Hi Di,

I wanted to welcome to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder

Hi Di

Saw that you are in australia - I run the alopecia support group in QLD - where are you based and are you in contact with one of the Aussie groups? How old is your child (boy or girl)

Looking forward to hearing from you

ANGELA JACKMAN

HI Di,
I have had alopecia universalis since two years old. If you need someone to talk to I am here.

Hi Di,

I am from Melbourne and my daughter has alopecia too. Do you live in Melbourne.

HI Di - you haven't mentioned where you are from... I run the Brisbane support group - I have had no hair for 8 years but am trailing a natropath's treatment and now have aLOT of hair... as this is an immune system the earlier he gets to treat people the better his success..... I should put a new photo on my site showing how much hair I now have - these photos of me are about a year old... keep in touch I will up load a new photo very soon...
ANGELA

Hi. I am 46 years old and have had a difficult time with this even though I only had 2 spots. I can only imagine how difficult it must be for your 12-year old daughter. I can't really say what worked for me. I tried several things: The derm gave me injections in the spots, and a cream called Aldera. However, it all seemed to be a "let's try this" attitude. I also stopped coloring my hair, even though everybody says that has nothing to do with it. I only applied the Aldera three times, so I can't say for certain that it is the reason for the regrowth. I took the injections every 6 weeks for 9 months. Please, be sure to talk to your doctor about side effects before using anything. I have read postings about horrible "female" side effects from the shots. It just happens that I am past all of that so, at my age, I did not have to worry about those types of side effects. I did gain quite a bit of weight during the steriod injections. Now that I am off the injections, I am trying to address the weight issue. I hope all goes well for your daughter. Just be sure to have open communication with whatever doctor you may chooose and ask lots of questions!

Hi Di, It is nice to meet you..Thank you for the friend request. Your daughter looks beautiful. How old is she? Samantha is probably AU as well and I can't believe it almost a year since we noticed her first spot. I would cry and cry and I still do. But, what gets me is the doctor said she will be fine and it will come back..Well, hello a year later my daughter is wearing a wig and has no lashes or brows now. She is a trooper and has not shed one tear over her hair loss. For her, it is what it is...We are trying a treatment now that will take a while to produce results, but i am getting antsy..How is your daughter doing with all this? Are you doing trying anything? Please send me messages anytime....Cindy

Hi Cassie, I am actually Katya's mom. She is the 12yo. I will ask her if she would like a pen pal. She doesn't really go on this site but I'll show her your page and have her write back. As far as the curls, I can tell you how to style it this way if you'd like, it's not to hard. This wig is actually straight. Also, there are wigs you can get that fit pretty well and should let you participate in sports without issues. ...... Vicktoria (Katya's mom)

Hi Di,

My name is Christel and my daughter Jennifer is 8 and she has had alopecia since she was 2. We recently went through a hair regrowth but now she has lost it all again. She wears a Freedom wig which is suction based and has real hair. They are absolutely beautiful. How old is your daughter? and where do you live, we live in Perth.