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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Pat

I believe this is a great community of people. I've viewed it on several occasions but denial kept kicking in. I am happy to be in contact with those who really understand what I go through

Nov 14, 2008
Pat

Thanks for the welcome. It's good to be a part of a community where others understand what you go through

Nov 14, 2008
Christina

ye, i am gone do that!
and have a nice day.

Christina

Nov 14, 2008
Christina

Hello Cheryl!
Just wanna say that i have 2 new photos on me on this site and that its the first time on a photo i am whit out my wig!

Nov 17, 2008
carl

hello cheryl haven't been a very active member for a while. thanks for great site and all the good you and your husband do.

Nov 17, 2008
macdev

hello every body
thanks for jour welcome!
i m here hosnetly, firs to help my son , and his mother and me too to support "alopecia attack"
my son is not bald yet , and we try to find any medical solution for the moment...;

Nov 18, 2008
Avis

Thanks for the welcome Cheryl. You look so happy in ALL your pics. It makes me feel like one day I will really accept my hair loss. I look forward to learning much from everyone here. Thanks to you and RJ for making the committment to provide a place for alopecians to share positive thoughts.

Nov 19, 2008
Alexandra Rinderer

Thanks so much - No more isolation...

Nov 20, 2008
rj, Co-founder

Babe, I love and adore you too. :-)

Nov 21, 2008
Jenny Austin

You're moving to the states! Apply for citizenship and stand next time!
I really like this site and what you and rj try to do - it fulfils a real need, some people want more than just advice, your site is very positive, and I especially like the photo gallery of beautiful and striking alopecians. Long may you continue.
Jen

Nov 21, 2008
Sharan

Hey Cheryl. This is a pretty cool place. You deserve a huge thankyou for the opportunities you have provided here for all alopecians.
Very proud to be amongst you all x

Nov 21, 2008
claire

hi cheryl hope your well ive been raising awareness on our condition and your site.... hope all is ok in america....

Nov 22, 2008
Elnaz

Hi Cheryl,
Thank you so much for your kind welcome message. I feel really good in this site and I'm sure I will be able to find really good friends like you:)

Nov 23, 2008
cHaSiTy MiChElLe

hey :)
thankyou this is such a great website its gonna help me alot. im so glad i found it. its good to know that theres other people out here that understands were im coming from

Nov 23, 2008
Sherry Giles

Thank you Cheryl, for the warm welcome, and for providing us with such a wonderful community. Alopecia is new to us, and it's comforting to find a place to communicate with others!

Nov 24, 2008
Carla

Thank you for the welcoming comments Cheryl! I am finding the various forums very helpful and supportive and am on my way to making some new friends!!!

Nov 24, 2008
claire

im ok thanks how are you ? ive been really working our alopecia group some publicity to get the condition noticed......and letting everybody aware of the alopecia world site.....

Nov 24, 2008
Dawn

Yes that's me! How did you find that?

Nov 24, 2008
Dawn

easy way to search lol

Nov 24, 2008
Sarah Anderson

thank you for your welcome i have actually met you once in washington we were in the canadian group!! i hve pictures of you with my family you were such an insperation!!!! i was a first timer then to the naaf conferences and thank you for this site and the welcome!!

Nov 25, 2008
JeffreySF

Hi Cheryl,

Stopping in to say hello.
I cant believe all the new members lately. Up to 2,115.
Either Alopecia is spreading or the words getting out.

Hugz,

Jeff

Nov 25, 2008
Marina

thanks for the warm welcome!

Nov 26, 2008
lia

hello

thank you very much! happy to find you!

Nov 26, 2008
aiydawedo

Hello Cheryl! Thank you very much for your welcome and warm words. And how are you this day? Hope to hear from you soon;) Adela

Nov 26, 2008
Phoenix 2.0

Happy Thansgiving Cheryl!

Nov 26, 2008
Avis

Hey Cheryl. Am I going crazy? I could have sworn you were on another network earlier today. Now I can't find you there. ... I hope you have a great Thanksgiving !

Nov 26, 2008
Avis

Well, as the kids say wtf. I believe there are enough people dealing with hair loss to support as many networks as can be started. Each one has a different feel to me, but serve the same purpose. Be blessed, stay strong.

Nov 27, 2008
Marie

Hi Cheryl,
Thanks for the welcome. I was just diagnosed with Alopecia Universalis and its been very difficult adjusting. I've also been worried that there is something more going on with my body than just hair loss and it's been very difficult to get Doctors to investigate. Have you ever attempted to find out what is causing this and if it is more than just hair loss?

Nov 27, 2008
Jennifer

Hi Cheryl,

thankyou for your warm welcome and for co-foundng this terrific site. I look forward to getting more involved over the next while. I'm in Ottawa (not too far from you) and headed back to my home in Vancouver & it's a great comfort to know I can come to this website when I'm feeling blue and also when I'm feeling strong and can offer support.
Many blessings,

Jennifer

Nov 27, 2008
Dody

Hello Cheryl,
thank you for the welcome and this great site

Nov 28, 2008
Jbkny

Nov 28, 2008
Jbkny

Happy thanks giving

Nov 28, 2008
Merari's Page

Thank you for the Welcome!! I'm very happy that my niece and I have found this site. So far our experience here has been of great help. Because of this site I was able to have a complete conversation with my niece about AA. We even spoke alittle about wigs for the first time. My niece loves books, do you know any childrens book about AA?

Nov 28, 2008
Jane

Hi Cheryl, thanks for the welcome. I look forward to getiing know you and all the members of this wonderful site. I'll do my best to support others as well.
Jane xxx

Nov 29, 2008
MattiasP

Hi Cheryl and thank you!

Nov 30, 2008
Humberto Ibarra

Hi Cheryl. Thank you for the welcome... it is really nice to meet people living and feeling the same as I do... sometimes I feel like I'm the only one in this situation and that there is definitely something wrong with me... sometimes it is scary and depressing, but finding your group was a very nice chance to see a little bit different.... thank you!

Nov 30, 2008
Rumpleteazer

thank you for the warm invte :)

Nov 30, 2008
dollydreadful

thank you so much for the birthday greeting how're you ?:)

Dec 1, 2008
Tamika Joseph

I like to thank u for the welcome. I not use to talk to people about alopecia.

Dec 2, 2008
sg x

Hey cheryl

thanks for the welcome :-D do you know about any sort of eye lash transplants ? wb x

Dec 2, 2008
manny

thanks for the warm welcome

Dec 3, 2008
Roger

Hi Cheryl.

Yes, that place was great. I remember Rj wanted to take some pictures of you too =) Hope youre ok over there.

Take care, Roger.

Dec 3, 2008
Rachel

Thank you so much for your encouraging words. You made my whole day. Thank you!!!

Dec 3, 2008
VTW

Hello, Cheryl

Thank you for your encouragement and allowing God to use you to make a website such as this one. I feel great now. I also thank God for those that are getting the word out about this website. I found out by word of mouth.

Thank you and God bless you!

Dec 7, 2008
Lisa

Thank you Cheryl for the warm welcome. I'm really excited that I found this site. Lisa

Dec 7, 2008
JeffreySF

Hi Cheryl,

Stopped in to give you a warm Holiday Greeting.
Leo and I got the tree set up today, Tree Trimming tommow.

Big hugz,

Jeff

Dec 8, 2008
BrandyLynn

Thanks for the Birthday wishes Cheryl!!!

Dec 8, 2008
Robert Linscott

Thank you very much Cheryl for the nice welcome. I am looking forward to meeting new friends as I don't know anyone personally with alopecia.
Thank you again.

Dec 8, 2008
Jay

Thanks for your welcome, this site really helps out so much

thanks again

Dec 8, 2008
Kimberly

Hi there. I hope to lean more about AA. I dont know the differences between AA, AT or AU. I sit and wonder how much longer it will be before I loose all my hair, or not. Right now, I have just spots, but to the point they have to be hidden. It really kills my self esteem. My Husband of 18 years loves me dearly, but have never been and probably never will be a compassionate man. I feel lost and alone.

Dec 10, 2008

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