I was diagnosed with alopecia last February and have since lost all my hair on my scalp and my body. I am starting to get used to it but it still isn't very easy. I keep hoping that this will just be temporary but I don't have a good feeling about that. This is actually my third autoimune disease. I also have asthma and type 1 diabetes. I have two children, my son just turned 2 and my daughter is 4 and a half. I am originally from Montreal, Canada but I am married to an American who works for the US foreign service and so we move every few years. We are in the process of moving to London, UK.
I don't even know the name of this hairpiece that I wear, but I'll find out. I've been going to the same guy for the past 6 years, and I don't even ask any questions anymore. We've seemed to work out most of the kinks, and he's amazing. I know some people on here wear the vacuum wigs, and such. Mine is actually adhesived to my head. I never take it off. I sleep in it, shower, run, I could do a back handspring if I wanted, and no worries of it ever coming off. For me, it works, because I'm not comfortable being out in public without it on. I get a new one every month. So the hair isn't too thick, which I think helps it look better, and not as "wiggy". And because I get a new one every month, it's alright if it loses a bit of hair. I blow-dry, and straighten it all the time without any problems. I'll ask the name next time I go in.
Hello and welcome, Jennifer !
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
I just wanted to say your picture looks beautiful! I know it is so tough and scary to lose your hair- but wanted to say- you sure can pull it off! I also have another autoimmune disease, Hashimoto's (hypo-thyroid).
Very sad feeling to think about your body turning on itself- isn't it?
so where is home when you are in the US? how do you like all the traveling? Must be such a learning experience seeing so much of the world! Travel is something I wish I did more....might have to work on that.
Hey- you will be in my "neck of the woods" I'm not to far from DC. Never have been to Vermont- but always wanted to go there in the fall. The pictures of the autumn leaves are always so breath taking!
I can imagine it is a whole different feel to live in an area than to just simply visit. I have been to Sedona Az twice- the first just with a friend and neither of us had been there. The second time I was visiting someone who lives there- night and day! The places to go and experience with a resident was very different than just being a "tourist" You see so much more!
I understand the insecurity from hair loss!!! It is so difficult. You certainly are not alone.
Hugh
Welcome to Alopecia World!
Hugh
Mar 23, 2009
LouiseOxford
Welcome to Alopecia World!
A group of us meet in London occasionally, so perhaps we will get to meet you during your time here!
Louise
Mar 23, 2009
Brittney
I don't even know the name of this hairpiece that I wear, but I'll find out. I've been going to the same guy for the past 6 years, and I don't even ask any questions anymore. We've seemed to work out most of the kinks, and he's amazing. I know some people on here wear the vacuum wigs, and such. Mine is actually adhesived to my head. I never take it off. I sleep in it, shower, run, I could do a back handspring if I wanted, and no worries of it ever coming off. For me, it works, because I'm not comfortable being out in public without it on. I get a new one every month. So the hair isn't too thick, which I think helps it look better, and not as "wiggy". And because I get a new one every month, it's alright if it loses a bit of hair. I blow-dry, and straighten it all the time without any problems. I'll ask the name next time I go in.
Mar 24, 2009
LeslieAnn Butler
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
Mar 24, 2009
Dielle
Dielle
Apr 2, 2009
Heather L
I just wanted to say your picture looks beautiful! I know it is so tough and scary to lose your hair- but wanted to say- you sure can pull it off! I also have another autoimmune disease, Hashimoto's (hypo-thyroid).
Very sad feeling to think about your body turning on itself- isn't it?
so where is home when you are in the US? how do you like all the traveling? Must be such a learning experience seeing so much of the world! Travel is something I wish I did more....might have to work on that.
Enjoy the rest of the day,
Heather
Apr 2, 2009
Heather L
Hey- you will be in my "neck of the woods" I'm not to far from DC. Never have been to Vermont- but always wanted to go there in the fall. The pictures of the autumn leaves are always so breath taking!
I can imagine it is a whole different feel to live in an area than to just simply visit. I have been to Sedona Az twice- the first just with a friend and neither of us had been there. The second time I was visiting someone who lives there- night and day! The places to go and experience with a resident was very different than just being a "tourist" You see so much more!
I understand the insecurity from hair loss!!! It is so difficult. You certainly are not alone.
Have a great day.
Apr 4, 2009
Salmezan
Jun 14, 2009
Tracy and Amanda
How are you?
Tracy
Aug 21, 2009