I am 38 yrs of age (soon to be 39) . I have Alopecia Total Universalis. I have been like this for 5 yrs. I lost it all when I had my 4 yr old. I just had a baby 6 weeks ago, and am now discovering I am growing peach fuzz. I had AA when I was 15, and did the cortizone shots, and through out the years did topical ointments, which did nothing for me, except stain my hair and scalp, and cause bad burns. My photo shows me with a wig, and unless out running around, I don't wear my wig. I live in PA, and if anyone needs any support, I am here for them.
Thank you very much; I love my nieces and nephew to death -- they are my world!!! And they are such joy to be around, especially the oldest, who thinks I hung the moon!!!
LOL glad to see you made it here. It is kinda nifty. And the one girl...kastababy is talking to me about Goodwill. Seems there are tons of discrimination cases against them. and her friend is one and her grandmother works for the Equal Employment Op. division here. Do you have a scanner? If you do could you scan one of the good pictures of me and email it to me so I can put my picture on here. LOL there are no good pics just that stupid gray man there. lol
Hi Becky!!! Glad your here!! Must say we agree when to wig and not to wig!! hee hee! At least lately anyway. I just got my wig and love it but if I'm not going anywhere it feels more comfortable to wrap it up. Boy is it cold with out anything on it though!!! I've had to ask my bald husband a thing or too about it before. Even had him shave my head and then asked if he ever thought he'd be shaving his wife's hair....had to laugh about that one!!
Your babies are GORGEOUS too!!!!
Hope to get to know you more.
~Brandy
Sorry Becky I'm in the great cold U.P. of Michigan. It's Loretto...a small blink and you miss it town. Where the gas station is also the post office and there's only one caution light!!
Would have loved to go walking with ya although everything is ice here. The spring is finally on it's way!!
OH! Thanks for the tip on the cap to wear to keep my head warm!! ;)
Hi Becky, I have been AU for 7 years....lost mine after a hysterectomy. I face the same issues with my wigs. I am a little better at showing people my bare head, but I always feel "naked" in front of them.
Just within the last 3 months I have started to have some regrowth. I started taking Methotrexate for my rhuematoid arthritis which is the only thing I can think is making it grow....I have eyelashes for the first time in 7 years! Have you ever had any break throughs with growth during the last 5 years other than after your baby was born? By the way congrats....what a beautiful baby.... I have on daughter (through invitro fertilization) who is now 19 and on adopted son who is 11.
talk to you soon
Kim
ps....I don't get on here very much
Hi Becky!
Thanks for welcome!
I have seen your pics,and they are amazing!Very emotional!
You have a very pretty children...are the boys twins?
I have a twin brother,and is my best friend...He has not alopecia,and is exactly like me,but with hair,and he is married and has two boys!
Anyway...glad to talk with you and to have you as a friend!
Salvador x
Hi Becky thanks for your welcome - am afraid I do nothing abt my AU now - I just get on with life - to me there are a lot worse conditions out there - AU is not life threatening but can make you down - BUT only if you let it - keep smiling and stay positive!
Ally
becky
Mar 10, 2008
kastababy
Mar 10, 2008
Karen Martin
Mar 10, 2008
BrandyLynn
Your babies are GORGEOUS too!!!!
Hope to get to know you more.
~Brandy
Mar 10, 2008
BrandyLynn
Would have loved to go walking with ya although everything is ice here. The spring is finally on it's way!!
OH! Thanks for the tip on the cap to wear to keep my head warm!! ;)
Mar 10, 2008
rj, Co-founder
Mar 12, 2008
rj, Co-founder
Mar 12, 2008
kim trivett
Jun 4, 2008
Kim Culberson
Just within the last 3 months I have started to have some regrowth. I started taking Methotrexate for my rhuematoid arthritis which is the only thing I can think is making it grow....I have eyelashes for the first time in 7 years! Have you ever had any break throughs with growth during the last 5 years other than after your baby was born? By the way congrats....what a beautiful baby.... I have on daughter (through invitro fertilization) who is now 19 and on adopted son who is 11.
talk to you soon
Kim
ps....I don't get on here very much
Dec 8, 2008
Scott Ostro
Dec 17, 2008
Ingela
First, sorry for my bad writing.
Now, very welcome to this site. I really must say that your kids are lovely:)
Take care and have a nice day!
// Ingela
Jan 10, 2009
Ingela
Take care and yes we keep in touch!!
// Ingela
Jan 10, 2009
Salvador
Thanks for welcome!
I have seen your pics,and they are amazing!Very emotional!
You have a very pretty children...are the boys twins?
I have a twin brother,and is my best friend...He has not alopecia,and is exactly like me,but with hair,and he is married and has two boys!
Anyway...glad to talk with you and to have you as a friend!
Salvador x
Jan 29, 2009
Ally
Ally
Jan 30, 2009