Hello Tami, My name is Maria and I have a 6.5 yr old daughter name Savanna and she has AU...She was diagnoised when she was just 3yrs old, she lost all her hair pretty rapidly and the lost all her eyelashes and eyebrows following the hair loss. She is a amazing child in my eyes, she doesnt let being bald stop her from doing anything. She has alot of friends and family who love her just the way she is. She usually wears ball caps on her head, but she is now wearing a wig from the kids club and has wore for about a month now. She loves having her wig, but I am very diappointed in the quality of it. The hair in the front of her wig has fallen out and alot of the hair falls out when we brush it.
They are making her a new one and it shouldn't be to much longer for it to be ready, I am praying it turns out better than this one. If you wold like any info let me know...would love to hear from you!! Maria

Hi Tami and Taryn,
I just wanted to say hello and see how you are doing today.
I've had alopecia universalis for many years...
LeslieAnn