Hello and welcome to you and your little girl, Barbara,
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women and girls were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do, okay?
LeslieAnn

Hi Barbara,

How are you and your daughter both doing? The first 2 weeks of our AA I was taking Stress supplement and Magnesium Drink which helped me keep it together for my daughter. If you are having a hard time coping, try it out. It definitely helped me.

We saw our ND and got the results of Lillian's GI and ALCAT allergy test. It showed that she was extremely low in her Total Intestinal SIgA (43 with normal being 400-880). This basically shows that she has a high allergy reactivity going on in her gut that has depleted the SIgA. This is the first line of defense for the immune system. When this is deplete apparently stuff gets in that's not supposed to. She also has elevated numbers in intestinal Lysozyme and Alpha Anti-Chymotrypsin which basically means that she has inflammation in her Intestines and colon. She was also abnormally low in Chymotrypsin which is a marker enzyme for pancreatic exocrine output.

All this GI testing basically means that she has had long term exposure to food that she is allergic and or sensitive to that has depleted her defenses in her gut and caused inflamation. She also has a leaky gut.

Her allergy tests showed a list of 5 severe Intolerances, 21 moderate intolerances, and 42 mild intolerances. She is also Gluten and Gliadin intolerant. What was interesting is that the food that she test allergic to previously were in her safe foods list. Apparently there is a difference between classic allergic response and food sensitivity. Anyway we still have to avoid her egg, peas, and cantelope even though they are in her safe food group.

For the next few months, she will be on a diet plan that eliminates all severe and moderate intolerance with mild intolerance foods eaten a maximum of 1 day per week. She was also given a whole host of supplement to fix her gut and improve her skin and allergy response. It's going to be a challenge feeding her for awhile, but she has been very cooperative so far. I don't think I could have done this diet a year ago.

The doctor feels that when her gut is healed and allergens are no longer getting into her system that her immune system will no longer attack her hair. This will be a several month process I think, but in the end I'm hopeful that this will improve her overall health even if her hair falls out anyway.

Tracy

Hi Alyssa,

Welcome to AW. I am mom to an 8 yr old with this condition. How is your daughter doing?
Cindy

Hi Alyssa, your daughter sounds amazing and alot like my daughter. Sam has been doing squaric acid treatments for two years and it has made her hair grow back. She still has some baldness at the nape of her neck and no lashes. Her brows are coming in now. She has not expressed the loss yet after regrowth and I hope we won't have to. Good luck with the shots. Sam won't have anything to do with them. Thank goodness our kids are so resilient and strong. Feel free to have Barbara write her. She'd love that Cindy

HEY HOW IS ALYSSA I HOPE DOING WELL WANTED TO SAY HII

NO WE HAVNT TRIED ANY TREATMENTS JUST THE CREAM SHES ON SO MANY MEDS NOW ASTHMA THYROID AND SHE CANT USE THE BATHRM RIGHT DOES THE HAIR CMEBCK WTH THE TREATMENTS.......I HOPE SHE FEELS OKAY

HERE WHERE I LIVE THEY DONT SEEM TO CARE OLIVIAS MOTHER SANDY ON ALOPECIA WORLD HELPD US AND GET THE DVD AND I TOOK IT TO THE SCHOOL AND THE PRINCIPAL TOLD ME THAT IT WASNT IN HIS CARIKALUM TO SHOW IT SO SANDY CONTACTED THE SUPERINTENDENT AND HE TOLD HER THE SAME THING SO SHE STARTD CALLING NEWS STATIONS AND TEN WHEN THE NEWS CONTACTED THE SCHOOL THEY SHOWED IT IN HEALTH CLASS.....AND THE COUNSLER AND ANOTHER WOMAN AT MY SONS SCHOOL R THE ONLY ONES HERE THEY WANT TO HELP ...MY BESTFRIENDS NIECE JUST FOUND OUT SHE HAD IT ALSO SHE IS 16 HER NAME IS ALSO JASMINE. THANX 4 UR ADVICE GOD WILL HELP US GET THROUGH IT AND ALL OF U HOW IS ALYSSA