I had Alopecia Areata as a kid. I had very long, thick hair. I was on the swim team. Well my hair would get very knotted having it up in a cap and my mom or dad wold comb out the snarls every night. My mom found my fisrt patch. I started seeing a dermatolist who perscribed a gell that worked great. My hair grew back and no one really new except my family.
20 years later it came back. Over the past few years I got a few small random patches and steroid injections have been working. However recently things seem to have really progressed. My small patch has gotten bigger and bigger. I was scheduled to go in for the shots and decided I should check for any new patches. Well I found 6 small patches. I am terrified that they will progress like the other one and I will no longer be able to hide it.
In the same sense that I am afraid of loosing my hair, I also feel validated because for months I had been finding loose hairs everywhere. But whenever I would mention it to friends or family they would say "oh that's normal you should see how much hair I pull out of the drain" Deep down I knew that this was not normal for me. I am not just paranoid this is really happening.
Because I am still at a stage that people really would never know unless I tell them, I decided that now is the time to reach out to others who have experienced this and prepare myself for what may come.
Hi Carrie, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
I can't say that I have experience. I've only been dealing with this for this past week. I am also trying to wrap my brain around the fact that i'm losing my hair. I have no idea how much hair I will lose, and that scares me. If you ever need to know you aren't alone with your feelings, I'm here. I won't have any great words of wisdom, but I can listen.
Roger
Roger.
Aug 3, 2008
LeslieAnn Butler
What is your alopecia story? I've had it for 30 years. Just wanted to stop by and say hello!
LeslieAnn
Aug 3, 2008
rj, Co-founder
Aug 4, 2008
Cheryl, Co-founder
Aug 4, 2008
Rachel
Aug 15, 2008