Ray

Male

Warrington

United Kingdom

Profile Information:

Relationship Status:
Married
About Me:
Who am I?

I am a 57 year old male, born in Widnes, a northern town in England.I now live in south Warrington. I have Alopecia Universalis.


I have always had thick strong hair and I was the last person that you would expect to go bald. In fact it was a statement often made by friends whenever the topic of going bald was discussed.

Like most people, we all have friends who start to loose their hair. Some start to shed their locks very young while others start later in life. Some people never loose their hair and at one time most people would have put money on me always having plenty of hair.

Looking back on how this thing developed, I recall having a small itchy patch on the right side of my head just above my ear. I thought it was an insect bite at first and I remember feeling a smooth patch of skin but I just thought that it was due to the tiny sore brought about by a bite. The patch remained with my and after a while my wife noticed another bald patch near to the crown. This patch was not noticeable when my hair was dry but was very visible when I came out of the shower. Pretty soon another patch developed and at this point I went to see my doctor who referred me to a consultant.

The consultant I saw was absolutely brilliant. She showed true understanding of the situation and the effect that it had on people with the complaint. I was quickly given various treatments for the alopecia including a course of steroids and I also had steroid injections into my scalp. None of the treatments had any effect on the growth of my hair but I did feel better in myself.

As my alopecia progressed, the rate that the hair fell out accelerated. I woke up every morning to find lots of hairs on my pillow. When I showered lots of hair came out in my hands as I washed my hair. I found strands of hair all around my desk at the office and about my home. The problem became more and more at the forefront of my thoughts. I spent far too long dwelling on the matter and I worried about how the problem would end. My real low point was once when I was away in Ireland on business. I woke one morning and not having a rushed start to the day, I started to count the hairs on my pillow. Although I was feeling better physically, I realised that I needed to come to terms with my situation.

By this time it was late November and I had lost about 40% of my hair. It was no longer possible to hide the hair loss any more and as such I felt that I needed to shave my head completely rather than look like a “comb over” man. On 12 December 2008 I booked into my barbers, a personal friend who had been incredibly supportive throughout and told him that I wanted him to shave my head. He arranged to see me late in the day just as the shop was closing. As his staff left the shop he locked the door, sat me in a chair and said “are you sure”?

I can honestly say it was a most liberating experience. Suddenly I was completely bald!!!! There was not a hair left on my head and I felt fantastic.

I had been very nervous about shaving it all off before the act of liberation. What would I look like? Was my head a strange shape? Would I look like an old man? All the thoughts that went through my mind were worrying and left me quite nervous but it had to be done as I looked so very strange with patches in odd places about my head. It was not like male pattern baldness which usually follows a symmetrical pattern of hair loss. My hair loss was in random patches and I really did look odd.


My new image was fantastic. I looked OK, my head was not a funny shape and many people actually said I looked younger rather than older.

After shaving I obviously had no hair on my head but I was still left with a “map of the world” on my head as the areas where the hair had not fallen out were still showing like a black pattern. It looked a bit weird but it was better than having hair and bald patches. Now I simply had a bald head with a strange pattern on it.

I had to now shave my head every day as the remaining hair grew at quite a rate. I can honestly say that shaving my head was quite a pleasurable thing to do and I still enjoy the task. The feeling of having just shaved you head is excellent and I can really recommend it to anyone who is just at the point of considering that they should shave.

After the course of steroids I was given various blood tests which showed that I had a thyroid problem and I was therefore prescribed Thyroxin tablets to resolve the situation. After a while of being on these tablets I felt much better and I started to show signs of re-growth. The hair started to come back albeit white and rather fine like bay hair. The re-growth has continued no for 4 or 5 months and I have been discharged by my consultant. I have full re-growth albeit with white patches. I still shave most days but if I leave it for a couple of days my head shows a lot of stubble like a number 1 and the white patches are reducing. It seems as though they shrink as the outer edges change to my natural colour and the white patch gets smaller.

Even though it is all growing back I continue to shave as I am now fully relaxed with my new image and like being bald. I realises that my hair could all fall out again just as suddenly as it started before but what difference does it make now. I am happy as I am.

.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • Cheryl, Co-founder

    Hi Ray, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
  • JeffreySF

    Hi Ray,

    Welcome to Alopecia World and thanks for sharing your life with us.

    Jeff
  • Hugh

    Hi Ray,

    Yes , looking forward to the 11th!

    Hugh
  • JeffreySF

    Hello Ray,

    We both seem to have the same alopeciac pattern. Take a look at my world map pics.
    My regrowth is also white and fairly diffuse without patches.

    Thanks for sharing.
    I will post more pics as they become available.

    Jeff
  • Roger

    Thanks for sharing the photos.

    Roger.
  • JeffreySF

    Mine is still white.
    How long was your jorney with alopecia? I am just a little over 1 year

    Jeff
  • Donna

    Hi Ray. Thanks I think most people look better without hair, but i think i'm biased now lol. You and I are living proof aren't we :-)
  • JeffreySF

    Hi Ray,

    I like your positive attitude.
    When I had my blood checked nothing was abnormal. I wonder if I should have my thyroid function retested....I think I'll just have to make another call to the good Dr.

    Jeff
  • JeffreySF

    Thanks Ray,

    I will call and ask for a blood draw and really wont even have to see the Dr.

    Jeff
  • Cheryl, Co-founder

    Hey Ray, this is a question for rj, I will forward it to him and hopefully he can help you out.
  • mandy

    Hello ray i have just been reading you post on AUK, What a fantastic post well said.

    I would have posted on it but i am one of the suspended ones lol so i cant

    Take care mandy xx
  • Jude

    Ray is your profile picture you or is it John Malkovich?! Having looked at your hairloss pictures I think the shaved head really suits you much better. It's interesting how alopecia can force us to change our image in ways we'd never have dared.
  • marie

    hi ray, its good to be here, ive been a member for a while, but dont get on as much as id like to. thanks for the welcome,........your pics are great, really suits you shaved....well done!......chat soon,xxxxmazza
  • Jude

    We have the same hairstyle - I have a lot of regrowth too cut to a #1!! It's patchy at the front so I also have what looks like a receding hairline - not such a great look for a girl. Although at least I don't have the beard!
  • Jenn

    hey there. i like your page. i guess this is all really new to me, but i didn't think that a guy would have a problem with it like i do as a women. im sorry that i thought that and i see how stupid that was of me. i really am glad that i found this site because honestly i have never heard of this and i have never known anyone with it and it helps knowing that there are quite a few people that are dealing with this too. i can't wait to get to the point where it is not the biggest thought that i have and i can go back to normal life.
    thanks,
    jenn
  • Che

    Hi Ray! How are you? I read that you have your hair back again, congrats! how long did it take to come back and how long did you have alopecia and what type of alopecia was it?

    Sorry for all the questions but I'm very interested.

    I signed up because of your post: "After the course of steroids I was given various blood tests which showed that I had a thyroid problem and I was therefore prescribed Thyroxin tablets to resolve the situation."

    I think I have the same problem as you and I have Alopecia Universalis I wounder what the name of the Thyroxin tablets is? and how long did you take it ? and how much?

    I'm going to visit a dcctor soon and I will ask him about these Thyroxin tablets that you used.

    Thank you,

    Che
  • Mark

    hey ray... just having a look at your pics as my hair is going the same way.

    Must say tho you actually look far better with a shaved head than with hair.

    Hope alls well.
    M
  • Mark

    hey man,

    was just gonna ask. do you definitely think it was the thyroid problem as to why you lost hair ?

    When your hair came back, how did it look ? I have the white stuff in my main patch with a bit of brown but my beard has had white hair (quite thick tho) for about a year and hasnt turned to original colour so just a bit concerned.

    Thanks
  • Mark

    hi Ray,

    I had some blood tests come back and my thyroid T4 level was higher than normal. Can you remember wether you were hyper or hypo thyroid. Do you know what your result levels were ?

    Thanks
  • MillwallBen

    Hi Ray,

    Thanks for the msg, reading your page answered a lot of quesions i had.

    cheers
  • mandy

    Hiya Ray hope your well x
  • mandy

    hiya just seen your post on other site,

    thank god its not liverpool and everton again....or is it lol
  • mandy

    liverpool won so one happy son lol
  • Jackie

    Ray,

    How true it is!! This world is too small for the close-minded.

    How are things?