Hi, I wanted to welcome to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl

Hello and welcome!
Your daughter is adorable. I know how hard alopecia can be, and how helpless you can feel when your child has it. I have had it for about 30 years. Let me know if you need help or support. One thing that you might be interested in is my book, written for women (and girls), called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com, and on this site under "Bookshelf."
Let me know if there's anything else I can do! I am here to help.
LeslieAnn

Hi there, first your daughter looks like a cutie. How is your daughter doing and have you taken her to the derm. I suggest contacting the Childrens Alopecia Project. They maybe able to connect you with a family in your area.
Cindy

Hi, welcome to alopeciaworld, what a beautiful little girl you have! For starters, give her a lot of reassurance and confidence in who she is as a person, let her know that she is truly truly not her HAIR! Stay blessed and in touch!

Welcome to AW I live in the AV too!! if you need anything please let me know. My mom lives in lancaster and I live in Rosamond.

This is a pretty awesome website people are always willing to help out. I'm in lancaster a few times a week. Rosamond is only 11 miles form Ave I. I'm at my moms almost everyday to go swimming. I'm actually the Telephone support contact for NAAF in the Antelope Valley.

Hi, I can really understand what is going through your mind. Sam was bald by age 6. She started Kindergarten with bald patches that were always covered until oneday her loss was just too much that I bought her a wig. She loves/d wearing her wigs and wanted to wear one. I guess the HM craze really helped to want one at the time. I never let her go out bald, but that was mean for basically the same reasons you have. And I have the same fears and it is normal to have them and want to protect you child from what I call the mean people. Samantha has only let her close friends see her bald at home or their house and when we travel she rarely wore anything. I live in a small town and like to maintain some privacy. I try to tell her that she has visible allergy and that her medical situation is not really something she should have to explain. But, you really can't explain that to a 4 year old. Sam also had headbands with hair sewn into them that she liked to wear. I just saw your post on treatment options and will share this with you here. Sam did not respond to creams and you have to keep in mind that there is no cure for Alopeica and people respond differently to what is available to try. What works for one may not work or work the same for another. With that, I will tell you what we did. I took Sam to several doctors on a mission to find help. A year later she has almost all her back, but no lashes and brows. We see the doctor today. She is doing a treatment that is an irritant and it is called SADBE, squaric acid. Her body responds to the treatment in the form of a rash and an itchy scalp is a side effect. The idea is to confuse the immune system and wake up the hair follicles. Hair follicles can grow at anytime and never die, they are dormant. I can go into more detail about Sam's experience if you want to look into this treatment. Not all doctors do it. This face pic is her growth as of June, but I need to update as it is longer now. Check back in a couple days. But, the pics you see are various stages of growth. Did you contact CAP. I would really suggest trying to go to the conference in PA next week. It may be very helpful to both of you. Please write anytime. We are all here to support each other. Cindy

Hi,
Welcome to AW. I also have a daughter who has AA. Currently the half top of her head is completely bald. Let me know if there is anything I can do or if you just want to chat please drop by my page.
Tracy