i started with alopecia in September 2008;my hair loss was slow @ first then became very rapid by new year, ive now got no hair at all. and having difficulty, finding head ware, as im only small, and find adult head ware to big,
Hello and welcome, Karen!
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It's a good read. You can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
Karen,
Nice to meet you! I am also new to Alopecia World. I think we're in good company here!
For me, I have found that scarves are a great way to cover. The styles and sizes and fabrics are endless! There are so many different ways to tie them.
#1 If you tie them properly, they won't blow off your head at 60kph! My husband like to take the weekly bike ride to the beach!
#2 They are such a popular accessory and can be worn for all occasions without drawing attention to yourself.
#3 Finally........if and when the hair grows back, we can still wear them as great accessories rather than necessities!
#4 They will also come in handy for a bad hair day!
Think of it that way......Plus, what will you do with a wig if your hair grows back?........... someday...hopefully the scarves will only be a great reminder to ourselves.......An accessory worn .....kinda like a badge of courage!
Best wishes!
Hi Karen,
Just wanted to say thanks for your message on my profile. I'm getting mine in 3 days which is also when my hairdresser will be shaving my head. I'm looking forward to it now as the current system I wear is uncomfortable (although it looks good which is something I guess!) so I can't wait to have it removed! I hope you are finding this site as helpful as I am I can't believe how many people suffer with this condition and I thought I was the only one!
Laura x
I'm fine, thank you. I've had AA/AT/AU in various combinations for over 10 years and am now completely bald but with eyelashes and some (sparse) eyebrows, which I pencil in. I'm completely accepting now, but it hasn't always been that way. How about you?
Hi Karen, When you create a new profile on Facebook, it will ask you for a city or region which is associated with a network. This is how you can add yourself to the UK networks. You can also search for friends by their name and see what network they are on and who else is on that network. You can only be assigned to one network at a time I think, but you can join as many groups/discussions and add as many friends from anywhere in the world! For example, you can search for Nicole Mosley and there may be more than one "Nicole Mosley", but I am the only one on the Phoenix, AZ, US Network. Hope this helps :)
Whew! I finally found the pattern. It was in a May 2004 magazine. I took a picture of it and now have it saved as a PDF. It was either that or type it all out by hand. I hope this works to upload a file. Wiggies pattern.jpg
Hugh
Welcome to Alopecia World!
Have you tried a Buff? Great piece of headware!
Hugh
Mar 26, 2009
JeffreySF
Welcome to Alopecia World.
Jeffrey
Mar 27, 2009
JeffreySF
You will find lots of support here.
What are squirel chops?
Jeffrey
Mar 27, 2009
LeslieAnn Butler
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It's a good read. You can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
Mar 28, 2009
JeffreySF
Jeffrey
Mar 28, 2009
Tina
Nice to meet you! I am also new to Alopecia World. I think we're in good company here!
For me, I have found that scarves are a great way to cover. The styles and sizes and fabrics are endless! There are so many different ways to tie them.
#1 If you tie them properly, they won't blow off your head at 60kph! My husband like to take the weekly bike ride to the beach!
#2 They are such a popular accessory and can be worn for all occasions without drawing attention to yourself.
#3 Finally........if and when the hair grows back, we can still wear them as great accessories rather than necessities!
#4 They will also come in handy for a bad hair day!
Think of it that way......Plus, what will you do with a wig if your hair grows back?........... someday...hopefully the scarves will only be a great reminder to ourselves.......An accessory worn .....kinda like a badge of courage!
Best wishes!
Tina
Mar 29, 2009
Cindy (Duncan's Mom)
Apr 5, 2009
Laura
Just wanted to say thanks for your message on my profile. I'm getting mine in 3 days which is also when my hairdresser will be shaving my head. I'm looking forward to it now as the current system I wear is uncomfortable (although it looks good which is something I guess!) so I can't wait to have it removed! I hope you are finding this site as helpful as I am I can't believe how many people suffer with this condition and I thought I was the only one!
Laura x
Apr 6, 2009
Tatina Paddington
May 4, 2009
Julia McDowell
I'm an ex-pat Brit from Bromley in Kent, now living in Ottawa, Canada. Nice to see you here. Stay strong!
Julia :)
May 5, 2009
Julia McDowell
May 7, 2009
Nicole Mosley
May 10, 2009
lynne
i hope ur well, hope we can chat sn, take care x
May 15, 2009
Brandy Snap
May 17, 2009