic - it is an organ (many small organs). If any other organ was failing, there would be an intervention. Losing hair from an alopecia is a signal something is not right. A body shouldn't lose all the protective function that you pointed out (unless through evolutionary reasons where they become unnecessary).</p>
<p>Some genetic research shows alopecias are related to T1 diabetes - an interesting connection. </p>
<p>I suspect that there could be a cure or intervention, but it will involve immunotherapy that will be costly to insurance (some data points to stem cell transplant for auto immune cures). As long as they can keep alopecias labeled as 'cosmetic' they will not have to pay for these treatments. We should fight to have this recognized as not-cosmetic and as functional loss; and change the messaging. Mental health discussion (along with identity) should also be included as a valid concern!</p> Forgot to add that keeping yo…tag:alopeciaworld.com,2021-12-27:2022678:Comment:19533132021-12-27T02:54:27.375ZSabineTawnihttps://alopeciaworld.com/profile/SabineTawni
<p>Forgot to add that keeping your fingernails clean when you have AU is very difficult. Your nails have splits and ridges on them, and underneath the nail, the dirt gets trapped in those openings, and you cannot remove it easily--even with a scrubbing nail brush. More places for germs and bacteria to hide, right?</p>
<p>Forgot to add that keeping your fingernails clean when you have AU is very difficult. Your nails have splits and ridges on them, and underneath the nail, the dirt gets trapped in those openings, and you cannot remove it easily--even with a scrubbing nail brush. More places for germs and bacteria to hide, right?</p> Actually, Jennifer, it is inf…tag:alopeciaworld.com,2021-12-26:2022678:Comment:19534202021-12-26T19:08:13.974ZSabineTawnihttps://alopeciaworld.com/profile/SabineTawni
<p>Actually, Jennifer, it is infuriating that after all this time, we do not have more effective treatments (possibly even a cure). First of all, hair is NOT cosmetic! Our society has made it "cosmetic". Hair is a protectorate. Alopecia Universalis robs you of all body hair, including nose and ear hairs, allowing germs to more easily invade the body. Scalp hair helps to regulate body temperature; eyelashes and eyebrows protect our eyes from sweat, dirt and debris (sparing us scratched…</p>
<p>Actually, Jennifer, it is infuriating that after all this time, we do not have more effective treatments (possibly even a cure). First of all, hair is NOT cosmetic! Our society has made it "cosmetic". Hair is a protectorate. Alopecia Universalis robs you of all body hair, including nose and ear hairs, allowing germs to more easily invade the body. Scalp hair helps to regulate body temperature; eyelashes and eyebrows protect our eyes from sweat, dirt and debris (sparing us scratched corneas, broken blood vessels, blinded by sweat when driving a car, etc.). Having no body hair means having no protections from the elements (debris, particulates, etc.) leaving us much more prone to skin irritations. It also dries up skin oil, leaving our skin dry and prone to cracking and splitting. So the next time, some idiot tells you it, "It's only hair", tell them to go back to high school biology. </p> I agree with what you said th…tag:alopeciaworld.com,2021-12-26:2022678:Comment:19533052021-12-26T18:26:32.998ZJenniferhttps://alopeciaworld.com/profile/Jennifer7
<p>I agree with what you said that mental health is just as important and it can kill you if your mental deteriates over it.</p>
<p>I agree about big Pharma. I really can't believe there hasn't been more options and research into autoimmune disorders. I have had alopecia for 45 years and my sister for 60 and there really isn't anything different in 60 years!</p>
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<p>I agree with what you said that mental health is just as important and it can kill you if your mental deteriates over it.</p>
<p>I agree about big Pharma. I really can't believe there hasn't been more options and research into autoimmune disorders. I have had alopecia for 45 years and my sister for 60 and there really isn't anything different in 60 years!</p>
<p></p> BOTH are important. Mental h…tag:alopeciaworld.com,2021-08-29:2022678:Comment:19486382021-08-29T17:59:10.381ZSabineTawnihttps://alopeciaworld.com/profile/SabineTawni
<p>BOTH are important. Mental health is just as important as physical health. It's rare for a healthy 10-year-old boy to die from the flu. But, for the most part, I would favor the vaccines over the hair loss problem. It's just too bad that at this point in time, we do not have adequate treatment for alopecia areata. But I am sure when treatment does become available, Big Pharma will make sure the price tag is out of reach, and our insurance companies will deem the treatment as "medically…</p>
<p>BOTH are important. Mental health is just as important as physical health. It's rare for a healthy 10-year-old boy to die from the flu. But, for the most part, I would favor the vaccines over the hair loss problem. It's just too bad that at this point in time, we do not have adequate treatment for alopecia areata. But I am sure when treatment does become available, Big Pharma will make sure the price tag is out of reach, and our insurance companies will deem the treatment as "medically unnecessary."</p> Of course it’s not more impor…tag:alopeciaworld.com,2021-08-29:2022678:Comment:19483432021-08-29T15:47:31.840ZSearching for My Sonhttps://alopeciaworld.com/profile/SearchingforMySon
<p>Of course it’s not more important, but his pediatrician actually recommended we skip the flu shot last year and see if there is a correlation. She said that because he’s had the shot every year of his life, there is residual protection against the flu. Plus he was wearing a mask wherever he went so it was a good year to skip it. </p>
<p>Of course it’s not more important, but his pediatrician actually recommended we skip the flu shot last year and see if there is a correlation. She said that because he’s had the shot every year of his life, there is residual protection against the flu. Plus he was wearing a mask wherever he went so it was a good year to skip it. </p> Is it more important for a ch…tag:alopeciaworld.com,2021-08-29:2022678:Comment:19485402021-08-29T14:50:44.649ZCindiehttps://alopeciaworld.com/profile/Cindie
<p>Is it more important for a child to have hair, or to be protected against diseases that can kill him or her? That would be my concern.</p>
<p>Is it more important for a child to have hair, or to be protected against diseases that can kill him or her? That would be my concern.</p> Hi. I was pretty sure vaccine…tag:alopeciaworld.com,2021-08-25:2022678:Comment:19483182021-08-25T02:10:21.157ZSearching for My Sonhttps://alopeciaworld.com/profile/SearchingforMySon
<p>Hi. I was pretty sure vaccines (or at least the annual flu shot) were causing my 8 year-old son’s alopecia. He would get his vaccines in the fall and his hair would fall out within a couple to a few months. It would then start to grow back in the spring. So I started to think it was vaccines. He did not get his flu shot last fall and his hair didn’t fall out in the winter or spring like it usually would. Then, over the last few weeks, it has started coming out again so I now am wondering if…</p>
<p>Hi. I was pretty sure vaccines (or at least the annual flu shot) were causing my 8 year-old son’s alopecia. He would get his vaccines in the fall and his hair would fall out within a couple to a few months. It would then start to grow back in the spring. So I started to think it was vaccines. He did not get his flu shot last fall and his hair didn’t fall out in the winter or spring like it usually would. Then, over the last few weeks, it has started coming out again so I now am wondering if maybe they weren’t the culprit.</p>