Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:
Married
About Me:
I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY


Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://www.alopeciaworld.com

Comment Wall:

  • rj, Co-founder

    Marry you? Alopecia and all? Why, of course! I like you more than I like cereal and milk. And you KNOW how much I like cereal and milk! ;-)

    Mar 7, 2008

  • Julia

    Good! I'm so proud of you guys...so proud. This is Great and I can't wait until it blows up into something really big!

    Mar 7, 2008

  • kastababy

    Cheryl, thank you and RJ both for creating these websites!!! I don't know how you came across me to invite me to AlopeciaAndLove.com on MySpace, but words do not begin to express how much it has meant to me!! I have lived with alopecia since I was 4 years old (25 LONG years) and I find myself experiencing issues with living with alopecia that I NEVER imagined having as a child. You truly are an inspiration to me and I hope to get to know you better!!

    Mar 7, 2008

  • Rachel

    THIS IS AMAZING!!! Why are you so brilliant? You rock. Thanks for putting this together.

    Mar 8, 2008

  • Shemika

    Hi Cheryl!

    I've joined now. Thanks so much for the invite. I see already that this is going to be a wonderful community:)

    Mar 8, 2008

  • Rachel

    I'll post on my Bald is Beautiful site - lets hope this group explodes like mine did!!

    Mar 8, 2008

  • Jennifer

    Hey Cheryl all is well here in Cali. This site is awesome i love it!!!!!! How are you doing?

    Mar 8, 2008

  • Jennifer

    I am definaltly going. I would not miss it for the world. I am going to send out a bulltien on my myspace and face book. Most of my conference friends are on there.

    Mar 8, 2008

  • Alex

    Hi Cheryl!! How have you been?

    Mar 8, 2008

  • Margaret Brennan

    Nice Job Cheryl. We will be in Ottawa for the 1/2 marathon in April or May. I won't be running but Denis will be and maybe NOrah will be with us. the little house is almost done... electric and heat are going into the school house part very soon. You and everyone have to come and visit.

    Mar 8, 2008

  • Hayley

    can we have a gen chat page plsssxx

    Mar 8, 2008

  • Hayley

    ohh your hubby is lovely hon;0)))))))) xxxxxxx

    Mar 8, 2008

  • Hayley

    GOOD JOB!!!xxxxxxxxxxxxx

    Mar 8, 2008

  • Alex

    im doing pretty good.

    i think this site is awesome! what a good idea, i love it so far!!

    i miss u so much, i cant wait to see u again =)

    Mar 9, 2008

  • Emily

    Hi Cheryl! I'm doing well! Busy as usual. How've you been?? I think this site is such a great idea. Thanks!

    Mar 9, 2008

  • Roger

    Really nice site! Keep up the good work!

    Roger.

    Mar 9, 2008

  • Roger

    I spread the words for some friends here in Sweden already ;)

    Roger.

    Mar 9, 2008

  • Children's Alopecia Project

    You are doing good work. I wish all organizations embraced each other for what is good work for the greater good. We all compliment each other and help in our own ways. Keep up the good work and know the the Children's Alopecia Project, a 501(c)3 non-profit located in Pennsylvania is on your side!
    Jeff Woytovich

    Mar 9, 2008

  • Pat

    Hi Cheryl, I see you are the motivating force behind this site...good on you!

    Mar 9, 2008