I am 36 years old,married, with a 9 year old son, I work at home as a pharmacist. I have had AT since I was 17 years old. I have always been secretive about this as I feel like a freak!
Hi Leslee,
Talking about this actually helps. When I found out my daughter had alopecia I felt alone. I felt there was no one I could talk to who understood. It seemed like she was the only one who had it in the world. I always wished I could talk to other people suffering with this disease. Now thanks to alopecia world I can.
Hello and welcome, Leslee!
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
Thanks for the message, you are very pretty so I'm sure if you think people are stareing at you they are thinking nice things! Hope your having a good day
Yes..day to day i'm going fine..then pass by the mirror and think..how my life would have been otherwise, if i wasn't perceived as lesser.
Indirectly people & family..i mean close family...don't want to admit they have a perception issue whith judging.
After all ...these are people who have no idea what it's like to be bald as a woman.
If they were to lose their hair..they wouldn't know what to do"Naturally"
I had an issue this weekend..where I was insulted/ordered, and told to put on the wig.
I''ll wear it when it suits me....right!
That thing in this heat..is too hot.
It's a vacume/suction...silicone freedomwig prosthesis.
I did wear it..out in the Intense Heat and It wasn't "COOL"
Neither Cool..or Cool!
I am going to get to a position in my life..where nobody or no one will ever tell me to wear a wig.. nor even think they have the right to discuss my hair loss.
I am dealing with it in my own way..and I should say..I'm so STRONG and BRAVE...that I don't need ignorance to bring me down.
I am on a MISSION!
Mina
Hello Leslee, Thanks for the compliment. My wig is just a synthetic from Wilshire wigs. It is multiple colors and I really like it. I would like to look into vacuum prosthesis too. I manually put on my brows for 30 years, I used a brow powder from Clinique and then dabbed hairspray over the top to keep the brows on all day. I since gave all that up with permanent tatoo brows. I am so happy. Would love to chat more!! :)
Leslee...it´s Karina from Argentina...Can you suggest me any brand of wigs to feel comfortable to work..how many hours do you wear it? Summer,winter? Sorry I´m very anxious cause I don´t want to be depressed.
Tracy and Amanda
You will find tons of support here. I hope to be chatting with you soon.
Jun 10, 2009
Tracy and Amanda
Talking about this actually helps. When I found out my daughter had alopecia I felt alone. I felt there was no one I could talk to who understood. It seemed like she was the only one who had it in the world. I always wished I could talk to other people suffering with this disease. Now thanks to alopecia world I can.
Jun 11, 2009
LeslieAnn Butler
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
Jun 13, 2009
Rose
Jun 16, 2009
MiNAH
Indirectly people & family..i mean close family...don't want to admit they have a perception issue whith judging.
After all ...these are people who have no idea what it's like to be bald as a woman.
If they were to lose their hair..they wouldn't know what to do"Naturally"
I had an issue this weekend..where I was insulted/ordered, and told to put on the wig.
I''ll wear it when it suits me....right!
That thing in this heat..is too hot.
It's a vacume/suction...silicone freedomwig prosthesis.
I did wear it..out in the Intense Heat and It wasn't "COOL"
Neither Cool..or Cool!
I am going to get to a position in my life..where nobody or no one will ever tell me to wear a wig.. nor even think they have the right to discuss my hair loss.
I am dealing with it in my own way..and I should say..I'm so STRONG and BRAVE...that I don't need ignorance to bring me down.
I am on a MISSION!
Mina
Jul 6, 2009
Karina
Jul 6, 2009
Karina
Jul 6, 2009
Angela Varnum
Jul 7, 2009
Karina
Oct 27, 2009