I have had Clouston's syndrome since birth. I am now married with 3 kids. My little girl has the condition so I am looking into it more especially interested in support for her!
Hi, welcome to AW and thank you for the friend request. I have an 8 yr old daughter with this condition. Most of her hair has returned with treatment. I am a group leader for a children's support group here in Ma. I see you are from Canton and there was a parent from that area that contacted me recently. Are you the parent? If not, I am happy to share our meeting info with you. Cindy
Cindy
Apr 23, 2010
LeslieAnn Butler
How are you and your daughter doing today?
LeslieAnn
Apr 26, 2010