Valerie Tirro

Female

Palmyra, NJ

United States

Profile Information:

Relationship Status:
In a Relationship
About Me:
I am 34 and have had Alopecia for almost 4 years now. Started out as patches and drastically changed! I cry alot and do not feel good about myself knowing there is nothing I can do. But I somehow find the strength to move forward. It is so hard. I have lost all my hair including eyebrows, eyelashes, body hair, etc. I do have treatments done...the light box, but have been doing it for over a year now and is $40 every time I go. Can't afford it....who can? It does help and have had very little regrowth.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • LeslieAnn Butler

    Hello and welcome, Valerie!
    How are you doing? I have universalis, too.
    LeslieAnn

    Sep 1, 2010

  • LeslieAnn Butler

    Valerie, I'm sorry you are having a hard time! I know how hard it is. I've had alopecia for 30 years. I want to reassure you that it DOES get better. I don't have much problems with emotions any more. I did have one experience recently with a man who I dated a couple of times and then told him -- and it was as if I had told him I had the plague! A glassy look came into his eyes and he never talked to me again. I wasn't hurt so much as surprised -- I didn't expect that!

    As to swimming, there are wigs you can wear while in the water. I would recommend a synthetic. Amy Gibson makes a "swim wig" so you might check that out.

    And I think you will like my book -- there are a lot of stories from other women: inspirational, sad, funny -- the whole gamut. You will not feel alone. Let me know!

    Hugs!

    Sep 3, 2010

  • Welcome to Alopecia World, Valerie! :) Glad you found us!

    I've found this site to be extremely helpful and full of compassionate people. If you ever need to chat, feel free to message me, okay? :)

    God bless!

    Sep 6, 2010

  • Sandra Dubose-Gibson

    Thank you Valerie. I appreciate the love. Many blessings to you and yours :)

    Sep 7, 2010

  • soniamarry

    nice new pic!!! :)

    Oct 14, 2010

  • soniamarry

    It looks fabulous on you. I think you are definitely wearing it well! :)

    Oct 15, 2010