I'm 48. I was just diagnosed yesterday. Kinda in shock right now. My hair is falling out in quarter size clumps. I feel alone and confused. My partner is great and supportive. I'm realizing I'm not alone. These pages that people have created are helping. I want to say thank you for putting yourself out there! Jillian
Oh honey, I'm sorry you are in shock! Listen here, don't worry. You will be fine. I think it might help you a lot to read my book, "If Your Hair Falls Out, Keep Dancing!" You can check in out on my page. You can order it by clicking the link, or on Amazon.com. Let me know if I can help in any way.
LeslieAnn
Hi Jillian,
Welcome to Alopecia World. You are definitely not alone!!! I feel that us Alopecians are one big extended family, and I'm sure you will feel that way too!!! If you need anything, don't hesitate to ask. I'm so glad you found support early in your journey. It took me three years and a lot of heartache before I realized that I wasn't the only one on earth that has gone through this. We're here for you.
Love and Hugs,
Dotty
Hi Jillian, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
Hi Jillian, welcome to Alopecia World. There are a lot of nice people here. Well If you ever need to talk I'm here; I have lived with this for quite some time and I know how important it is to have support from family and friends. C
Hello Jillian,
I just wanted to stop by and send my love. I'm glad you came back. I know how scary it is for you, and I completely understand your being apprehensive. Just know that I am still here if you need me. Big hugs to you my friend.
Love and Hugs,
Dotty
It's great to meet you. I too have AA I've been dealing with it a little over a year. I can clearly remember how I felt after being diagnosed. Yes the family and friends love you with or with out hair, but it's also great to have people to lean on that have walked in your shoes. Please feel free to ask and questions and join our Chicago group, we can try together if you like.
have you joined the chicago group we should post a get together on it and see what everyone's schedule looks like. I'm free most evenings, how about you?
Yes, next Wednesday would work. I have guitar lessons with my son on Thursday evenings. I would love to meet anyone you would bring. What time works for you? j
Hi Jessica,
Whatever works. 6-6:30 is fine. I live in Oak Park. Would the two of you like to meet in between, or I can toss some food on the grill and we can sit around and talk at my house. Let me know, JIllian
Hi
Yes you did say wed that's fine I've so many things running through my head these days. What time will work for you? Where do you want to meet there are a lot of places at the mall to eat. Oh I have talk to to another women the other day and she said the same thing her name is Melissa she is one of my friends on her you should email her she knows more about it but now I think I should check mine too you'll have to tell me what the tests are called. I have hypothyroidism from something called hyshiomoto disease ( I know that's spelled wrong but will tell you more about it tomorrow.
hey Jillian,
It was great meeting you today I'm so glad we were able chat and compare notes anytime you every feeling like your having a bad day or good please feel free to call email etc.
Dinner was great thanks again.
Jillian,
Hi there! I don't have thyroid problems now, but I did have a low ferritin level, even though it was in the "normal range". Ferritin is your iron stores, not the total iron that is in your blood. I read a lot about it and came across a few other women that had low ferritin. In some of their stories, they mention that your level should be around 50-70, range in order to grow and maintain your hair. This is disputed though by some doctors. A good website to look that up is www.heralopecia.com. Look there and look up keyword, low ferritin, and you will see others stories of women that are low. I'm currently looking into why my stores are low, food allergies and not being able to absorb my vitimans correctly. Hoping that I will get some answers there. You really have to be aggressive about checking everything. I'll keep you posted on what happens after I test if you like! Take care! Blessings!
Melissa
Hey,
Yep still taking it it is really nasty though did you end up getting anthing for your iron>
Yes love the Armour saw the doc for it today and have a yrs supply. how is everything going for you? How is your dog?
chin up girl! your gonna beat this even without hair. what kinda of wigs are you going to look at? did you ever check out that site www.newlifehair.com always another choice for a wig. But look J my hair grew back yes i have a few little spots but maybe it's just gotta run it course. Kims right I felt so much better after I shaved my head it gets you used to what you might end up with or in my case i had such a great amount if hair lost growing it back from scratch was best for me. I think there are a lot of people who have regrowth then total loss.
have a great trip to az
where are you going in az my parents live in mesa
hi jillian,
sorry i missed you call when i did finally get it i didn't want to call to late so i will try you tomorrow. so you have some info to share can't wait to hear
I would love to see your new hair piece so let me know when you get it in and where you got it. I'm always looking for new places to check out/
Roger
Roger.
Jul 22, 2008
LeslieAnn Butler
LeslieAnn
Jul 23, 2008
LeslieAnn Butler
Hugs in the meantime!
Jul 23, 2008
Dawn
Jul 23, 2008
Dotty
Welcome to Alopecia World. You are definitely not alone!!! I feel that us Alopecians are one big extended family, and I'm sure you will feel that way too!!! If you need anything, don't hesitate to ask. I'm so glad you found support early in your journey. It took me three years and a lot of heartache before I realized that I wasn't the only one on earth that has gone through this. We're here for you.
Love and Hugs,
Dotty
Jul 23, 2008
Cheryl, Co-founder
Jul 26, 2008
Christina
Jul 27, 2008
Dotty
I just wanted to stop by and send my love. I'm glad you came back. I know how scary it is for you, and I completely understand your being apprehensive. Just know that I am still here if you need me. Big hugs to you my friend.
Love and Hugs,
Dotty
Aug 17, 2008
Jessica
It's great to meet you. I too have AA I've been dealing with it a little over a year. I can clearly remember how I felt after being diagnosed. Yes the family and friends love you with or with out hair, but it's also great to have people to lean on that have walked in your shoes. Please feel free to ask and questions and join our Chicago group, we can try together if you like.
I'm in Woodridge not too far from you.
jessica
Aug 18, 2008
Jessica
Aug 18, 2008
Jessica
If you don't want to do the group setting then I would love to meet one on one also
up to you.
Aug 18, 2008
Jessica
go to my page and you will see my groups that I;m in and you will see chicago alopecians and just click on it then I think theres a spot to join
Aug 18, 2008
Jillian
Aug 19, 2008
Jessica
Aug 20, 2008
Jessica
Aug 20, 2008
Jillian
Whatever works. 6-6:30 is fine. I live in Oak Park. Would the two of you like to meet in between, or I can toss some food on the grill and we can sit around and talk at my house. Let me know, JIllian
Aug 20, 2008
Jessica
sorry about the back and forth
Aug 22, 2008
Jessica
Yes you did say wed that's fine I've so many things running through my head these days. What time will work for you? Where do you want to meet there are a lot of places at the mall to eat. Oh I have talk to to another women the other day and she said the same thing her name is Melissa she is one of my friends on her you should email her she knows more about it but now I think I should check mine too you'll have to tell me what the tests are called. I have hypothyroidism from something called hyshiomoto disease ( I know that's spelled wrong but will tell you more about it tomorrow.
Aug 26, 2008
Jessica
see you
Jessica
Aug 27, 2008
Jessica
jEssica
Aug 27, 2008
Jessica
may be a little late need to have my friend come sit with the kids till jason gets home.
stir crazy sounds great.
Aug 27, 2008
Jessica
Aug 27, 2008
Jessica
It was great meeting you today I'm so glad we were able chat and compare notes anytime you every feeling like your having a bad day or good please feel free to call email etc.
Dinner was great thanks again.
jessica
Aug 27, 2008
Melissa Harris
Hi there! I don't have thyroid problems now, but I did have a low ferritin level, even though it was in the "normal range". Ferritin is your iron stores, not the total iron that is in your blood. I read a lot about it and came across a few other women that had low ferritin. In some of their stories, they mention that your level should be around 50-70, range in order to grow and maintain your hair. This is disputed though by some doctors. A good website to look that up is www.heralopecia.com. Look there and look up keyword, low ferritin, and you will see others stories of women that are low. I'm currently looking into why my stores are low, food allergies and not being able to absorb my vitimans correctly. Hoping that I will get some answers there. You really have to be aggressive about checking everything. I'll keep you posted on what happens after I test if you like! Take care! Blessings!
Melissa
Aug 27, 2008
Jessica
well i got my iron and ferritin checked well guess what yep my iron is low and my ferritin is 10.
what are you taking for this?/
jessica
Sep 4, 2008
Jessica
http://www.stopthethyroidmadness.com/
a lot of information
Sep 4, 2008
Jessica
Yep still taking it it is really nasty though did you end up getting anthing for your iron>
Yes love the Armour saw the doc for it today and have a yrs supply. how is everything going for you? How is your dog?
jess
Sep 8, 2008
Jessica
chin up girl! your gonna beat this even without hair. what kinda of wigs are you going to look at? did you ever check out that site www.newlifehair.com always another choice for a wig. But look J my hair grew back yes i have a few little spots but maybe it's just gotta run it course. Kims right I felt so much better after I shaved my head it gets you used to what you might end up with or in my case i had such a great amount if hair lost growing it back from scratch was best for me. I think there are a lot of people who have regrowth then total loss.
have a great trip to az
where are you going in az my parents live in mesa
Sep 9, 2008
Jessica
how are things going? Did you end up getting a wig?
How was Az?
Sep 19, 2008
Jessica
take care
jess
Sep 19, 2008
BTB (John)
Oct 4, 2008
Jessica
sorry i missed you call when i did finally get it i didn't want to call to late so i will try you tomorrow. so you have some info to share can't wait to hear
I would love to see your new hair piece so let me know when you get it in and where you got it. I'm always looking for new places to check out/
jessica
Oct 6, 2008