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Jasmine and mommy

Female

vancouver, washington

United States

Profile Information:

Relationship Status:: Single
About Me:: Hello, my name is Susy and my percious daughter's name is Jasmine. Jasmine developed alopecia areota when she was 18 months old and totalis when she was 2 1/2 years old. we have worked hard as a team to build her confidents and not have to wear a wig or a hat. our faith has brought us along way. Jasmine started kindergarden and it seems like it regressed her to square one. i would love for her to know and see that she is not alone. we are in search of others who are the same age, that seek to know the same. she is an awesome littel girls who has an amazing personality. we look forward to making life long friends. As an update jasmine is now entering 1st grade and she has progressed amazingly. with the help of this website and some advise i got it helped us through the year. we have Alopecia awareness day at her school and whenever she starts somewhere new i always talk to all the kids about alopecia and feelings. she is very comfortable and has had so much fun in school.
Do you have alopecia?: Alopecia totalis
Are you age 18 or older?: No

Comment Wall:

Cheryl, Co-founder

Hi Susan, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

Oct 2, 2008
Linda

Hi Jasmine and Mommy, welcome to AlopeciaWorld! There are a lot of Mommies on this site and I know they will lend support to you both. I'm here if you need to talk!

Oct 2, 2008
rj, Co-founder

Hi, Jasmine and Mommy. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

Oct 2, 2008
Roger

Welcome.

Oct 3, 2008
LeslieAnn Butler

Hi Jasmine and Mom,
I'm glad to see you here and want to say WELCOME!
How are you doing today?
LeslieAnn

Oct 3, 2008
Cindy

Hi Susy, my name is Cindy and my daughter Samantha is 6.5. She is in first grade. She lost all of hair shortly after she began Kindergarten and has been wearing a wig since Dec. She loves her wigs and is starting to have regrowth. If your daughter chooses not to wear a head covering at school I do suggest having a talk with her class about Alopeica and maybe sending a letter home to the parents. You maybe surprised to find that others are familiar with Alopecia and no someone else with it. We have recently had this experience. As long as you keep giving Jasmine love and support she will get through this. I suggest finding some outside activities at school that she enjoys and have her develop her skills. It will be a great confidence booster. There are quite a few moms on here with kids Jasmines age. I am sure you find some good advice...Cindy

Oct 4, 2008
LeslieAnn Butler

Hi Jasmine! Yes, I just realized you are in Vancouver! Right next door to me.
Of course, we should meet. Do you come to Portland very much?
LeslieAnn

Oct 4, 2008
LeslieAnn Butler

Okay, why don't you give me some ideas and we'll go from there.
Do you wear wigs? I'm asking because there is a wonderful place in Portland called Brenda Kay Hair Specialties that has some fabulous products. You might want to go there and see what Brenda has to offer. I could meet you there.

Oct 4, 2008
LeslieAnn Butler

How about if you come to the Portland Art Museum Rental Sales Gallery fall art show on October 17? It's a casual reception with some food and wine and Jasmine could see some of my artwork, too. It's on the corner of SW 12th & Jefferson. The show goes from 5- 8. Let me know if you're interested and I'll make sure I'm there!

Oct 4, 2008
Roger

Hope you will like this site. =)

Roger.

Oct 5, 2008
Megan

Hey,
Welcome to the site.
Your daughter is absolutely gorgeous and I hope she knows that.
I hope you find the friends and support you're looking for on here.
You ever wanna chat,I'm here.
God Bless
Megan x

Oct 5, 2008
Maria, Mia's Mom

Hi Suzy, My name is Maria and I also have a 5yr with Alopecia..she started kindergarten and we had a extremly diffucult time..I could really relate.It seems no matter how well adjusted our children our we get there is always a small set back..welcome to the site and I hope we can help each other.
Maria

Oct 5, 2008
LeslieAnn Butler

Great! No, it's really casual and low key! Okay, so what time will you be there? I want to be sure to see you!

Oct 6, 2008
LeslieAnn Butler

Hi Jasmine and "Mom"!
I will be at the art show on the 17th between 5 and 6:30 or 7 -- so if you can come on the early side, that would be great!

Oct 8, 2008
kristin

Hi Jasmine,
I just want you to know that I read what your mom wrote and it made me smile. If you can be so brave at only 5 years old you are going to grow up to be truly remarkable lady. Know that you have given me strength today. I'll promise to smile big this weekend with you in my heart.

Oct 9, 2008
LeslieAnn Butler

Okay! I will make sure I'm there! By the way, I might have short hair instead of long, depending on my mood!
LeslieAnn

Oct 9, 2008
LeslieAnn Butler

Hi Girls,
Just wanted to confirm that I will be seeing you tomorrow night between 5:30 and 6 -- I'm looking forward to meeting you both!
I have another event to attend that starts at 6:30 which is dressy, so don't be shocked that I am in cocktail attire! Everyone else there will be in jeans. I will look peculiar! Oh well.
Big hugs, LeslieAnn

Oct 16, 2008
LeslieAnn Butler

Hi Again! Just to let you know, I will not be wearing a cocktail dress tonight after all -- so see you in my jeans!
LeslieAnn

Oct 17, 2008
LeslieAnn Butler

Hi Susy and Jasmine,
Hey, I missed you guys! I was at the Portland Art Museum Rental Sales Gallery until 6:15 and then I had to leave to meet someone at 6:30. I was looking forward to meeting you! I hope you are both okay.
Hugs, LeslieAnn

Oct 17, 2008