Colleen

Female

Philadelphia, PA

United States

Profile Information:

Relationship Status:
Choose one
About Me:
hmmmm.......
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • Leslie Riches

    Welcome! I am fairly new to Alopecia World, too. It is amazing!
  • Becka

    HI Colleen! Thank you for your very kind words about my video! & WELCOME!!! xoxox I love this place because we can be safe & share ANY of our feelings about what we all deal with day in and day out! If my video makes soeone smile then its all worth it! OR makes them have a healthy cry thats great too!!! If you ever need to chat or vent just let me know! :)
  • Becka

    I find all my long & LIGHT scarves from Headcovers online. Cheap & they have great colours! I get the the really big ones...they tie better.
  • Shawn

    Hey thanks for the chat! You've demonstrated that there's a lot of kind people out there.
    Cheers,
    Shawn
  • JeffreySF

    Hi Coleen,

    Welcome to Alopecia World.
    I see you got your picture taken with the Mona Lisa. I love Paris!

    Jeffrey
  • Roger

    Welcome.

    Roger.
  • JeffreySF

    Hi Colleen,

    I've been to Paris many times.
    I love the Lourve. Especially the sculpture. But I love everything about Paris. The bistros, the live music in the streets, fresh baked bread. and getting around on the Metro is so easy.

    Jeffrey
  • Devin

    Welcome to Alopecia World Colleen. Love the pics of Paris. I lived in Germany for a few years and I miss everything over there. I hope you enjoy it here. Take Care!
  • Kristen

    I am soo glad I could be here for you, I wouldn't have it any other way!! Love you!!
  • Devin

    Colleen I dont know if I could deal with a lot of needles in me, but I will take your word for it. I love the Baldie's sign...to funny.
  • LeslieAnn Butler

    Hello and welcome, Colleen!
    How are you today?
    I have universalis, too.
    LeslieAnn
  • Mark

    for a very sweet girl...
  • LeslieAnn Butler

    I've had it for about 30 years.
    I wear wigs all the time except to bed!
  • Devin

    Hi Colleen,
    How are you doing today? Yes I’ve taken PUVA about three times over the years and my hair grew back 100% each time, but it doesn’t work for everyone and when you stop the treatment it will start to fall out again, but it is very slow in my case. The last time I took it I went three times a week for three months. After that the little white hairs started coming back and it would all grow back in. I went to the Doctor in Dec and he told me they don’t like to use this treatment anymore because of the threat of cancer. Also you can’t find the drug which is used with the treatment. So I don’t know what Im going to do. Im not ready to throw in the towel yet. I hope this helps.
    Devin
  • LeslieAnn Butler

    I get my human hair wigs from Brenda Kay. She's here in Portland but works with people all over the country.
    Her wigs are the highest quality at really competitive prices. The one I have on in this photo is a virgin European hair wig that I've had for six years and it still is like new! If you want to contact her, her email is bkswildhair@comcast.net, phone is 503-223-8092. Her web site is www.bkhair.com, but her site isn't updated to let order online yet. It's good to talk to her, though because she is really responsive and helpful.
  • Devin

    Happy Birthday Colleen! I hope its a good one.
  • Karina

    are wigs comfortable to wear?