Hi Toni, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder.
Hi there Toni! I just read your well-written post regarding treatments. I'm sorry to learn your son has had AA from such an early age. My daugther got her first spots of AA at age 8, we used a steriod cream & Roggaine, and then she went into remission for two years. My son got his first spots of AA last May at age 9. Both kids are treating with shots, as they each currently have about four small spots. Do you happen to know the name of the medication used to numb the scalp prior to shots? I'm so glad your son is seeing regrowth. My kids are also seeing regrowth. It almost makes me feel like we are winning the battle for now!
Hi Toni! Thanks so much for your informative response. The kids have their next appointment on 11/3, and I will definetly ask about the cream. It seems that there should be no reason I can't get this prescription for them. It's so frusterating that it was not offered in the first place! Take care & I hope to chat with you again soon!
Hi Toni, I was just reading your post under treatments. I have a 6 yr old daughter and live in Mass too..I can't believe your doing shots. How does your son handle it? I know my daughter would not tolerate it. She is being seen at Children's Hospital and is doing squaric acid. She is now having regrowth, but we have a long way to go. I would love to chat more. Is your son in 1st grade? Cindy
Hi Toni, my name is Cindy and I had wrote on your wall some time back. If you check this board I wanted to let you know that a group of families with kids and adults with Alopecia are getting together for lunch in Boston on Jan 31st. The details are on the Mass board, but your welcome to email me. My daughter is also 6, turning 7 soon...
Hi Toni, it is nice to hear from you. Samantha is doing the squaric acid now and started regrowth after about 6 months..Are you still going to Tufts? Sam is going to Children's in Boston and we love her doctor. I am sorry to hear that your son's hair hasn't stayed, but I hope the squaric works for him. You need to hang tight with it and don't let road blocks stop you, just work with them. I am happy to share our experience with you if you'd like. We have had a few road blocks but with the doctors support we have been able to work through it and Sam has been willing to continue and handle it. In March I am planning to start CAP meetings. After the new year I will have a place set. Are you on the CAP mailing? They are having their first kids conference in PA in Aug....I have met a family in S. Weymouth that has a son Toni's age. We are planning to meet up again at some point and you are welcome to join us. Feel free to contact me..
Toni, I can understand why you don't like Children's. I hope your son can have the results we are seeing with the squaric acid. Don't hesitate to email me if you have any questions about it. Hopefully, you will be able to join us in January. Enjoy the snow!!Cindy
Hi Toni, I wanted to confirm that you wanted to join us for lunch on the 31st. can you please email me at kweensgurl@aol.com with the number of people planning to attend. I am going to send out an confirmation email once I know the restaurant can accommodate us. We are going to be a big group which is awesome. Thanks Cindy
rj, Co-founder
Oct 19, 2008
Roger
Roger.
Oct 20, 2008
Cheryl, Co-founder
Oct 21, 2008
Cherylnz
Welcome to Alopecia World
Oct 21, 2008
Lynn AKA Mom of 2 w/AA
Oct 22, 2008
LeslieAnn Butler
How are you and your son doing? I wanted to say hello and welcome.
LeslieAnn
Oct 22, 2008
Lynn AKA Mom of 2 w/AA
Oct 26, 2008
Cindy
Oct 28, 2008
Cindy
Dec 18, 2008
Cindy
Dec 19, 2008
Cindy
Dec 20, 2008
Cindy
Jan 18, 2009