Ohio

Female

United States

Profile Information:

Relationship Status:
Married
About Me:
I am 44 and I have a 9 year old son that was born with Alopecia however we have been told that it may be contributed to genetics (simular to Ectodermal Dysplasia) however he only has the side of effect of an absence of head hair. We have seen several specilaist and without my husband and I being tested we are not sure if it is genetics, the only other alternative is to have a biopsy done on our sons scalp, which we have been told may not help to be 100% sure as to whether or not it is Alopecia so we choose not to do this, as we do not want to leave him with a scar. I have spent hours upon hours of research only to find out how rare it is for a child to be born with Alopecia. My son is very involved in sports, school activites and plays the piano. He is very confident however I worry about how the alopecia will effect him in his teen years. I am looking for feedback from others that have children born with Alopecia or a genetic issue that has casued their child to never grow hair. (My son does have eyelashes, eyebrows and normal body hair for a 9 yr old).
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • LeslieAnn Butler

    Hello and welcome, Cindy! How are you and your son doing today?
    LeslieAnn

    Apr 13, 2009

  • LeslieAnn Butler

    You sound like a wonderful Mom. You will find a lot of help on this site, I promise you!
    Hugs, LeslieAnn

    Apr 13, 2009

  • Roger

    Welcome.

    Roger.

    Apr 14, 2009

  • Karen

    Hi Cindy,

    I have met a lady here in Australia whose son was born bald too. I spoke to her about it and she told me it is genetics. Her and her husband have both been tested with the docs sending the work overseas as well. Her other children all have hair however the gene pool in her son has come up with alopecia. She said that both her and her husband carry this special gene.

    Apr 14, 2009

  • Cindy

    Hi there, my name is Cindy and I have a 7 yr old daughter living with Alopeica. You son is adorable. He looks like a kid that has a lot of confidence and a positive attitude.

    Apr 17, 2009

  • Samantha

    Thank you for adding me as a friend. How are you? What do you like to do?

    Apr 29, 2009

  • Tracy and Amanda

    Hi Cindy,
    How are you?
    Tracy

    Aug 20, 2009