hello fellow alopecians
i've had alopecia since i was 12- throughout highschool i tried various treatments which would make hair grow back almost all the way sometimes, but never fully, i lost it all again my senior year of highschool and went through college wearing scarves and then wigs. i'm now a graduate student studying painting in boston. i have two freedom hair wigs and about 13 synthetic wigs or something ridiculous like that! i still have those tough days, sometimes i get anxious about being infront of people i don't know well without my wig. alopecia has been a hard thing to accept in life but i don't think i'd be the person i am today without experiencing it. it's made me more compassionate, understanding, stronger definitely, and has made me see a lot of things about our society in a different light than i ever would have before. i wouldnt want my hair back at this point because i would hate to go through the loss of losing it again, i think im at a point of acceptance now that was really hard to get to.
go baldies.....!
Hi Paula, my name is Cindy and I am parent of a 7 year old with this condition. She is doing a somewhat parallel treatment to yours and is having good results. I love your attitude and glad to see you have been able to be you regardless of your lack of hair. There is going to be a Bald Girls Do Lunch in Boston on Sept 26th at Vinny T's on Boylston Street. I have started a childrens support group in Mass that is supported by the childrens alopeica project. The girls have been invited to attend I am planning to attend. There is a a new New England Non profit that has been formed by 3 woman. They have a lot of things they want to plan. If your interested in the contact info to get on their list let me know..Cindy
JeffreySF
Welcome to Alopecia World.
Jeffrey
Jul 12, 2009
Cindy
Jul 12, 2009
LeslieAnn Butler
I'm an artist too, and I also have universalis! It must bring out the creativity in us.
How are you today?
LeslieAnn
Jul 12, 2009