I'm an artist (painter,singer etc.) who moved here to New York to grow as an artist. I've had Alopecia since I was about 17. Everytime I went to a doctor no one could tell me how I got it and how to get rid of it. I use to wear my hair with pomades and combed it slick back but over the years it just got thinner and pretty much left. I made a choice to finally cut it bald. It was a hard one at first but I feel better.
Hallo Leon,
I have got also Scarring alopecia.
For me was also heavy decision everything shave.Was it but good option.
I wish lovely day.May I ask be friend? as
Hi Leon, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
Your art sounds interesting. I am interested in art although I've never studied it formally. I like to dabble with sewing. In fact the alopecia has inspired me to make some scarves. I've got plenty of ideas for interesting headwear I'd like to make but lack the time or skill to do so.
I'd quite like to try going out bald but think I'd need to lose a bit of weight first. I feel like my head is out of proportion without hair that it just looks too small for my body. I've only been out bald a few times. The first time was shortly after my hair fell out and I'd only just started wearing a wig. I was walking home from work and found it really hot and uncomfortable and just had to take it off. People were driving past me staring out of their cars in absolute horror. I have been out bald a few times since but I've always walked down the back streets and avoided main roads so people wouldn't see me.
I will try to make some scarves. I am doing an evening class in textiles so will try to do something there. Are people in New York OK about your alopecia? Maybe it would be easier to go around bald somewhere like London than where I live but then there are nasty people everywhere and I'm not sure I'd feel safe. I'll have to try it one day just out of interest.
Gail Porter goes out bald here in the UK but then she's a celebrity and probably doesn't have to do stuff like go on buses and go to the supermarket. I can't imagine any place where people wouldn't stare (and that's probably all most people would do) but I think there are some places where I'd actually feel unsafe going out with no hair or looking weird in any way.
I could do with my own personal stylist!! Since losing my hair my old image doesn't seem to work - it was all long hair, long flowing skirts, flowers in the hair etc. Now I just look like a man in a dress. Never been to the US but have got quite interested in it recently. I watched a programme where Stephen Fry (English comedian) went round all the different states in a black cab. It was very interesting. Have you ever been to the UK?
Gail Porter is a TV presenter/model in the UK who has alopecia. There are some videos of a documentary about her on this site. The UK is an interesting and varied place - I'm sure you'd like it.
I would go for a professional photo shoot but I'm saving my money to buy a decent wig!!
Maybe one day. I'm only just working up the courage to go out in public bald at all. Yesterday I was walking along the beach and there was no one nearby (apart from a dog) so I took my wig off and walked for a while bald. It was a beautiful day, sunny but with a cold wind and the sky was very blue. I walked along right by the waves coming in. There were a few people quite far away on the promenade but they probably couldn't see me. It was invigorating and I sat and had a good time of prayer as well. I did have a few photos taken of me with no scarf on (for the photoshoot that is on my page). This was done by an artist interested in how women deal with hairloss - but it was indoors. I don't dare post them though!!
What I meant about saving money for the wig was that I couldn't afford to pay for a photoshoot. I do know some friends who are into photography or art so perhaps one of them could do it one day.
hi leon.... i am from new york, and i commend your bravery for pciking up and moving to such a fast paced land! :) i did the opposite.... i moved from NY to california, the land of calm (except for the drivers lol) ANYWAYS..... wanna be friends?
:)
linds
hi leon!
i am doing quite well, thanks so much for asking! :) my birthday is saturday, and my friends are throwing me a big party :) all the ladies are wearing wigs with me!
I hope you are having a great summer..... whats new with u?
<3
lindsay
hey leon, i dont know how strong i am but i do know it was a neccessity. actually crown regal was the first person i ever talked to about my hairloss, even after suffering with it for so many years. i was just googling and found her website! i do have some scarring in the back of my head but i still wear my head bald and my chin up. when people stare i just hold my head up high and smile and speak. i just bought the headblade i saw in your pics. how does it work for you? and how often do you use it? do you use the slick?
Thanks for the information, Leon. I'll go to Rite Aide and pick it up. I can't tell you the one I have now, but its has several blades and is battery operated (I think that's just a selling ploy though LOL) Take care!
hey there!
thanks for the add. I have AA that has recently progressed to AT. awesome. Anyway, I am trying to get it back, slowly but surely.
What about you?
rj, Co-founder
Sep 12, 2008
as
I have got also Scarring alopecia.
For me was also heavy decision everything shave.Was it but good option.
I wish lovely day.May I ask be friend? as
Sep 12, 2008
JeffreySF
Welcome to Alopecia World.
Jeff
Sep 12, 2008
Linda
Sep 12, 2008
Roger
Sep 13, 2008
Cheryl, Co-founder
Sep 14, 2008
JayB
Keep pushing forward in pursuing your goals. Looking forward to hearing and seeing your visions. Peace.
ps. How's Brooklyn doing?
Sep 15, 2008
Trina
Just stopping by to say hello and welcome
Sep 29, 2008
Cheryl
(I LOVE your playlist! I can stay on this page all day! lol)
Nice to meet you! :-)
Oct 6, 2008
Dee
Oct 9, 2008
Åsa
Oct 11, 2008
Royalty
Oct 22, 2008
Royalty
Nov 3, 2008
Dee
Nov 14, 2008
Tobythia
Nov 24, 2008
Royalty
Nov 26, 2008
VTW
Dec 6, 2008
sharon
Jan 17, 2009
Royalty
Jan 18, 2009
Royalty
Jan 18, 2009
Rose
Jan 27, 2009
Jude
Mar 9, 2009
Jude
Your art sounds interesting. I am interested in art although I've never studied it formally. I like to dabble with sewing. In fact the alopecia has inspired me to make some scarves. I've got plenty of ideas for interesting headwear I'd like to make but lack the time or skill to do so.
I'd quite like to try going out bald but think I'd need to lose a bit of weight first. I feel like my head is out of proportion without hair that it just looks too small for my body. I've only been out bald a few times. The first time was shortly after my hair fell out and I'd only just started wearing a wig. I was walking home from work and found it really hot and uncomfortable and just had to take it off. People were driving past me staring out of their cars in absolute horror. I have been out bald a few times since but I've always walked down the back streets and avoided main roads so people wouldn't see me.
Mar 21, 2009
Jude
Mar 23, 2009
Jude
I could do with my own personal stylist!! Since losing my hair my old image doesn't seem to work - it was all long hair, long flowing skirts, flowers in the hair etc. Now I just look like a man in a dress. Never been to the US but have got quite interested in it recently. I watched a programme where Stephen Fry (English comedian) went round all the different states in a black cab. It was very interesting. Have you ever been to the UK?
Mar 24, 2009
Jude
I would go for a professional photo shoot but I'm saving my money to buy a decent wig!!
Mar 25, 2009
Jude
What I meant about saving money for the wig was that I couldn't afford to pay for a photoshoot. I do know some friends who are into photography or art so perhaps one of them could do it one day.
What sort of church do you go to?
Mar 26, 2009
Dee
I hope all is well with you!
Apr 18, 2009
Lindsay
:)
linds
Apr 26, 2009
Lindsay
i am doing quite well, thanks so much for asking! :) my birthday is saturday, and my friends are throwing me a big party :) all the ladies are wearing wigs with me!
I hope you are having a great summer..... whats new with u?
<3
lindsay
Jul 16, 2009
Pat
Jul 23, 2009
nathalie
I wish you all my best
Jul 25, 2009
Jennifer Krahn
Thanks for the compliment...made my day. Have a good one.
Jul 26, 2009
Pat
Aug 18, 2009
Renee J.
Sep 25, 2009
Artemis88
thanks for the add. I have AA that has recently progressed to AT. awesome. Anyway, I am trying to get it back, slowly but surely.
What about you?
Oct 30, 2009