I am married to Michael and we have 3 wonderful children-Parker 9, Lane 6 and Madilyn 4. My husband sells/manages real estate and is a firemen. I work for our local city taking care of the fleet in town. Our middle son Lane who is 6 has AA. He has had AA since he was 3. I was so excited to see this. I try to get more informed everyday about what I can do and how to help Lane.
Hi Brittany and Lane, Welcome!! This board is great. My name is Cindy and my almost 7 yr old daughter Samantha has Alopecia. She is having regrowth right now with treatments. It has been just over a year since she lost her hair, but she deals with it exceptionally well. We have been upfront with her about Alopeica and she understands it all very well. How has your son been able to cope with his Alopecia? You have a beautiful family. Cindy
Hi Brittany, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
Hi Brittany, Samantha has been doing squaric acid for the last year. We tried topical steriods with no avail. I took her to 3 doctors before finding a doctor willing to be more aggressive. Of course I would never subject Sam to anything she did not want to do or that we thought would not be safe to try. She does well tolerating the irritation and rash she gets from the treatments. They are part of the response she should have to the treatment. We apply it twice a week now. It took several months before seeing any results. Now, she has patches of hair coming in. Around March she lost her lashes and rest of her brows. Still no signs of them coming in yet. Alopeica really snuck up on us. We have no family history of it and all her blood work is normal, nor does she have any symptoms that are commonly associated with AA. She started wearing a wig a year ago and really likes it. I was hoping by her b-day next month she will be wig less, but I don't think so. It is hard to watch a young pretty girl lose her hair and have to go through this. I am fortunate she has a good spirit and sees the positive in everything. She is an old sole as many say to me. Is your son doing any treatments?
We went to a Boston Meet and greet last April and had a nice time. We missed the Boston one this year..We are not going to NAAF, we have never been to one of their events. check out the www.childrensalopeicaproject.org. They are holding their first kids conference in PA this summer. There event is geared towards the kids. It is their first one. Also, if you contact Betsy she will put you on their contact list and can even tell you if there are other kids in your area Lane's age with AA that are registered with them. They have profile on this board too..Cindy
Cindy
Jan 2, 2009
Roger
Roger.
Jan 2, 2009
Dawn
Jan 2, 2009
Cheryl, Co-founder
Jan 2, 2009
Linda
Jan 2, 2009
Cindy
Jan 2, 2009
rj, Co-founder
Jan 3, 2009
Buffy, Alicia's Mom
Jan 4, 2009
LeslieAnn Butler
Hello and welcome. How are you and Lane doing today?
LeslieAnn
Jan 4, 2009
Cindy
Jan 5, 2009
Cindy
Jan 12, 2009
Cherylnz
Welcome to Alopecia World
Jan 16, 2009