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NINI

Female

TREZEVANT, TN

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been married to a wonderful man for the past 25 years and we have one beautiful daughter. I was diagnosed with alopecia universalis in August 08 after starting to lose my hair in June. I finally shaved the rest in September. I took cortisone injections every six weeks starting in September. I took the last injection on March 20th and believe it or not I had a full head of hair. I thought that I had received the miracle cure until June of 09 and my hair began to fall out again. I have lost almost all of it and do not have hair anywhere on my body except for my eyebrows. I have once again started the cortisone injections and am just waiting to see what happens this time.
Do you have alopecia?: Other type of alopecia
Are you age 18 or older?: Yes - I am 18 or older

Comment Wall:

rj, Co-founder

Hi, Nini. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

Oct 24, 2008
Cherylnz

Hi NINI
Welcome to Alopecia World

Oct 24, 2008
JeffreySF

Hi Nini,

Welcome to Alopecia World.
Woof Woof!!!

Jeff

Oct 24, 2008
JeffreySF

Hi NINI,

I'm glad I have been of help to you with the stories of my wild adventures.
Fasten your seatbelt it's gonna be a bumpy ride.
Glad you are here with us.

Jeff

Oct 25, 2008
JeffreySF

Hi Nini we are in chat if you want to join in

Jeff

Oct 25, 2008
LeslieAnn Butler

Hi Nini,
I have universalis, too. It's frustrating, isn't it?
How are you doing today?
Welcome!
LeslieAnn

Oct 27, 2008
LeslieAnn Butler

By the way, that is the cutest dog in the whole world! (Next to mine, of course)

Oct 27, 2008
wendyrayburn

Nina I cant believe your from Trezevant I am from Camden TN.

Oct 28, 2008
Angie W.

Hey Nini, (neighbor)...I have gotten wigs at 3 different salons in the Nashville area...Chic Boutique near Cool Springs Mall in Franklin, Old Hickory Wigs in Old Hickory and Dean's Wig Villa in Madison. I would recommend all three but would have to lean more toward Chic Botique...Deborah McWhorter is the manager and a very sweet lady...the address is Cool Springs Crossing, 1745 Galleria Blvd., Franklin, TN 37067 phone #615-771-9779. Good luck with the doctor appt. and the wig hunt. ~

Oct 29, 2008
Angie W.

I'm glad I could be of some assistance. Up until this year I'd worn a Peggy Knight Vacuum wig for six years so I hadn't done a lot of wig shopping in that time. My most recent purchase was at Chic Boutique (if you look at my pics, the very first pic on top was purchased there) and I really like it. I know how it is to feel like you're on a wild goose chase though, there really aren't that many places to choose from in this area. Again, good luck Nini.

Oct 29, 2008
kastababy

Hey Nini!

Sorry it took so long for me to get back to you. I would recommend Dean's Wig Villa in Madison, TN. The lady that owns the shop is named Faye and she has been providing my wigs for me since I was 6 years old. She caters to women and children with medical hair loss especially, and IMHO her prices are a lot better than Chic Wigs or Old Hickory Wigs. Plus, if you have a dermatologist's appt in Nashville on Friday, depending on where you are her shop may be the closest of all three.

Now if you are in West Tennessee, then believe it or not there is a shop in Cordova, TN I would recommend called Great Hair Everyday! The owner's name is Connie Agee, and she sees clients on an appointment basis only. Her website is www.greathaireveryday.org, and she can order just about anything and will even help with processing insurance claims as well. Who is the dermatologist you are coming to Nashville to see? Good luck with the appointment!!!!

Oct 29, 2008
LeslieAnn Butler

Nini, girlfriend! I am so happy that my book is helping you! When you read it, I want you to feel that you have a girlfriend right there, supporting you and caring about you.
Thank you so much for letting me know!
BIG HUGS!

Nov 2, 2008
Angie W.

Nini, I just wanted to check back with you to see how your appt in Nashville went and if you had any time for wig shopping? Holler back at me if you can. ~Angie

Nov 17, 2008
Angie W.

I'm so glad to hear things are going well...and so glad your experience at Chic was a positive one...some people have different experiences and I'm always afraid if I recomment a place then that person won't have as good of an experience as I had (does that make sense?). Anyway, I'm glad it was a positive one and I'd love to see a pic of your new hair.

Nov 17, 2008
wendyrayburn

I am seeing a doctors at three different hospitals in Nashville.
Does your daughter play for West Carroll? The boys head coach there is originally from Camden. They played here last Thrusday Night but I didn't go.
Nice to here from you and keep in touch.
Sorry it took so long for me to get back to you!

Jan 31, 2009